From Repair to Enhancement: The Use of Technical Aids in the Field of Disability

Winance, Myriam; Marcellini, Anne; Léséleuc, Eric de

doi:10.1057/9781137530073_7

Cited by 3 publications

(2 citation statements)

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“…Whether at the pharmacy for Madame Debra or during the trial for Madame Thin, there was little or no collective work needed to adapt the person to the wheelchair, and vice versa. On the other hand, the interview with Madame Debra revealed a process of adjustment (Winance, Marcellini, & Léséleuc, 2015). Indeed, Madame Debra decided to remove the foot rests, which she found to be too high, leading to an uncomfortable position for her legs.…”

Section: The Variable Status Of Both the Wheelchair And The Personmentioning

confidence: 99%

‘Don’t touch/push me!’ From disruption to intimacy in relations with one’s wheelchair: An analysis of relational modalities between persons and objects

Winance

2019

The Sociological Review

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HAL is a multi-disciplinary open access archive for the deposit and dissemination of scientific research documents, whether they are published or not. The documents may come from teaching and research institutions in France or abroad, or from public or private research centers. L'archive ouverte pluridisciplinaire HAL, est destinée au dépôt et à la diffusion de documents scientifiques de niveau recherche, publiés ou non, émanant des établissements d'enseignement et de recherche français ou étrangers, des laboratoires publics ou privés. 'Don't touch/push me!' From disruption to intimacy in relations with one's wheelchair. An analysis of relational modalities between persons and objects Myriam WinanceTo cite this version: Myriam Winance. 'Don't touch/push me!' From disruption to intimacy in relations with one's wheelchair. An analysis of relational modalities between persons and objects. Sociological Review, Wiley, 2019, 67 (2), pp.Published as: Winance, M. (2019). 'Don't touch/push me!' From disruption to intimacy in relations with one's wheelchair. An analysis of relational modalities between persons and objects. The Sociological Review Monograph, 67(2), 428-443. Abstract In this article, I re-examine the question of the relationships between humans and nonhumans, between subjects and objects. I analyse how relationships shape and define theseboth them and their assemblage. While I concur with work in STS that has shown the ongoing process through which the embodied self is performed, I shift my attention from this ongoing process to the nature of the entities resulting from this process. I shift my attention from adjustment to entanglements and analyze the different ways of 'being entangled'. Some of these produce intimacy, other don't. This analysis is based on ethnographic fieldwork on the use of wheelchairs. I identify five relational modalities between the person and their wheelchair: intrusional, instrumental, functional, internalized and bound. Each defines the particular status of the wheelchair and of the person, and the way they live together. This analysis allows me to discuss the way different relationships lead to different descriptions and perceptions of the wheelchair and of the person. This analysis has implications for both the analysis of 'prosthesis' and of 'disability'.

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Section: The Variable Status Of Both the Wheelchair And The Personmentioning

confidence: 99%

‘Don’t touch/push me!’ From disruption to intimacy in relations with one’s wheelchair: An analysis of relational modalities between persons and objects

Winance

2019

The Sociological Review

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“…For, in a world that 'normalises' disability, a 'cure' is seen as the quintessential solution and rehabilitation and education second best (Tichkasky and Michalko, 2012;Tremain, 2005). Some authors speak of the 'biotechnological illusion', questioning the idea that biotech enhancement or 'normalisation' can take place without considerable efforts and sacrifice, and that normalisation can fix 'the problem' (Winance et al, 2015). Others have criticised forms of health governance that define individuals as autonomous subjects expected to make 'responsible' choices among a narrowed down range of options (Callon and Rabeharisao, 2004;Davis, 2002, p. 30;Ho, 2008).…”

Section: Introductionmentioning

confidence: 99%

Motivations for seeking experimental treatment in Japan

Kato

Sleeboom-Faulkner

2017

BioSocieties

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In this article on innovative medical treatment for serious conditions in Japan, we aim to revise two widespread notions: first, that people living with severe conditions are all waiting for a cure or are impatient to try out experimental treatment, in particular regenerative medicine. Showing that motivations for cure seeking are complex and linked to somatic identity, we argue that gaining a cure also means a new social normality, which for some people narrows the only normality that is meaningful to them; and, second, that people living with a serious (latent) condition necessarily define their lives as not normal in the light of normalisation. People with a condition conceptualise normal life variously and multiply in the light of both individual and collective experiences. The two revisions are crucial to attempts at understanding what makes people seek experimental medicine. Comparing the narratives of people with four different conditionsspinal cord injury, Duchenne muscular dystrophy, Diabetes Mellitus type 1 and cardiovascular disease -it becomes clear that the difference between seeking treatment or not largely depends on somatic identities; rather than through notions of (ab)normality, it is more adequately understood in terms of the experience of somatic lacking and wholeness. BioSocieties (2018) 13, 255-275. https://doi

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Problems of Transhumanism

Adorno

2021

The Transhumanist Movement

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From Repair to Enhancement: The Use of Technical Aids in the Field of Disability

Cited by 3 publications

References 10 publications

‘Don’t touch/push me!’ From disruption to intimacy in relations with one’s wheelchair: An analysis of relational modalities between persons and objects

‘Don’t touch/push me!’ From disruption to intimacy in relations with one’s wheelchair: An analysis of relational modalities between persons and objects

Motivations for seeking experimental treatment in Japan

Problems of Transhumanism

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