From one side to the other: what is essential? Perception of oncology patients and their caregivers in the beginning of oncology treatment and in palliative care

Munhoz, Bruna A ntenussi; Paiva, Henrique Soares; Abdalla, Beatrice M artinez Zugaib; Zaremba, Guilherme; Rodrigues, Andressa M acedo Paiva; Carretti, Mayra R ibeiro; Monteiro, Camila R ibeiro de Arruda; Zara, A.; Silva, Jussara O liveira; Assis, Widner Baptista; Auresco, Luciana Campi; Pereira, Leonardo Lopes; Giglio, Adriana B raz Del; Lepori, Ana C laudia de Oliveira; Trufelli, Damila Cristina; Giglio, Auro del

doi:10.1590/s1679-45082014rc3091

Cited by 10 publications

(15 citation statements)

References 6 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…28 Important factors with regards to patients' perspectives of quality of care include a compassionate care provider, trust in their clinician and a minimum waiting time to be seen for appointments. [29][30][31] Encouragingly, all these factors were evident in the patient feedback.…”

Section: Resultsmentioning

confidence: 92%

Reducing wait time for administration of systemic anticancer treatment (SACT) in a hospital outpatient facility

et al. 2020

View full text Add to dashboard Cite

The demand for systemic anticancer treatment continues to rise due to the increasing numbers being diagnosed with cancer and developments in treatment options. The net result is greater pressure on services and subsequent patient delays. Delays in treatment could decrease the benefit of the therapy and be detrimental to patient experience. Patients with human epidermal growth factor receptor-2 (HER 2) positive breast cancer within Raigmore Hospital waited an average of 41 min from the scheduled appointment time despite the administration of subcutaneous (SC) trastuzumab being scheduled for a 15 min treatment window. Given the frequency of these injections, this was having an adverse impact on patients and services. The aim of this project was for patients with breast cancer to receive treatment within the 15 min window. Lean principles were applied to reduce waste and increase value. Exploration of the problem led to the solution of relocating the administration of SC trastuzumab from the Macmillan Day Bed Unit (MDBU) to the Highland Breast Centre (HBC). Multiple improvement tools and techniques were used to implement the change. Data were collected on the median number of treatment episodes of SC trastuzumab per week at baseline and patient wait from appointment time to treatment completion was calculated at baseline and as an ongoing measure. Patient experience feedback was gathered following relocation of the treatment. Following relocation, the average time from scheduled appointment to discharge was 14 min (66% reduction). Patient experience feedback was positive and identified an unanticipated outcome; the regular Friday afternoon clinic, identified as most efficient for the service, was found by patients to be particularly convenient for their own planning. Through the application of Lean principles, the service was redesigned in a cost neutral way and resulted in a reduction in the wait time for treatment.

show abstract

Section: Resultsmentioning

confidence: 92%

Reducing wait time for administration of systemic anticancer treatment (SACT) in a hospital outpatient facility

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Therefore, it is not surprising that building patient trust, by having good communication throughout the diagnosis and treatment process, is important for a positive assessment of the health care process (Munhoz et al . ).…”

Section: Discussionmentioning

confidence: 97%

“…Patients should feel that their needs are a priority, and the doctor will respond to any of their concerns. Therefore, it is not surprising that building patient trust, by having good communication throughout the diagnosis and treatment process, is important for a positive assessment of the health care process (Munhoz et al 2014).…”

Section: )mentioning

confidence: 99%

Experiences of cancer patients in Poland throughout diagnosis and treatment

2016

View full text Add to dashboard Cite

Previous studies have failed to explain why the mortality rate of cancer patients is higher in Poland than other countries in the European Union. We aimed to evaluate the health care system in Poland during the diagnosis and treatment of cancer. In this multicentre study, 125 cancer patients treated at 15 centres across Poland participated in focus group interviews in 2014. We identified and assessed crucial elements that affect a patients' experience from the early onset of symptoms, through to diagnosis and treatment. We found that the majority of patients were dissatisfied with the length of time taken to diagnose cancer. Throughout diagnosis, treatment and follow-up, patients reported a lack of communication from health care professionals. While dealings with oncologists and medical staff were viewed favourably, patients felt the cancer centres were not well organised. Patients recommended that having one doctor in charge of an individual's treatment and follow-up would improve patient care and well-being. A late cancer diagnosis may be contributing to the high mortality rate observed in Poland. In the future, new policies should be developed to reduce the time to cancer diagnosis, increase communication with health care professionals and improve the organisation of cancer care for patients.

show abstract

“…One goal of future research will be to describe in detail what physicians tell their patients and what sticks in the minds of the patients. Based on the results of such surveys, it would be easier to make the current communication more effective by emphasizing certain aspects of skin rash that are currently not well understood by patients [42, 55, 72]. …”

Section: Discussionmentioning

confidence: 99%

Dermatologic events from EGFR inhibitors: the issue of the missing patient voice

Tischer

Huber

Kraemer

et al. 2016

Support Care Cancer

View full text Add to dashboard Cite

PurposeAs epidermal growth factor receptor (EGFR) inhibitors are associated with a variety of dermatologic adverse events (dAEs), the purpose of this study was to develop an overview of current knowledge of dAEs associated with EGFR inhibitors and to identify knowledge gaps regarding incidence, treatment, impact on quality of life (QOL), and patient acceptance.MethodA structured literature search was conducted using MEDLINE/PubMed (January 1983 to January 2014). In total, 71 publications published from 2004 to 2014 were identified for consideration in the final evidence review.ResultsThe majority of published articles concentrate on the incidence of skin reactions, duration, treatment, and prevention strategies. Different grading systems based on the symptoms of skin rash or on health-related QOL (HRQOL) are used. An additional topic is the possible correlation between acneiform rash and efficacy of EGFR inhibitors. Knowledge gaps identified in the literature were how dAEs impact QOL compared with other AEs from a patient’s perspective, patients’ acceptance of dAEs (willingness to tolerate), and the impact of physician-patient communication on treatment decisions.ConclusionsResearch is needed on the impact of dAEs on patients’ acceptance of cancer treatments. Systematic studies are missing that compare the impact of dAEs with other toxicities on therapy decisions from both physician’s and patient’s view, and that investigate the balance between efficacy and avoidance of acneiform rash in treatment decisions. Such studies could provide deeper insights into the acceptance of the risk of untoward dermatologic events by both physicians and patients when treating advanced cancers.Electronic supplementary materialThe online version of this article (doi:10.1007/s00520-016-3419-4) contains supplementary material, which is available to authorized users.

show abstract

From one side to the other: what is essential? Perception of oncology patients and their caregivers in the beginning of oncology treatment and in palliative care

Cited by 10 publications

References 6 publications

Reducing wait time for administration of systemic anticancer treatment (SACT) in a hospital outpatient facility

Reducing wait time for administration of systemic anticancer treatment (SACT) in a hospital outpatient facility

Experiences of cancer patients in Poland throughout diagnosis and treatment

Dermatologic events from EGFR inhibitors: the issue of the missing patient voice

Contact Info

Product

Resources

About