General practitioners’ perspectives regarding early developmental surveillance for autism within the australian primary healthcare setting: a qualitative study

Barbaro, Josephine; Winata, Teresa; Gilbert, Melissa; Nair, Radhika; Khan, Feroza; Lucien, Abbie; Islam, Raisa; Masi, Anne; Diaz, Antonio Mendoza; Dissanayake, Cheryl; Karlov, Lisa; Descallar, Joseph; Eastwood, John; Hasan, Iqbal; Jalaludin, Bin; Kohlhoff, Jane; Liaw, Siaw‐Teng; Lingam, Raghu; Ong, Natalie; Tam, Chun Wah Michael; Woolfenden, Susan; Eapen, Valsamma

doi:10.1186/s12875-023-02121-6

Cited by 3 publications

(1 citation statement)

References 41 publications

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“…Adequate knowledge of autism among healthcare workers is crucial for early identification of signs in children (25) (26). Unfortunately, a global inconsistency in awareness about ASD impacts the quality of intervention services (24,(27)(28)(29). Delays in accessing interventional services, particularly in underdeveloped countries, can reduce the likelihood of early intervention and favorable outcomes (30).…”

Section: Introductionmentioning

confidence: 99%

Knowledge of Childhood Autism among Health Workers of Peshawar: A Cross-Sectional Study

Abdul Qadir,

Burki,

Abbasi

et al. 2023

JHRR

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Background: Early detection of Autism Spectrum Disorder (ASD) symptoms is crucial for timely intervention services and a better prognosis. Healthcare professionals play a pivotal role in recognizing ASD features, diagnosis, and providing support. This study aimed to assess the knowledge of healthcare workers in Peshawar regarding childhood autism. Objective: The objective of this study was to evaluate the level of knowledge among healthcare professionals in Peshawar, Pakistan, regarding the early symptoms, diagnosis, and intervention strategies for Autism Spectrum Disorder (ASD), in order to identify knowledge gaps and inform the development of targeted educational and training programs. Methods: This cross-sectional study was conducted from September 2021 to February 2022 in public and private hospitals in Peshawar, Pakistan. Data were collected using the convenience sampling method. A total of 270 healthcare professionals (Doctors, Dentists, Psychologists, Occupational Therapists, Physical Therapists, and Speech & Language Pathologists) participated. Data analysis was performed using SPSS version 22. Descriptive analysis calculated the mean of each domain and the total score, and frequencies for gender, age, and occupation. Results: The total mean score of the study population was 10.40. The mean score in Domain 1 (Social Interaction) was 4.73 (SD ±1.53), in Domain 2 (Language) was 0.60 (SD ±0.499), in Domain 3 (Behaviors) was 2.38 (SD ±1.102), and in Domain 4 (Etiology) it was 2.74 (SD ±1.214). Conclusion: Healthcare professionals in Peshawar, Pakistan, demonstrated limited knowledge about the early symptoms of Autism Spectrum Disorder. These findings have significant implications for policy and practice, health profession program directors, and future research.

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Section: Introductionmentioning

confidence: 99%

Knowledge of Childhood Autism among Health Workers of Peshawar: A Cross-Sectional Study

Abdul Qadir,

Burki,

Abbasi

et al. 2023

JHRR

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Family member and service provider experiences and perspectives of a digital surveillance and service navigation approach in multicultural context: a qualitative study in identifying the barriers and enablers to Watch Me Grow-Electronic (WMG-E) program with a culturally diverse community

