Gardening with Huntington's disease clients – creating a programme of winter activities

Spring, Josephine A.; Baker, Mark; Dauya, Loreane; Ewemade, Ivie; Marsh, Nicola; Patel, Prina; Scott, Adrienne W.; Stoy, Nicholas; Turner, Hannah; Viera, Marc; Will, Diana

doi:10.3109/09638288.2010.487924

Cited by 12 publications

(9 citation statements)

References 16 publications

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“…The study was not designed to investigate objective clinical effects, but the findings indicate that there is concordance between particpants’ self-perceived outcomes, such as improved physical function, gait and balance, and objective clinical outcomes that have been reported elsewhere [ 9 , 10 , 13 , 14 ]. Participants and caregivers in our study emphasised increased self-confidence and increased social participation, and these are outcomes that have been highlighted in previous research on rehabilitation programs for persons with HD [ 4 , 12 ]. These social aspects may be central for HD patients’ motivation to participate in rehabilitation, but increased social participation in arenas outside the rehabilitation setting may also be an outcome to measure systematically in future research on rehabilitation in HD.…”

Section: Discussionmentioning

confidence: 67%

“…Participants and caregivers in our study emphasised increased self-confidence and increased social participation, and these are outcomes that have been highlighted in previous research on rehabilitation programs for persons with HD [4, 12]. These social aspects may be central for HD patients’ motivation to participate in rehabilitation, but increased social participation in arenas outside the rehabilitation setting may also be an outcome to measure systematically in future research on rehabilitation in HD.…”

Section: Discussionmentioning

confidence: 71%

“…Research suggests that rehabilitation is beneficial for individuals with HD [ 4 – 8 ]. Observational studies indicate that multidisciplinary rehabilitation programs have positive effects on physical function, swallowing, balance, independence, mood, and social relationships [ 9 – 13 ].…”

Section: Introductionmentioning

confidence: 99%

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Participants’, caregivers’, and professionals’ experiences with a group-based rehabilitation program for Huntington’s disease: a qualitative study

Frich

Røthing

Berge³

2014

BMC Health Serv Res

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BackgroundResearch suggests that rehabilitation is beneficial for persons with Huntington’s disease (HD), but there is limited knowledge about participants’ experiences with residential rehabilitation programs. We therefore did a study to explore patients’, family caregivers’, and health professionals’ experiences with a group-based, residential rehabilitation program for individuals with early to mid-stage HD, focusing on three research questions: How did participants experience the structure and content of the program? What outcomes did patients experience? What challenges and success factors did health professionals report?MethodsQualitative, explorative study, collecting data through in-depth interviews with nine family caregivers and 11 patients with early- and mid-stage HD, and focus group interviews with 15 health professionals. Data were analysed using systematic text condensation.ResultsSome participants reported difficulties with defining individual rehabilitation goals, but written individualised plans and schedules were appreciated by all participants. Participants highlighted being member of an "HD-group" as a valuable experience, though tensions and conflicts could occur in groups. Participants typically reported improved gait and balance, increased self-confidence, and social benefits as outcomes. The intensive schedule was acceptable for most participants, but adjustments had been made to allow participants more time to eat, shower and dress between sessions. Success factors reported by health professionals were assigning every patient with a contact person, using clinical tests results to motivate patients, and supervising health professionals in patients’ local municipalities.ConclusionsGroup-based residental rehabilitation was feasible for individuals with early- and mid-stage HD, and participants emphasised mental and social outcomes in addition to physical outcomes. The needs of persons with HD should be considerd when designing programs, to secure structure, continuity in personnel, and sufficient time between sessions.

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Section: Discussionmentioning

confidence: 67%

Section: Discussionmentioning

confidence: 71%

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Participants’, caregivers’, and professionals’ experiences with a group-based rehabilitation program for Huntington’s disease: a qualitative study

Frich

Røthing

Berge³

2014

BMC Health Serv Res

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“…17 Indoor gardening has been used to treat patients with mental health problems. 18 It is not only the appearance of plants that is beneficial: their leaves remove toxins, dust and microorganisms from the air and they also produce the so-called negative ions from their leaves. The overall evidence that charged ions affect mood is, however, unconvincing, 19 despite advertisements strongly recommending their benefits.…”

