Future needs of young people receiving botulinum toxin A in paediatric rehabilitation services of New South Wales: focus on transition

Abstract

Young people (YP) with neurological disabilities such as cerebral palsy are increasingly living into adulthood and require healthcare transition for services including for botulinum toxin A (BoNT‐A). We analysed medical records in the three children's hospitals in New South Wales (NSW) and identified 253 YP who are expected to transition from paediatric to adult BoNT‐A services in NSW and Australian Capital Territory during 2018–2023. A substantial proportion of these YP have additional needs that will require paediatric and adult health services to work together to improve their life‐long health outcomes.

Biofeedback assisted relaxation training and distraction therapy for pain in children undergoing botulinum neurotoxin A injections: A crossover randomized controlled trial

“…face mask), avoid side‐effects of sedation and fasting required for sedation, and reduce recovery time 2,6 . Young people may explore using non‐pharmacological strategies in preparation for their transition to adult BoNT‐A services, where access to sedation may be limited 7 …”

“…2,6 Young people may explore using non-pharmacological strategies in preparation for their transition to adult BoNT-A services, where access to sedation may be limited. 7 In the general paediatric population, there is evidence to support the use of behavioural interventions for pain during needle-related procedures, including distraction therapy (e.g. music, via hand-held devices) and breathing interventions.…”

“…Non-pharmacological strategies are also important to support children during painful procedures including BoNT-A injections. [5][6][7] These may reduce distress or anxiety related to sedation (e.g. face mask), avoid side-effects of sedation and fasting required for sedation, and reduce recovery time.…”

“…Non‐pharmacological strategies are also important to support children during painful procedures including BoNT‐A injections 5–7 . These may reduce distress or anxiety related to sedation (e.g.…”