Barr,

Hawker,

Winata

et al. 2024

BMC Health Serv Res

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Background Children and families from priority populations experienced significant psychosocial and mental health issues to the COVID-19 pandemic. Yet they also faced significant barriers to service access, particularly families from culturally and linguistically diverse (CALD) backgrounds. With most child and family health nurse clinics ceasing in-person consultations due to the pandemic, many children missed out on health and developmental checks. The aim of this study was to investigate the perspectives and experiences of family members and service providers from an urban, CALD community regarding the implementation of a digital, developmental surveillance, Watch Me Grow-Electronic (WMG-E) program. Methods Semi-structured interviews were conducted with 17 family members, service navigators, and service providers in a multicultural community in South Western Sydney, Australia. This qualitative study is an implementation evaluation which formed as part of a larger, two-site, randomised controlled trial of the WMG-E program. A reflexive thematic analysis approach, using inductive coding, was adopted to analyse the data. Results Participants highlighted the comprehensive and personalised support offered by existing child and family health services. The WMG-E was deemed beneficial because the weblink was easy and quick to use and it enabled access to a service navigator who support family access to relevant services. However, the WMG-E was problematic because of technology or language barriers, and it did not facilitate immediate clinician involvement when families completed the weblink. Conclusions Families and service providers in this qualitative study found that using WMG-E empowered parents and caregivers to access developmental screening and learn more about their child’s development and engage with relevant services. This beds down a new and innovative solution to the current service delivery gap and create mechanisms that can engage families currently not accessing services, and increases knowledge around navigating the health and social care services. Notwithstanding the issues that were raised by families and service providers, which include accessibility challenges for CALD communities, absence of clinical oversight during screening, and narrow scope of engagement with available services being offered, it is worth noting that improvements regarding these implementation factors must be considered and addressed in order to have longevity and sustainability of the program. Trial registration. The study is part of a large randomised controlled trial (Protocol No. 1.0, Version 3.1) was registered with ANZCTR (registration number: ACTRN12621000766819) on July 21st, 2021 and reporting of the trial results will be according to recommendations in the CONSORT Statement.

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Family member and service provider experiences and perspectives of a digital surveillance and service navigation approach: A qualitative study with a culturally diverse community

Barr,

Hawker,

Winata

et al. 2024

Preprint

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Background Children and families from priority populations experienced significant psychosocial and mental health issues to the COVID-19 pandemic. Yet they also faced significant barriers to service access, particularly families from culturally and linguistically diverse (CALD) backgrounds. With most child and family health nurse clinics ceasing in-person consultations due to the pandemic, many children missed out on health and developmental checks. The aim of this study was to investigate the perspectives and experiences of family members and service providers from an urban, CALD community regarding the implementation of a digital, developmental surveillance, Watch Me Grow-Electronic (WMG-E) program. Methods Semi-structured interviews were conducted with 17 family members, service navigators, and service providers in a multicultural community in South Western Sydney, Australia. This qualitative study formed part of a larger, two-site, randomised controlled trial of the WMG-E program. A reflexive thematic analysis approach was adopted to analyse the data. Results Participants highlighted the comprehensive and personalised support offered by existing child and family health services. The WMG-E was deemed beneficial because the weblink was easy and quick to use and it enabled access to a service navigator who support family access to relevant services. However, the WMG-E was problematic because of technology or language barriers, and it did not facilitate immediate clinician involvement when families completed the weblink. Conclusions Families and service providers found that using WMG-E empowered parents and caregivers to access developmental screening and learn more about their child’s development and engage with relevant services. This beds down a new and innovative solution to the current service delivery gap and create mechanisms that can engage families currently not accessing services, and develops and increases knowledge around navigating the health and social care services. Trial registration: The study is part of a large randomised controlled trial (Protocol No. 1.0, Version 3.1) was registered with ANZCTR (registration number: ACTRN12621000766819) on July 21st, 2021 and reporting of the trial results will be according to recommendations in the CONSORT Statement.

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General practitioners’ perspectives regarding early developmental surveillance for autism within the australian primary healthcare setting: a qualitative study

Cited by 3 publications

References 41 publications

Knowledge of Childhood Autism among Health Workers of Peshawar: A Cross-Sectional Study

Knowledge of Childhood Autism among Health Workers of Peshawar: A Cross-Sectional Study

Family member and service provider experiences and perspectives of a digital surveillance and service navigation approach in multicultural context: a qualitative study in identifying the barriers and enablers to Watch Me Grow-Electronic (WMG-E) program with a culturally diverse community

Family member and service provider experiences and perspectives of a digital surveillance and service navigation approach: A qualitative study with a culturally diverse community

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