Functioning Among Mothers and Fathers of Children with Juvenile Rheumatic Disease: A Longitudinal Study

Timko, Christine; Stovel, Katherine; Moos, Rudolf H.

doi:10.1093/jpepsy/17.6.705

Cited by 116 publications

(86 citation statements)

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“…These findings are in contrast to the literature on parents of children with disabilities or chronic illnesses in which mothers consistently score higher than fathers on indices of psychological distress. 17,[30][31][32][33][34][35] The present study' s examination of adjustment …”

Section: Discussionmentioning

confidence: 99%

Parental psychosocial outcomes in pediatric liver and/or intestinal transplantation: Pretransplantation and the early postoperative period

Tarbell

Kosmach

1998

Liver Transpl

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Although liver transplantation has become an effective treatment for end-stage liver disease and liver/intestine transplantation is becoming an increasingly viable procedure for end-stage shortgut syndrome in children, little is known about the impact of these procedures on the child's family. Examination of the impact of these transplantations on the family is needed to identify psychosocial factors that may adversely affect the child's physical and emotional health and to plan for preventive interventions. The psychosocial impact of pediatric liver and/or intestine transplantation on parents was assessed in a cross-sectional sample of 41 mothers and 20 fathers evaluated pretransplantation and 2 months posttransplantation. Parental mental health, parenting stress, and quality of life were assessed, as well as demographic, child, and family characteristics as they related to parental outcomes. Parent adjustment did not differ with regard to time of assessment. A majority of parents (n ‫؍‬ 31) reported elevated psychological symptoms on the Brief Symptom Inventory (BSI), with fathers showing greater distress than mothers (P F .05). Parents' total scores on the Parenting Stress Index and the Parent and Child Domain subscales were in the normal range. Quality of life was assessed by the Physical Health, General Health Perception, and Vitality subscales of the SF-36. Parents reported better physical functioning (P ‫؍‬ .02) but lower vitality ratings than a normative population (P F .01). Family conflict was associated with higher psychological distress on the BSI (P ‫؍‬ .02), whereas demographic factors, including the child's age, sex, and number of people in the household, proved most useful in predicting parenting stress and quality of life. These findings of significant psychological distress in parents of children undergoing liver and/or small-intestine transplantation have implications for the child's adaptation and underscore the need for psychosocial assessment of both parents in the perioperative period. Early identification of families at psychosocial risk and the development of interventions that may prevent or reduce psychological distress are indicated to ensure the best possible outcomes for these children and their families.

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Section: Discussionmentioning

confidence: 99%

Parental psychosocial outcomes in pediatric liver and/or intestinal transplantation: Pretransplantation and the early postoperative period

Tarbell

Kosmach

1998

Liver Transpl

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“…Instead, a number of variables, such as the child's perception of pain and functional ability (Timko, Stovel, & Moos, 1992b) and the parent's perception of stress, control, and other cognitive factors can either protect or contribute to the risk of adjustment problems in both children and their parents (Andrews, Chaney, Mullins, Hommel, Wagner, & Jarvis, 2009;Chaney et al, 1997;Manuel, 2001). For instance, increased perceptions and demonstrations of overt pain by children with JRA have been associated with poorer psychological functioning among parents (Timko et al, 1992b). Maternal education and appraisal of the impact of the child's illness on the family have been shown to buffer against psychological distress (Manuel, 2001).…”

Section: Parent Adjustmentmentioning

confidence: 99%

“…Instead, a number of evaluative variables, such as perceived control, perceived stress, perceived functional ability, and other cognitive factors function to protect or exacerbate the likelihood of parent and child adjustment problems (e.g., Manuel, 2001;Timko et al, 1992b;White et al, 2005). To set the stage for the current thesis project, the next section will discuss a specific model of parent and child adjustment to chronic illness, namely the transactional stress and coping model.…”

Section: Parent Adjustmentmentioning

confidence: 99%

A longitudinal examination of the parent–child distress relationship in children with juvenile rheumatic disease.

Ryan¹,

Ramsey²,

Fedele³

et al. 2010

Rehabilitation Psychology

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Objective: To examine the longitudinal relationships between parent and child distress in a sample of children with juvenile rheumatic diseases (JRDs). Design: Cross-lagged panel correlation analysis tested the temporal precedence of parent distress versus child distress over a 1-year period. Participants: Thirty-seven children (ages 9–17 years; 22 girls) diagnosed with JRD and their parents completed self-report measures on 2 occasions (assessment interval M = 12 months). Primary Outcome Measures: Child Depression Inventory and Brief Symptom Inventory. Results: Significant cross-sectional parent–child distress associations were observed at both time points. Moreover, Time 1 parent distress predicted child distress at Time 2 after child-reported functional ability was controlled; Time 1 child distress was unrelated to Time 2 parent distress. Cross-lagged panel correlations demonstrated the temporal precedence of parent distress relative to child distress in the parent–child distress relationship. Conclusions: These preliminary findings underscore the importance of parent distress in parent–child transactional adjustment, and suggest a predominant role for parent distress in children's adjustment to JRDs.

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“…Six items compose each sub-scale, and subscales are summed to produce a Global SelfWorth score. The reliability and validity of these scales are acceptable, and this measure has been used in studies of adolescents with pediatric pain (22)(23)(24). The Global SelfWorth score was used as an overall indicator of adolescents' self-esteem in this study.…”

Section: Adolescent Functioningmentioning

confidence: 99%

Family factors, emotional functioning, and functional impairment in juvenile fibromyalgia syndrome

Kashikar‐Zuck¹,

Lynch²,

Slater³

et al. 2008

Arthritis & Rheumatism

108

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Functioning Among Mothers and Fathers of Children with Juvenile Rheumatic Disease: A Longitudinal Study

Cited by 116 publications

References 0 publications

Parental psychosocial outcomes in pediatric liver and/or intestinal transplantation: Pretransplantation and the early postoperative period

Parental psychosocial outcomes in pediatric liver and/or intestinal transplantation: Pretransplantation and the early postoperative period

A longitudinal examination of the parent–child distress relationship in children with juvenile rheumatic disease.

Family factors, emotional functioning, and functional impairment in juvenile fibromyalgia syndrome

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