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confidence: 99%

Gardening for health: a regular dose of gardening

Thompson

2018

Clinical Medicine

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There is increasing evidence that exposure to plants and green space, and particularly to gardening, is beneficial to mental and physical health, and so could reduce the pressure on NHS services. Health professionals should therefore encourage their patients to make use of green space and to work in gardens, and should pressure local authorities to increase open spaces and the number of trees, thus also helping to counteract air pollution and climate change.There is anxiety that the NHS cannot cope now and in the future with the health needs of an increasing and ageing population. It is also realised that pharmaceutical drugs, transformative though they have been, are increasingly expensive and are not always as effective as they appear in the results of early, enthusiastically reported, clinical trials. Drugs are also prescribed at the cost of side effects, which are a leading cause of admissions to hospital, particularly for the elderly, who are poorly represented in trials.Health depends on a range of social, economic and environmental factors, as is emphasised by the shaming disparity between the length of life in different areas of the country.

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“…short CommuniCation Spring future science group material for secondary activities including crafts, cooking, computing and ceramics [2]. Adapted gardening provides an enjoyable leisure activity that achieves visible results in which participants take pride.…”

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confidence: 99%

Design of evidence-based Gardens and Garden Therapy for Neurodisability in Scandinavia: Data From 14 Sites

Spring

2016

Neurodegener. Dis. Manag.

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aim: A total of 14 Scandinavian therapy gardens were visited and data collected on plantings, therapeutic activities and assessment of effectiveness in Spring 2014. methodology: Data were gathered by a questionnaire and by interviewing staff in Sweden, Denmark and Norway. The data collection structured proforma used the post-occupation assessment method. results: Gardening promoted physical movement, presented cognitive challenges and provided opportunities for social participation. Half the gardens were enclosed with sensory plants and 85% were adapted for wheelchairs. A total of 57% of gardens visited had simple designs with flowers, shrubs, lawns and trees. A social center was important especially for dementia clients. Planted pots were used in 79% of gardens. The effectiveness of therapy gardens was assessed at 71% of sites.In 2011, a study of the suitability of the garden for use by clients with Huntington's disease (HD), relatives and staff, for both therapy and leisure gardening was conducted at the Royal Hospital for Neuro-disability in London [1]. Gardening provided HD clients with a sense of achievement and facilitated activity in a rich sensory environment, involving physical work and cognitive challenges. It also provided choice, self-expression, exposure to nature, ownership in a communal facility and Summary points• Gardens are a sensory and stimulating environment for therapy outdoors.• Healing gardens have been created and assessed for effectiveness in Scandinavia.• Gardening may increase well being in neurological conditions and dementia clients.• Scandinavian therapy gardens had simple designs.• Garden groups in Scandinavia facilitate multidisciplinary therapeutic interventions to encourage movement, communication and cognition and foster therapeutic relationships.• Evidence was presented on the benefits of indoor plants and views of garden from windows.• Gardens and gardening groups were assessed with quantitative and qualitative methods and a scale to measure the restorative quality of environments was developed in Scandinavia.• Scandinavian gardens were compact, simple and flexible in design and growing provided highly visible results which encouraged participation.• Evidence-based gardens encourage socialization and activity as well as restoration and relaxation.• Evidence of the therapeutic effects of indoor plants and the views from windows of planting could be considered when new care facilities are planned. Keywords• adjunct therapy • dementia • garden • Huntington's disease • neurodisability • quality of life • Scandinavia For reprint orders, please contact: reprints@futuremedicine.com

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Gardening with Huntington's disease clients – creating a programme of winter activities

Abstract: The inexpensive programme of activities enabled creativity and self-expression, stimulated social contact and helped with therapeutic goals of the clients. In addition, it engaged the multi-disciplinary team and the unit staff, was practical and enhanced the environment.

Cited by 12 publications

References 16 publications

Participants’, caregivers’, and professionals’ experiences with a group-based rehabilitation program for Huntington’s disease: a qualitative study

Participants’, caregivers’, and professionals’ experiences with a group-based rehabilitation program for Huntington’s disease: a qualitative study

Gardening for health: a regular dose of gardening

Design of evidence-based Gardens and Garden Therapy for Neurodisability in Scandinavia: Data From 14 Sites

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