Genetic Nondiscrimination Laws: What Oncology Nurses Need to Know

Steck, Mary Beth; Hassen, Elizabeth

doi:10.1016/j.soncn.2018.12.004

Cited by 6 publications

(5 citation statements)

References 7 publications

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“…At the same time, the document discloses cases and conditions when mandatory genetic testing may be required (Motoc, 2009). In particular, it may be necessary for 'genetic monitoring of the biological effect of toxic substances in the workplace' , subject to the requirement to ensure confidentiality (Steck & Hassen, 2019).…”

Section: Methodsmentioning

confidence: 99%

Genetic Information in the Light of Genetic Discrimination: the Experience of Foreign States

Ponomareva

2022

jour

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Background. Genetic information is often used for purposes of discrimination. For example, the results of genetic testing can demonstrate a high risk of developing a disease in an apparently healthy person, which will require expensive medical care. Such information may affect the decision on the employment of a candidate for a job or the conditions for concluding an insurance contract with him/her. Objective. The article discusses major issues of legal regulation of public relations arising from protection against discrimination based on genetic status in the legislation and law enforcement practice of a number of foreign countries (Australia, Canada, the USA).Design. 20 studies written in English were retrieved from Scopus and Web of Science databases.Results. The research methodology is based on dialectical, logical, predictive methods, system analysis, content analysis, as well as private scientific methods (statistical, technical legal, comparative legal methods). The article provides an overview of the international legal framework for the regulation of public relations arising from countering discrimination based on genetic status, as well as key acts of leading foreign jurisdictions and law enforcement practice.Conclusion. In conclusion, the author reflects on the advisability of implementing relevant foreign experience into the Russian legal system.

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Section: Methodsmentioning

confidence: 99%

Genetic Information in the Light of Genetic Discrimination: the Experience of Foreign States

Ponomareva

2022

jour

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“…Adicionalmente, el asesoramiento genético también cubre aspectos sociales como la posibilidad de discriminación por cáncer hereditario. En países como EE.UU., la discriminación laboral por motivos genéticos está regulada desde 1996; su reforma de salud, realizada en 2010, prohibió la posibilidad de negar un seguro médico usando la condición de preexistencia por condiciones genéticas 34 . Otros países, como México, aun no generan leyes o normas que protejan a pacientes con enfermedades congénitas o hereditarias, como es el caso de la predisposición a cáncer 35 .…”

Section: Asesoramiento Genético En Cáncer Hereditariounclassified

El consentimiento informado en cáncer hereditario

Álvarez-Gómez¹,

Vargas-Huichochea²,

Herrera-Montalvo³

et al. 2023

GAMO

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El término «consentimiento informado» (CI) se refiere al proceso comunicativo indispensable para el acto médico y de investigación, donde una persona aprueba la realización de acciones de diagnóstico y/o tratamiento, o su participación en un protocolo, con pleno conocimiento del objetivo, beneficios, limitaciones y potenciales complicaciones de su decisión. El CI implica elementos éticos indispensables: a) la información, suficiente y clara para facilitar su comprensión; b) la capacidad de la persona invitada para tomar decisiones, siendo competente física, mental y legalmente, y c) la voluntariedad del proceso, para una decisión libre de coerción. En el análisis genético de predisposición a cáncer se han documentado retos bioéticos específicos del CI como la explicación de información compleja, resultados de relevancia futura para la salud propia y familiar, la propiedad del resultado y la incertidumbre de resultados de significado incierto, entre otros. Existe una convergencia del CI con el proceso del asesoramiento genético, cuyo objetivo es educar acerca de las enfermedades hereditarias y sus implicaciones. Su aparente similitud ha restringido la óptima realización de uno u otro proceso, limitando sus respectivos beneficios. La presente revisión busca brindar un panorama del estado del CI en cáncer hereditario, como punto de referencia para acciones que permitan mejorar su aplicación.

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“…In addition, genetic counseling also covers social aspects such as the possibility of discrimination due to hereditary cancer. In countries such as the US, labor discrimination for genetic reasons has been regulated since 1996; its health reform, carried out in 2010, prohibited the possibility of denying a health insurance using the situation of pre-existence due to genetic conditions 34 . Other countries, such as Mexico, have not yet created laws or regulations that protect patients with congenital or hereditary diseases, such as a cancer predisposition 35 .…”

Section: Genetic Counseling In Hereditary Cancermentioning

confidence: 99%

The informed consent for hereditary cancer

Álvarez-Gómez¹,

Vargas-Huichochea²,

Herrera-Montalvo³

et al. 2023

GAMO

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The term informed consent (IC) refers to the indispensable communicative process for the medical and research act, where a person approves the performance of diagnostic and/or therapeutic actions, or involvement in a research with full comprehension of the objective, benefits, limitations, and potential complications of the decision. The IC involves indispensable ethical elements: (a) information, sufficient, and clear to facilitate its understanding; (b) the capacity of the person invited to make decisions, being physically, mentally, and legally competent, and (c) the voluntariness of the process, for a decision free of coercion. For cancer predisposition molecular testing, IC bioethical challenges have been documented, for example, clarification of complex information, results of future relevance for health and family, the ownership of the result, and the uncertainty value of certain results, among others. There is a convergence of IC with genetic counseling, which aims to educate about inherited diseases. Their apparent similarity has limited the optimal performance of one or the other processes, restraining their respective benefits. The present review seeks to provide an overview of the status of IC in hereditary cancer, as cardinal point for improve its application.

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Genetic Nondiscrimination Laws: What Oncology Nurses Need to Know

Cited by 6 publications

References 7 publications

Genetic Information in the Light of Genetic Discrimination: the Experience of Foreign States

Genetic Information in the Light of Genetic Discrimination: the Experience of Foreign States

El consentimiento informado en cáncer hereditario

The informed consent for hereditary cancer

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