Genetic testing and adoption: Practitioner views and knowledge

Taylor, Patricia G.; Mapp, Susan C.; Boutté-Queen, Needha; Erich, Stephen

doi:10.1016/j.childyouth.2010.07.004

Cited by 5 publications

(4 citation statements)

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“…The strength of the family model based on sharing a biogenetic connection puts a certain amount of pressure on the adoptive family. When you compare the adoption process with the gestational process (Fine, 2002; Howell, 2001), hesitation regarding the original parental and cultural status (Homans, 2007; Ouellette, 2003; Volkman, 2005; Yngvesson, 2004, 2007), or questions linked to the child’s unknown genetic heritage (Katz Rothman, 2006; Lebner, 2000; Leinaweaver, 2009; Taylor et al, 2010), as well as the existence of paradoxes, inconsistencies, and ambivalence between the biogenetic and emotional aspects of the sense of belonging are clearly perceptible in adoptive parents.…”

Section: Discussionmentioning

confidence: 99%

“…Of course, knowing one’s genetic history is not the only reason expressed to justify the proposed changes, but this aspect remains both socially and symbolically quite influent in social situations pertaining to an individual’s personal history. For example, the presence of “genetic” information in adoption files and the transmission of these files to concerned adoptive families will engage the liability of professionals who intervene in the adoption process, specifically for child protection services (Taylor, Mapp, Boutté-Queen, & Erich, 2010). The authors mention the ethical issues related to the availability of genetic testing and its possible use to better inform adoptive families about their future child’s potential health risks.…”

Section: Previous Literaturementioning

confidence: 99%

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Kinship Within the Context of New Genetics

Châteauneuf

Ouellette

2016

Journal of Family Issues

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Development of knowledge in the area of genetics plays an increasingly important role in the definition and characterization of kinship. To this day, several studies have focused on the risks represented by genetics within the context of new procreation techniques or genetic diseases, but very few have studied the impact of the development of biogenetics on the social institution of adoption. This article explores the issues related to genetics for adoptive parents who previously tried reproductive medicine. If their trajectories seem to illustrate the passage between two distinct spheres, from a fertility-seeking process centered on biology and genetics with assisted procreation to the social and emotional experience of adoption, our study demonstrates the mix of biogenetic and social factors in their representations and definitions of family and kinship.

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Section: Discussionmentioning

confidence: 99%

Section: Previous Literaturementioning

confidence: 99%

Kinship Within the Context of New Genetics

Châteauneuf

Ouellette

2016

Journal of Family Issues

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“…Previously, the opinions of health professionals have revealed uncertainty among social workers around their knowledge and awareness of professional genetic guidelines (Dewell, 2012; Taylor, et al., 2010). Some conveyed favourable attitudes towards genetic testing within the adoption process while medical advisers demonstrated awareness of the caution about genetic testing in children expressed in guidelines, placing more emphasis on the need to respect the future autonomy of the ones facing adoption (Dewell, 2012).…”

Section: Adoption and Genetic Testingmentioning

confidence: 99%

Attitudes to and experiences of genetic information and testing among professionals working in the context of adoption

Jackson¹,

Burke

2019

Adoption & Fostering

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In the process of creating a care plan or finding a placement for children, assessment of their health and developmental needs will be undertaken. This can involve the interpretation of complex family history information and may also include undertaking and interpreting the results of genetic testing, when within professional guidelines. This study explores opinions, knowledge about and experiences of adoption professionals in relation to genetic information and testing in Wales. Semi-structured qualitative interviews were conducted with six social workers and seven medical advisers. The data were transcribed and thematically analysed. Themes included the challenges to collation of family history, how the willingness of professionals to undertake genetic testing in children awaiting adoption was altered by the availability (and non-availability) of family history information, and the uncertainty that genetic information can generate for professionals and prospective parents. Uncertainty for both professional groups emerged from apparent inconsistency in current practice and from concern over their own lack of genetic knowledge. As new genetic technologies increase the scope of uncertainty, there is a need for social workers and medical practitioners working in adoption to have a greater understanding of genetics alongside opportunities to discuss cases in a multidisciplinary setting when appropriate.

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“…Some argue that the bio-psycho-social perspective supports a move away from a traditional biomedical model of care and towards a holistic approach to human need which recognises ‘the inter-relationships between physical, psychological, and social functioning’ ( Harris and White, 2013 , p. 16). Others contend that the perspective urges social workers to recognise the biological aspects of human need within the profession's person in environment approach ( Taylor et al , 2010 ). The bio-psycho-social perspective has provided a framework for inter-disciplinary collaborations involving social workers working alongside other professionals to address the biological, psychological and social dimensions of human need in fields as diverse as child welfare, nutrition and disability services ( Collins, 2005 ; Conrad, 2010 ; Shor, 2010 ).…”

Section: The Bio-psycho-social Frameworkmentioning

confidence: 99%

After the Biomedical Technology Revolution: Where to Now for a Bio-Psycho-Social Approach to Social Work?

Healy

2015

Br J Soc Work

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In the late twentieth century, the bio-psycho-social framework emerged as a powerful influence on the conceptualisation and delivery of health and rehabilitation services including social work services in these fields. The bio-psycho-social framework is built on a systems view of health and well-being ( Garland and Howard, 2009). The systems perspective encourages medical and allied health professions, including social work, to recognise and to respond to the multiple systems impacting on individual health and well-being ( Engel, 2003). This paper analyses how advances in biomedical technology, particularly in the fields of neuroscience and human genomics, are challenging the bio-psycho-social approach to practice. The paper examines the pressures on the social work profession to embrace biomedical science and points to the problems in doing so. The conclusion points to some tentative ways forward for social workers to engage critically with biomedical advances and to strengthen the bio-psycho-social framework in the interests of holistic and ethical approaches to social work practice.

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Genetic testing and adoption: Practitioner views and knowledge

Cited by 5 publications

References 10 publications

Kinship Within the Context of New Genetics

Kinship Within the Context of New Genetics

Attitudes to and experiences of genetic information and testing among professionals working in the context of adoption

After the Biomedical Technology Revolution: Where to Now for a Bio-Psycho-Social Approach to Social Work?

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