Gender, kinship and caregiver burden: the case of community‐dwelling memory impaired seniors

Chumbler, Neale R.; Grimm, James W.; Cody, Marisue; Beck, Cornelia

doi:10.1002/gps.912

Cited by 77 publications

(74 citation statements)

References 44 publications

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“…Likewise, although we found that the individual-level burden of the health conditions of spouses and children was higher than that of the health conditions of parents or siblings, which is consistent with previous research, 38,39 societal-level burden was most strongly associated with the conditions of parents. This higher importance of parents at the population level reflects the fact that parent illnesses requiring assistance are more common than those of other first-degree relatives.…”

Section: Discussionsupporting

confidence: 92%

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Viana

Gruber

Shahly

et al. 2013

Rev. Bras. Psiquiatr.

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Objective: To assess prevalence and correlates of family caregiver burdens associated with mental and physical conditions worldwide. Methods: Cross-sectional community surveys asked 43,732 adults residing in 19 countries of the WHO World Mental Health (WMH) Surveys about chronic physical and mental health conditions of first-degree relatives and associated objective (time, financial) and subjective (distress, embarrassment) burdens. Magnitudes and associations of burden are examined by kinship status and family health problem; population-level estimates are provided. Results: Among the 18.9-40.3% of respondents in high, upper-middle, and low/lower-middle income countries with first-degree relatives having serious health problems, 39.0-39.6% reported burden. Among those, 22.9-31.1% devoted time, 10.6-18.8% had financial burden, 23.3-27.1% reported psychological distress, and 6.0-17.2% embarrassment. Mean caregiving hours/week was 12.9-16.5 (83.7-147.9 hours/week/100 people aged 18+). Mean financial burden was 15.1% of median family income in high, 32.2% in upper-middle, and 44.1% in low/lower-middle income countries. A higher burden was reported by women than men, and for care of parents, spouses, and children than siblings. Conclusions: The uncompensated labor of family caregivers is associated with substantial objective and subjective burden worldwide. Given the growing public health importance of the family caregiving system, it is vital to develop effective interventions that support family caregivers.

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Section: Discussionsupporting

confidence: 92%

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Viana

Gruber

Shahly

et al. 2013

Rev. Bras. Psiquiatr.

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“…However, our findings offer another dimension of burden to comprehensively measure the construct. We found that burden reflected being emotionally pesado, (tired, sad or frustrated), consistent with findings from many studies that have examined the emotional costs of caregiving in terms of depression, stress, happiness, satisfaction, and well-being (Chappell & Reid, 2002;Chumbler et al, 2003;Spurlock, 2005;Stull et al, 1994;Zarit et al, 1980;Zarit et al, 1986). However, the women in this study also conceptualized burden in terms of being physically tiring, and that pesado referred literally to the physical demands of care.…”

Section: Discussionsupporting

confidence: 87%

Concepts of Burden in Giving Care to Older Relatives: A Study of Female Caregivers in a Mexico City Neighborhood

Mendez-Luck

Kennedy

Wallace

2008

J Cross Cult Gerontol

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Objectives-This study examined how women in a Mexico City suburb conceptualized the construct of burden within the context of giving care to older relatives.Methods-Data were collected on forty-one women through semi-structured interviews regarding their caregiving experiences to elderly relatives. Phenomenological principles were used to analyze meanings and understandings of caregiving experiences.Results-Burden was a multi-dimensional construct that referred to specific situations that made caregivers feel emotionally or physical "heavy." Burden also referred to "being a burden" by being in the way, making things difficult, or being a 'weight' on caregivers' shoulders. However, women in this study also viewed burden as a positive sacrifice that involved love, initiative, and good will.Discussion-This study is an important first step in defining the ways in which caregiving is positively and negatively meaningful for Mexican caregivers and their families. Our findings offer an additional dimension of caregiver burden to broaden our understanding and measurement of the construct. The development of culturally appropriate instruments to measure caregiving burden in Mexico is necessary to provide an empirical foundation for policy recommendations that address the growing need for institutional support of caregivers. Moreover, our findings suggest that researchers studying caregiving in Mexico should think about how burden is measured on existing instruments before adapting them for widespread use.

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“…Most people with dementia have at least one caregiver, usually a spouse or relative. Chumbler et al (2003) found no difference in caregiver burden between adult children and spouses [6]. In general, closer kinship ties are associated with increased caregiving duties [7].…”

Section: Introductionmentioning

confidence: 88%

Relatives’ experiences of everyday life when receiving day care services for persons with dementia living at home

Myren¹,

Enmarker²,

Saur³

2013

Health

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Relatives often become involved in the care of people with dementia who are living at home. The caregivers' burdens are extensively described in several studies, and one of the most common, unmet needs of the caregivers is the opportunity for daytime activities. The aim in this qualitative study is therefore to explore the everyday lives of eight relatives of people with dementia who are receiving day care services. A content analysis is used, and three major themes emerge and are discussed: 1) when life becomes chaotic; 2) rebuilding a new, everyday life; and 3) the agonies of choice. The findings indicate that day care service offers respite care, and, at the same time, it gives both the relatives and those with dementia a meaningful day. These findings can also be described as relatives traveling a route from a situation characterized by chaos and suffering to a new life situation that has meaning through day care services. It is important to note that despite this new meaning in the relatives' lives, the relatives continue to struggle with decisions about the futures of their loves ones in regard to the dilemma of placing them in an institution versus aging in place.

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Gender, kinship and caregiver burden: the case of community‐dwelling memory impaired seniors

Cited by 77 publications

References 44 publications

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Family burden related to mental and physical disorders in the world: results from the WHO World Mental Health (WMH) surveys

Concepts of Burden in Giving Care to Older Relatives: A Study of Female Caregivers in a Mexico City Neighborhood

Relatives’ experiences of everyday life when receiving day care services for persons with dementia living at home

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