Generic and disease-specific estimates of quality of life in macular degeneration: mapping the MacDQoL onto the EQ-5D-3L

Dixon, Padraig; Dakin, Helen; Wordsworth, Sarah

doi:10.1007/s11136-015-1145-x

Cited by 6 publications

(5 citation statements)

References 26 publications

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“…This includes two papers that were published online in 2016 and published in print in 2017. Of the 17 papers, one fulfilled all the reporting criteria [ 28 ] and one fulfilled all the criteria at least partially [ 32 ]. There was wide variation in the quality of reporting between papers.…”

Section: Resultsmentioning

confidence: 99%

Review and critical appraisal of studies mapping from quality of life or clinical measures to EQ-5D: an online database and application of the MAPS statement

Dakin

Abel

Burns

et al. 2018

Health Qual Life Outcomes

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BackgroundThe Health Economics Research Centre (HERC) Database of Mapping Studies was established in 2013, based on a systematic review of studies developing mapping algorithms predicting EQ-5D. The Mapping onto Preference-based measures reporting Standards (MAPS) statement was published in 2015 to improve reporting of mapping studies. We aimed to update the systematic review and assess the extent to which recently-published studies mapping condition-specific quality of life or clinical measures to the EQ-5D follow the guidelines published in the MAPS Reporting Statement.MethodsA published systematic review was updated using the original inclusion criteria to include studies published by December 2016. We included studies reporting novel algorithms mapping from any clinical measure or patient-reported quality of life measure to either the EQ-5D-3L or EQ-5D-5L. Titles and abstracts of all identified studies and the full text of papers published in 2016 were assessed against the MAPS checklist.ResultsThe systematic review identified 144 mapping studies reporting 190 algorithms mapping from 110 different source instruments to EQ-5D. Of the 17 studies published in 2016, nine (53%) had titles that followed the MAPS statement guidance, although only two (12%) had abstracts that fully addressed all MAPS items. When the full text of these papers was assessed against the complete MAPS checklist, only two studies (12%) were found to fulfil or partly fulfil all criteria. Of the 141 papers (across all years) that included abstracts, the items on the MAPS statement checklist that were fulfilled by the largest number of studies comprised having a structured abstract (95%) and describing target instruments (91%) and source instruments (88%).ConclusionsThe number of published mapping studies continues to increase. Our updated database provides a convenient way to identify mapping studies for use in cost-utility analysis. Most recent studies do not fully address all items on the MAPS checklist.Electronic supplementary materialThe online version of this article (10.1186/s12955-018-0857-3) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Review and critical appraisal of studies mapping from quality of life or clinical measures to EQ-5D: an online database and application of the MAPS statement

Dakin

Abel

Burns

et al. 2018

Health Qual Life Outcomes

Self Cite

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“…MacDQoL and LLD are the AMD-specific tools that are considered to be more sensitive than the generic instrument. 39 All of the three instruments are widely used, and could be the preventives of current paper-pencil questionnaires for assessing QoL of patients with AMD.…”

Section: Discussionmentioning

confidence: 99%

Domains of health-related quality of life in age-related macular degeneration: a qualitative study in the Chinese cultural context

et al. 2018

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ObjectiveTo explore which areas of health-related quality of life were affected in Chinese patients, and to identify whether the areas are well covered by validated questionnaires.DesignA qualitative study based on semistructured interviews was conducted. A qualitative thematic analysis following the approach of Colaizzi was used to analyse the interview data for significant statements and phrases. The themes and subthemes organised from the analysis were then compared by using the following current instruments: National Eye Institute Visual Function Questionnaire (NEI-VFQ-25), Macular Disease Quality of life Questionnaire (MacDQoL) and Low-Luminance Questionnaire (LLD).Participants and settingTwenty-one patients with age-related macular degeneration were recruited from the eye clinic of Southwest Eye Hospital in Chongqing, mainland China.ResultsThe mean age of the participants was 69.8 years (range 57–82 years) and the duration of the disease ranged from 3 months to 6 years. The qualitative analysis revealed nine important domains including symptoms, difficulties with daily activities, depending on others, depression and uncertainty, optimism and hope, social isolation, role change, family support and financial burden. However, all the three questionnaires were insufficient to capture the full extent of quality of life issues of Chinese patients with AMD, and MacDQoL covered more domains when compared with NEI-VFQ-25 and LLD.ConclusionThe domains of concepts important to people with AMD in the Chinese culture are not fully represented in the three widely used questionnaires. Nine important domains were identified for the assessment of quality of life and should be considered when assessing the impact of AMD on Chinese individuals. Further studies are needed to develop an AMD quality of life questionnaire, better tailored to the needs and culture of Chinese patients.

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“…MAE and RMSE were calculated in this validation analysis. This approach has been widely used in internal validation and commonly referred to as a cross-validation approach in the literature [12, 13]. …”

Section: Methodsmentioning

confidence: 99%

“Fibromyalgia and quality of life: mapping the revised fibromyalgia impact questionnaire to the preference-based instruments”

Collado-Mateo

Chen

García-Gordillo

et al. 2017

Health Qual Life Outcomes

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BackgroundThe revised version of the Fibromyalgia Impact Questionnaire (FIQR) is one of the most widely used specific questionnaires in FM studies. However, this questionnaire does not allow calculation of QALYs as it is not a preference-based measure. The aim of this study was to develop mapping algorithm which enable FIQR scores to be transformed into utility scores that can be used in the cost utility analyses.MethodsA cross-sectional survey was conducted. One hundred and 92 Spanish women with Fibromyalgia were asked to complete four general quality of life questionnaires, i.e. EQ-5D-5 L, 15D, AQoL-8D and SF-12, and one specific disease instrument, the FIQR. A direct mapping approach was adopted to derive mapping algorithms between the FIQR and each of the four multi-attribute utility (MAU) instruments. Health state utility was treated as the dependent variable in the regression analysis, whilst the FIQR score and age were predictors.ResultsThe mean utility scores ranged from 0.47 (AQoL-8D) to 0.69 (15D). All correlations between the FIQR total score and MAU instruments utility scores were highly significant (p < 0.0001) with magnitudes larger than 0.5. Although very slight differences in the mean absolute error were found between ordinary least squares (OLS) estimator and generalized linear model (GLM), models based on GLM were better for EQ-5D-5 L, AQoL-8D and 15D.ConclusionMapping algorithms developed in this study enable the estimation of utility values from scores in a fibromyalgia specific questionnaire.

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Generic and disease-specific estimates of quality of life in macular degeneration: mapping the MacDQoL onto the EQ-5D-3L

Cited by 6 publications

References 26 publications

Review and critical appraisal of studies mapping from quality of life or clinical measures to EQ-5D: an online database and application of the MAPS statement

Review and critical appraisal of studies mapping from quality of life or clinical measures to EQ-5D: an online database and application of the MAPS statement

Domains of health-related quality of life in age-related macular degeneration: a qualitative study in the Chinese cultural context

“Fibromyalgia and quality of life: mapping the revised fibromyalgia impact questionnaire to the preference-based instruments”

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