“…Although organizations (American Academy of Pediatrics, ; American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, and Transitions Clinical Report Authoring Group, ) and individuals (Geenen, Powers & Sells, ; Patterson & Lanier, ; Reiss, Gibson & Walker, ) have identified potentially important components and barriers of a transition program (American Academy of Pediatrics, ; Boyle, Farukhi & Nosky, ; Flume, Taylor, Anderson, Gray & Turner, ; Giarelli, Bernhardt, Mack & Pyeritz, ), few have been developed. When transition programs are developed, few HCP systematically evaluate the process and outcomes of the transition to adult health care (McLaughlin et al., ; Sawin, Betz & Linroth, ). Additionally, even fewer evaluate AYAs and their family's needs and opinions related to transition to adulthood (Betz, ; Betz et al., ; Sawyer & Macnee, ).…”