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Webb, Christopher A.; Pfeiffer, Mary M.; Mueser, Kim T.; Gladis, Michael; Mensch, [edited by] James M.; DeGirolamo, Joanne; Levinson, Daphna

doi:10.1016/s0920-9964(98)00089-9

Cited by 48 publications

(15 citation statements)

References 9 publications

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“…These results and our data may reflect a greater effectiveness of problem-focused coping in situations when the degree of control is high but not when it is low [46], as in the care of a dependent elderly relative. Findings from Webb et al’s study [47] are consistent with this argumentation. These authors found that problem-focused coping was related to a lower subjective burden in positive symptoms behavior of schizophrenia (perceived by caregivers as more solvable), whereas the same type of coping was related to a greater subjective burden in negative symptoms behavior (perceived by caregivers as less solvable).…”

Section: Discussionsupporting

confidence: 76%

Coping strategies and quality of life in caregivers of dependent elderly relatives

Pérez

Abreu-Sánchez

Rojas-Ocaña

et al. 2017

Health Qual Life Outcomes

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BackgroundDespite the importance of coping in caregiving, there are few studies on the relationship between coping and quality of life in caregivers of the frail dependent elderly. Thus, this study aims to analyze the relationship between coping strategies and quality of life dimensions in primary caregivers of dependent elderly relatives.MethodsA cross-sectional study was conducted from 86 caregivers. Predictive variables were coping strategies (problem-focused, emotion-focused, socially-supported, and dysfunctional); dependent variables were quality of life dimensions (psychological, physical, relational, and environmental); and potential confounding variables were age, gender, perceived health and burden of caregiver, and functional capacity of care receiver. Correlation coefficients were calculated and multiple linear regression analysis was performed.ResultsAfter controlling for potential confounders, dysfunctional coping was related to worse quality of life in the psychological dimension, while emotion-focused and socially-supported coping were related to superior psychological and environmental dimensions of quality of life. The physical and relational dimensions of quality of life were not related to coping strategies.Conclusions1) it is important to consider coping strategies in the assessment of primary caregivers of dependent elderly relatives; 2) the quality of life of caregivers is related to their coping strategies, 3) their quality of life can be worsened by avoidance-type coping, and 4) their quality of life can be improved by active emotion-focused coping and socially-supported coping.

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Section: Discussionsupporting

confidence: 76%

Coping strategies and quality of life in caregivers of dependent elderly relatives

Pérez

Abreu-Sánchez

Rojas-Ocaña

et al. 2017

Health Qual Life Outcomes

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“…People with schizophrenia had been diagnosed for an average of 16 years and were diagnosed with paranoid ( n = 10, 53%), disorganized ( n = 4, 21%), undifferentiated ( n = 2, 11%), catatonic ( n = 2, 11%), and paranoid plus disorganized ( n = 1, 5%) DSM-IV-TR subtypes of schizophrenia. People had varying severities of schizophrenia but as per the inclusion criteria were at least moderately ill, with 14 people with schizophrenia (74%) having a CGI-S score of 4-5 and 5 (26%) having a CGI-S score of 6-7 [47–50]. …”

Section: Resultsmentioning

confidence: 99%

“…In addition, prior research has identified a number of factors which may impact the subjective burden experienced by caregivers. For example, there is evidence to suggest thatspecific clusters of schizophrenia symptoms may have a differential impact on caregiver burden [11, 45, 46] and high levels of symptomology have a significant impact on caregiver burden [47–50];there are differences in the concept of caregiver burden in terms of ethnicity (with white caregivers more likely to report high levels of caregiver burden than African Americans) [42, 51, 52];the gender of the person receiving the care (males with schizophrenia are more frequently associated with high levels of caregiver burden) [47, 53] and the person providing the care (female caregivers experiencing higher levels of burden than male caregivers) [11, 54] can influence caregiver burden;the caregiver relationship to the person with schizophrenia (e.g., mother-daughter and father-daughter) and living situation (living with person or not) can affect the degree of caregiver burden [55];age of the person receiving care [56, 57] and age of the caregiver [58] may both have an independent effect on reported rates of caregiver burden (studies suggesting that younger people with schizophrenia and older caregivers experience higher levels of burden);educational attainment may predict levels of caregiver burden, with those of lower educational backgrounds experiencing higher levels of caregiver burden [59]. …”

Section: Introductionmentioning

confidence: 99%

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“Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia

Gater

Rofail

Tolley

et al. 2014

Schizophrenia Research and Treatment

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Objectives. As a disease typified by early onset and chronic disease course, caring for a person with schizophrenia may have a significant impact on caregivers' lives. This study aimed to investigate the subjective experiences of caregivers of people with schizophrenia as a means of understanding “caregiver burden” in this population. Methods. Face-to-face qualitative interviews were conducted with a diverse sample of 19 US-English speaking caregivers of people with schizophrenia (who were at least moderately ill). Interview transcripts were analyzed using grounded theory methods and findings used to inform the development of a preliminary conceptual model outlining caregivers' experiences. Results. Findings support assertions that people with schizophrenia were largely dependent upon caregivers for the provision of care and caregivers subsequently reported lacking time for themselves and their other responsibilities (e.g., family and work). Caregiver burden frequently manifested as detriments in physical (e.g., fatigue, sickness) and emotional well-being (e.g., depression and anxiety). Conclusions. Caring for a person with schizophrenia has a significant impact on the lives of informal (unpaid) caregivers and alleviating caregiver burden is critical for managing individual and societal costs. Future research should concentrate on establishing reliable and valid means of assessing burden among caregivers of persons with schizophrenia to inform the development and evaluation of interventions for reducing this burden.

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“…For patient function, although contradictory results have been reported as regard to whether positive or negative symptoms are more burdensome [10, 15–17], consistency exists in that less severe symptoms and higher level of function results in lower family burden [15, 16, 18–20]. For duration of illness, the majority of study documented a decline in family burden over time [20–22], yet some studies found no effect of time [18].…”

Section: Introductionmentioning

confidence: 99%

Reported family burden of schizophrenia patients in rural China

Liu

Tang

et al. 2017

PLoS ONE

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We aim to assess the level of family burden of schizophrenia patients and identify its predicting factors in a rural community sample of China. A sample of 327 primary caregivers was recruited through a one-stage cluster sampling in Ningxiang County of Hunan province, China. Family burden was assessed using the Family Burden Interview Schedule (FBIS) of Pai and Kapur. Our results showed that the mean score of FBIS was 23.62±9.76 (range, 0–48), with over half (52%) caregivers reported their family burden being moderate and severe. Among the six domains of family burden, financial burden (76%) was the commonest burden, while disruption of family interactions (37%) was the least mentioned. A multivariate analysis of family burden revealed that patient being admitted for over 3 times, caregiver being female, having a middle school education, and with additional dependents, as well as higher care network function were positive predictors of family burden, while higher patient function and family function, and increasing patient age were negative predictors of family burden.Intervention to decrease family burden may be best served by improving family function and exploring alternative care model instead of hospitalization.

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Full length article

Cited by 48 publications

References 9 publications

Coping strategies and quality of life in caregivers of dependent elderly relatives

Coping strategies and quality of life in caregivers of dependent elderly relatives

“Sometimes It’s Difficult to Have a Normal Life”: Results from a Qualitative Study Exploring Caregiver Burden in Schizophrenia

Reported family burden of schizophrenia patients in rural China

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