“…31,46,55,59,86,122,[139][140][141]144,152,159 The Western model of individual autonomy may not be appropriate for collectivist cultures, where the individual's choice incorporates opinions of others. 65,74,89,122,152,160 Patients often feel it is the clinician's responsibility to inform their family members of their risk; 59,74,76,88,103,134,144,153,[160][161][162] however, clinicians often feel this is the patient's role. 55,88,163 Where consanguinity is common, family members are primarily in control of marriage and reproductive decisions.…”