Future need of ageing people with an intellectual disability in the Republic of Ireland: lessons learned from the literature

Doody, Catriona M; Markey, Kathleen; Doody, Owen

doi:10.1111/j.1468-3156.2011.00716.x

Cited by 45 publications

(11 citation statements)

References 55 publications

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“…Causes of death for people with an intellectual disability differ from the general population with leading cause of death in the general population identified as cancer followed by ischaemic heart disease and cerebral vascular disease (Doody et al . ). However, for people with an intellectual disability, respiratory disease followed by cardiovascular disease related to congenital heart disease are the leading causes of death with cancer ranked lower (Cooper et al .…”

Section: Introductionmentioning

confidence: 97%

Surveying community nursing support for persons with an intellectual disability and palliative care needs

Bailey

Doody

Lyons

2014

Brit J Learn Disabil

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Accessible summary• People with intellectual disability live within their community and will require services to support them at end of life.• Often people with intellectual disability are denied access to essential services.• This paper identifies the experiences of community nurses caring for persons with an intellectual disability and palliative/end-of-life care needs. SummaryPalliative care services have developed over the years to support all persons with life-limiting conditions. Moreover, services for people with an intellectual disability have moved from the traditional institutional setting to supporting people with an intellectual disability to live in their own community and family home. The expansion of palliative care services and integration of people with intellectual disability into their communities has resulted in an increased demand and greater diversity in the population groups accessing palliative care services. This study aims to describe the provision of community nursing support for persons with an intellectual disability and palliative/end-of-life care needs from the perspective of community nurses. A quantitative descriptive cross-sectional survey was employed. On receipt of ethical approval, data were collected through self-reporting questionnaires and descriptive analysis was conducted to describe frequencies and to identify patterns of the respondents using SPSS version 18. Only 85 people with an intellectual disability were referred to palliative/end-of-life care services over a 3-year period. Those delivering care expressed challenges including, understanding communication styles, late referrals, lack of time, knowledge and skills. Highlighted within the study were the benefits of liaison between family and professional and nonprofessional carers. Findings provide insight into the importance of teamwork, advance planning, knowing the person and best practice in providing palliative/end-of-life care for people with intellectual disability through collaboration.

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Section: Introductionmentioning

confidence: 97%

Surveying community nursing support for persons with an intellectual disability and palliative care needs

Bailey

Doody

Lyons

2014

Brit J Learn Disabil

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“…These areas where selected because they were geographically accessible to the authors. Regarding the age criterion, there is widespread recognition that age‐related problems impact on people with IDs at an earlier chronological age than the general population (Doody et al, ; Hatzidimitriadou & Milne, ). Nevertheless, there is no agreement about when aging begins in people with IDs and researchers have chosen different cut‐offs ages, such as 40 (Shooshtari, Naghipur, & Zhang, ) or 50 (McCausland et al, ).…”

Section: Methodsmentioning

confidence: 99%

“…Due to this increased longevity, the number of older people with IDs has become substantially greater, and they may now represent half (Díaz & Rodríguez, ) or nearly half (Doody, Markey, & Doody, ) of all the people with IDs. Thus, they represent a group with high social relevance.…”

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confidence: 99%

“…This phenomena has occurred due to a variety of reasons: improvements in nutrition, healthcare and access to health services; medical advancements and better control of diseases; better education; the move away from institutional care to community living; improvements in the standards of living and economical contributions; and advances in technology (Doody et al, ; Salvatori, Tremblay, & Tryssenaar, ).…”

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confidence: 99%

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Identification of Needs of Older Adults With Intellectual Disabilities

Albuquerque

Carvalho

2020

Policy Practice Intel Disabi

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Information regarding individual needs of older adults with intellectual disabilities (IDs) is scarce although it is very important both from a person-centered planning perspective and from a proactive service system perspective. This study has three main aims:(1) to identify and describe staff perceptions of the needs of a large group of adults aged 45 or over with IDs; (2) to analyze the perceived needs as function of age, gender, and level of disability;(3) to present information about the development and the psychometric properties of the assessment instrument used. The participants were 232 Portuguese older adults with IDs (mean age = 52), predominantly male (n = 129). There were 66 staff members who assessed the needs of the IDs participants through the Inventory of Identification of Needs (IIN). The IIN demonstrated satisfactory psychometric properties (e.g., internal consistency, interrater reliability, construct validity). The unmet needs were numerous and diverse, but those that were perceived as more prevalent were: literacy, handling of money, information on rights, self-care, information on services, communication, occupation at holidays, occupation at weekends, general physical health, cognitive rehabilitation, and daytime activities. The needs were influenced by the disability level: regarding Literacy/Information and Occupation/Community, needs were significantly more common in persons with a moderate and/or severe disability. The influence of age was registered only in Mental Health. The needs identified should guide the planning and development of service provision. These should offer literacy learning experiences, information about the rights of persons with disabilities, information about the services available, self-care assistance or training in self-care skills; and meaningful activities during regular time periods, weekends and holidays.

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“…The rapid change in the socio-economic scenario in India as well as in low- and middle-income countries is significantly affecting the long-standing practice of care for people with disabilities (Ashima and Harsimarpreet, 2014). Nations are challenged to develop a realistic, cost-effective, socially and culturally viable and executable plan that can serve the emerging needs of PWID (Doody et al, 2013).…”

Section: Issues In Caring For Adults With Intellectual Disabilitiesmentioning

confidence: 99%

The National Trust: A viable model of care for adults with intellectual disabilities in India

Menon¹,

Kishore

Sivakumar

et al. 2017

J Intellect Disabil

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The longevity of people with intellectual disabilities is increasing in developing nations. However, developing nations lack a proper system of care for aging persons with intellectual disabilities. Until now the care has been provided by parents and relatives in the home environment in developing countries, but this scenario is also changing; therefore, there is a strong need to explore a plan of care for this population which is also feasible and replicable. The National Trust is an autonomous body of the Government of India which has developed a comprehensive plan of care for adults with intellectual disabilities. In this article, the National Trust is discussed using a socioecological model. The replicability and suitability of this model for other developing countries are discussed.

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Future need of ageing people with an intellectual disability in the Republic of Ireland: lessons learned from the literature

Cited by 45 publications

References 55 publications

Surveying community nursing support for persons with an intellectual disability and palliative care needs

Surveying community nursing support for persons with an intellectual disability and palliative care needs

Identification of Needs of Older Adults With Intellectual Disabilities

The National Trust: A viable model of care for adults with intellectual disabilities in India

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