“From Snail Mode to Rocket Ship Mode”: Adolescents and Young Adults' Experiences of Returning to Work and School After Hematopoietic Cell Transplantation

Brauer, Eden R.; Pieters, Huibrie C.; Ganz, Patricia A.; Landier, Wendy; Pavlish, Carol; Heilemann, MarySue V.

doi:10.1089/jayao.2017.0025

Cited by 33 publications

(29 citation statements)

References 50 publications

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“…Patients who were younger than 18 years at the time of the study, had relapsed since HCT, had a non-hematological primary diagnosis, had a history of more than one HCT, were documented as cognitively impaired in the medical record or unable to speak English were excluded. Participant recruitment has been described previously [18]. The final sample was recruited from a single institution and consisted of 18 AYAs who agreed to participate after being invited via mail, telephone, or in-person contact at a follow-up clinic appointment.…”

Section: Methodsmentioning

confidence: 99%

“Improving to where?”: treatment-related health risks and perceptions of the future among adolescents and young adults after hematopoietic cell transplantation

Brauer¹,

Pieters

Ganz³

et al. 2018

Support Care Cancer

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Section: Methodsmentioning

confidence: 99%

“Improving to where?”: treatment-related health risks and perceptions of the future among adolescents and young adults after hematopoietic cell transplantation

Brauer¹,

Pieters

Ganz³

et al. 2018

Support Care Cancer

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“…The ability to resume work-related activities after HCT is an important indicator of psychosocial recovery and can affect quality of life [76]. AYAs may tend to rush back to school or work after HCT and experience immense challenges as they tend to overestimate their functional ability due to their determination to catch up with their peers or "make up for lost time" [77]. Unlike pediatric care models that commonly include federally mandated school reintegration programs to minimize the effects of HCT-related breaks in education, AYAs in postsecondary programs do not have access to such muchneeded resources.…”

Section: Addressing Aya-specific Psychosocial Issuesmentioning

confidence: 99%

Unique Challenges of Hematopoietic Cell Transplantation in Adolescent and Young Adults with Hematologic Malignancies

Mehta

Rotz

Majhail

2018

Biology of Blood and Marrow Transplantation

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Slow but definite progress has been made in recognizing the differences in disease biology, host factors, and psychosocial issues related to management of hematologic malignancies, including hematopoietic cell transplantation (HCT), in the adolescent and young adult (AYA) population. Improvement in survival rates among AYAs undergoing HCT for hematologic malignancies have paralleled those seen among children and older adults in the contemporary era. However, overall outcomes remain inferior compared with those in children owing largely to higher rates of treatment related mortality and late relapses in AYA HCT recipients. We review the unique issues and challenges facing AYAs with hematologic malignancies undergoing HCT, identify unmet needs and gaps in care, and describe potential strategies to address them. A patient-centric and multidisciplinary approach to AYA HCT care with lifelong follow-up is necessary to ensure long-term health.

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“…Those who were younger than 18 years at the time of study entry, had relapsed since HCT, received more than one HCT, could not speak English, or were cognitively impaired were excluded from this analysis. Further details of recruitment have been described elsewhere (Brauer et al, 2017). …”

Section: Research Approachmentioning

confidence: 99%

Coming of Age With Cancer: Physical, Social, and Financial Barriers to Independence Among Emerging Adult Survivors

Brauer

Pieters

Ganz

et al. 2018

ONF

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Objective: To explore the transition to self-care among a sample of emerging adult cancer survivors after hematopoietic cell transplantation (HCT). Research Approach: Qualitative Setting: The hematology outpatient setting at City of Hope National Medical Center in Southern California. Participants: 18 HCT survivors who were 18–29 years of age at the time of HCT for a primary hematologic malignancy and 8–60 months post-HCT participated in the study. Methodologic Approach: We conducted in-depth, semi-structured interviews and analyzed interview transcripts using Grounded Theory methodology. Findings: Health-related setbacks following HCT disrupted not only participants’ journey towards self-care, but also their overarching developmental trajectory towards adulthood. Physically, participants struggled with lack of personal space around caregivers, but felt unready to live on their own due to persistent health issues. Socially, they relied on multiple caregivers to avoid relying too much on any one person. Financially, participants worried about prolonged dependence and increased needs in the future due to their cancer experience. Interpretation: The transition to self-care after HCT is deeply connected to broader developmental processes of emerging adulthood. Specifically, physical-spatial, social, and financial setbacks during survivorship after HCT were perceived as threats to independence and self-sufficiency. Implications for Nursing: Nurses can support the transition to self-care among emerging adults after HCT by recognizing the broader developmental impact of their cancer experience. We provide examples of how to incorporate these findings into patient-centered care for this population, such as identifying opportunities for independence in care plans and goal-setting and availability of financial counseling.

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“From Snail Mode to Rocket Ship Mode”: Adolescents and Young Adults' Experiences of Returning to Work and School After Hematopoietic Cell Transplantation

Cited by 33 publications

References 50 publications

“Improving to where?”: treatment-related health risks and perceptions of the future among adolescents and young adults after hematopoietic cell transplantation

“Improving to where?”: treatment-related health risks and perceptions of the future among adolescents and young adults after hematopoietic cell transplantation

Unique Challenges of Hematopoietic Cell Transplantation in Adolescent and Young Adults with Hematologic Malignancies

Coming of Age With Cancer: Physical, Social, and Financial Barriers to Independence Among Emerging Adult Survivors

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