From ‘other’ to involved: user involvement in research: an emerging paradigm

Beresford, Peter

doi:10.1080/2156857x.2013.835138

Cited by 118 publications

(116 citation statements)

References 16 publications

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“…In this case, the time taken to establish a group of young advisors and the lack of established YPAG members with relevant experience meant it was difficult to involve young people in the initial stages of the project. If the primary purpose of young people's involvement in research is for them to comment on how to make research materials more "young people-friendly", this is nearer to consultation than authentic participation (Cockburn, 2005), co-production or emancipatory models of involvement (Beresford, 2013;Gibson et al, 2012). The dominant discourses and cultures of health services and research often do not sit easily with partnership initiatives with young people (Todd, 2012).…”

Section: Discussionmentioning

confidence: 99%

Involving young people in drug and alcohol research

Brady

Templeton

Toner

et al. 2018

DAT

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If you would like to write for this, or any other Emerald publication, then please use our Emerald for Authors service information about how to choose which publication to write for and submission guidelines are available for all. Please visit www.emeraldinsight.com/authors for more information. About Emerald www.emeraldinsight.comEmerald is a global publisher linking research and practice to the benefit of society. The company manages a portfolio of more than 290 journals and over 2,350 books and book series volumes, as well as providing an extensive range of online products and additional customer resources and services.Emerald is both COUNTER 4 and TRANSFER compliant. The organization is a partner of the Committee on Publication Ethics (COPE) and also works with Portico and the LOCKSS initiative for digital archive preservation. Purpose -Young people's involvement should lead to research, and ultimately services, that better reflect young people's priorities and concerns. Young people with a history of treatment for alcohol and/or drug problems were actively involved in the youth social behaviour and network therapy study. The purpose of this paper is to explore the impact of that involvement on the study and what was learnt about involving young people in drug and alcohol research. Design/methodology/approach -The initial plan was to form a young people's advisory group (YPAG), but when this proved problematic the study explored alternative approaches in collaboration with researchers and young people. Input from 17 young people informed all key elements of the study. Findings -Involvement of young people needs to be dynamic and flexible, with sensitivity to their personal experiences. Engagement with services was crucial both in recruiting young people and supporting their ongoing engagement. This research identified a need to critically reflect on the extent to which rhetorics of participation and involvement give rise to effective and meaningful involvement for young service users. It also highlights the need for researchers to be more flexible in response to young people's personal circumstances, particularly when those young people are "less frequently heard". Research limitations/implications -This research highlights the need for researchers to be more flexible in response to young people's personal circumstances, particularly when those young people are "less frequently heard". It highlights the danger of young people in drug and alcohol research being unintentionally disaffected from involvement through conventional approaches and instead suggests ways in which young people could be involved in influencing if and how they participate in research. Practical implications -There is an apparent contradiction between dominant discourses and cultures of health services research (including patient and public involvement) that often do not sit easily with ideas of co-production and young people-centred involvement. This paper provides an alternative approach to involvement of young people that can help to e...

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Section: Discussionmentioning

confidence: 99%

Involving young people in drug and alcohol research

Brady

Templeton

Toner

et al. 2018

DAT

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“…Beresford, 2013). In the field of child welfare, the involvement of service-users is commonly approached in terms of children's and parents' involvement and participation.…”

Section: Children's Involvementmentioning

confidence: 99%

Children's involvement in care order decision-making: A cross-country analysis

Berrick

Dickens

Pösö

et al. 2015

Child Abuse & Neglect

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a b s t r a c tThis international comparative paper examines how child protection workers in four countries, England, Finland, Norway, USA (CA), involve children in decision making regarding involuntary child removal. The analysis is based on 772 workers' responses to a vignette describing preparations for care order proceedings. We examine children's involvement along three dimensions including information given to the child, information gathered from the child, and opportunities for their perspectives and interests to be considered. Results show that child protection workers weigh children's involvement differently based upon age. Staff in the four countries were more likely to talk with an older child, to provide information, to gather information, and to include in relevant decision making if the child were 11 compared to five in our vignette. Although the Nordic countries and England provide policy guidance regarding children's role in child protection decision making, we did not see consistently higher indicators of children's involvement from the respondents in these countries. Using child protection system frames to analyze the findings did not produce consistent differences between the family service systems and child protection systems included in this study. Findings highlight the wide range in practices concerning children's involvement in decision making, and the wide space for professional discretion in implementing practice with children at the local level.© 2015 Elsevier Ltd. All rights reserved. IntroductionRemoval of a child from parental care to public care is a serious state intervention in the private relations of children and their parents. Children, the subject of removal, are sometimes involved in decisions about their separation, but they are not necessarily engaged as agents of their fate. Some states make explicit through legislation an expectation that children are involved in determining their future; others are silent on children's participation. And because we know that child protection workers, as street-level bureaucrats (Lipsky, 2010), sometimes employ wide discretion in their work with families, we do not know whether workers in various state systems are more or less inclusive of children's voice. This international comparative paper examines how child protection workers in England, Finland, Norway, and the US (California) involve children in decision making regarding preparations of a possible involuntary child removal. We refer to child protection workers as a common term across countries, even though each country may use different terms to describe front-line workers in their child welfare system. We use the term care order proceedings to refer to the court processes that authorize the separation of a child from his/her parent(s), and care order preparations for the agency-based policies and practices that help determine whether and when to make an application to the court. We examine children's involvement along three dimensions including information given to the child, inf...

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“…It has been argued that service user involvement is “poorly defined and carelessly used” (Beresford, , p. 21). The confusion(s) surrounding service user involvement is undoubtedly augmented by the plethora of terms used to identify individuals or groups who are in receipt of public services: client , customer , consumer , service user , service survivor(s) , and expert(s) by experience are among the terms often used interchangeably, although they convey different nuances.…”

Section: Introduction: What Is ‘Service User Involvement’ How Hasmentioning

confidence: 99%

“Experts by Experience”: The Involvement of Service Users and Families in Designing and Implementing Innovations in Family Justice

Misca¹,

Walker²,

Kaplan³

2019

Family Court Review

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Drawing on international research, policy, and practice, this article explores what is meant by service user involvement, how it has developed, and how it has been implemented across different areas of practice. Using examples from across the health and social care fields, it reflects on how the learning from other areas of practice in which service user involvement has been successful may be applied to the family justice field. The arguments presented highlight the value of taking a bottom‐up approach in designing and implementing innovations in family justice, which would embrace the views of family members, including children, as ‘service users.’ It is important, however, to balance both the challenges and the opportunities offered by involving those who are ‘experts by experience’ in the family justice processes, in order to lead to improved services and experiences.

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From ‘other’ to involved: user involvement in research: an emerging paradigm

Cited by 118 publications

References 16 publications

Involving young people in drug and alcohol research

Involving young people in drug and alcohol research

Children's involvement in care order decision-making: A cross-country analysis

“Experts by Experience”: The Involvement of Service Users and Families in Designing and Implementing Innovations in Family Justice

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