Gene Editing Communication Must Center Marginalized Communities

Feliú-Mójer, Mónica I.

doi:10.1080/17524032.2020.1812274

Cited by 11 publications

(2 citation statements)

References 7 publications

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“…For example, although our web-based Memory Matters talk series was primarily designed to share recent research findings with the lay community, it simultaneously provided professional development opportunities. Through this series, junior investigators receive mentorship on the principles and importance of science communication, specifically communicating science-related topics with the public [ 27 , 28 ]. Engaging staff and investigators in the development of social media content, such as writing accessible descriptions of their research programs and findings, can also provide science communication opportunities.…”

Section: Discussionmentioning

confidence: 99%

Social Media Programs for Outreach and Recruitment Supporting Aging and Alzheimer Disease and Related Dementias Research: Longitudinal Descriptive Study

Teano,

Scott,

Gipson

et al. 2024

JMIR Aging

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Background Social media may be a useful method for research centers to deliver health messages, increase their visibility in the local community, and recruit study participants. Sharing examples of social media–based community outreach and educational programs, and evaluating their outcomes in this setting, is important for understanding whether these efforts have a measurable impact. Objective The aim of this study is to describe one center’s social media activities for community education on topics related to aging, memory loss, and Alzheimer disease and related dementias, and provide metrics related to recruitment into clinical research studies. Methods Several social media platforms were used, including Facebook, X (formerly Twitter), and YouTube. Objective assessments quantified monthly, based on each platform’s native dashboard, included the number of followers, number of posts, post reach and engagement, post impressions, and video views. The number of participants volunteering for research during this period was additionally tracked using a secure database. Educational material posted to social media most frequently included content developed by center staff, content from partner organizations, and news articles or resources featuring center researchers. Multiple educational programs were developed, including social media series, web-based talks, Twitter chats, and webinars. In more recent years, Facebook content was occasionally boosted to increase visibility in the local geographical region. Results Up to 4 years of page metrics demonstrated continuing growth in reaching social media audiences, as indicated by increases over time in the numbers of likes or followers on Facebook and X/Twitter and views of YouTube videos (growth trajectories). While Facebook reach and X/Twitter impression rates were reasonable, Facebook engagement rates were more modest. Months that included boosted Facebook posts resulted in a greater change in page followers and page likes, and higher reach and engagement rates (all P≤.002). Recruitment of participants into center-affiliated research studies increased during this time frame, particularly in response to boosted Facebook posts. Conclusions These data demonstrate that social media activities can provide meaningful community educational opportunities focused on Alzheimer disease and related dementias and have a measurable impact on the recruitment of participants into research studies. Additionally, this study highlights the importance of tracking outreach program outcomes for evaluating return on investment.

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Section: Discussionmentioning

confidence: 99%

Social Media Programs for Outreach and Recruitment Supporting Aging and Alzheimer Disease and Related Dementias Research: Longitudinal Descriptive Study

Teano,

Scott,

Gipson

et al. 2024

JMIR Aging

View full text Add to dashboard Cite

show abstract

“…And all communities should help govern the conduct of science and weigh in on the appropriate topics for investigation and the appropriate use for science outcomes [UNAIDS, 2011;Varga et al, 2016]. All communities also deserve the benefit from the fruits of science including the tools, resources, information, and solutions that emerge from the scientific enterprise [Feliú-Mójer, 2020]. Many communities have been denied these rights, and we recommend that community science prioritize work with those communities.…”

Section: Science As a Human Rightmentioning

confidence: 99%