G78(P) Nice guidance – auditing the hard to reach parts

Abstract

Results Questionnaires were completed by 25 participants (n=16 professionals, n=5 parents, n=4 young people). Data that were perceived to be most beneficial (by all groups) were appointment scheduling, medication lists and transition information. Young people and their parents also perceived that viewing clinical correspondence, blood tests and radiology reports would be highly beneficial. A comparison between stakeholder groups identified that young people and parents were significantly more likely to perceive benefits associated with being able to view laboratory and radiology data than professionals (p<0.05).Clinicians perceived that there was a higher degree of risk associated with the inclusion of nearly all data items. These differences were statistically significant (p<0.05) in relation to next of kin and contact details, laboratory, radiology and appointment scheduling data.Analysis of qualitative feedback provided by health professionals identified that there may be specific risks associated with displaying next of kin and contact details, relating to concerns around safeguarding. Conclusions Professionals involved in providing paediatric care perceive that there are more significant risks and fewer, less significant benefits associated with paediatric patient portals than young people and their carers. Discrepancies in perceived risk and benefit should be explored to ensure that future implementations of paediatric patient portals are acceptable to key stakeholders.