From normal response to clinical problem: definition and clinical features of fear of cancer recurrence

Lebel, Sophie; Ozakinci, Gözde; Humphris, Gerry; Mutsaers, Brittany; Thewes, Belinda; Prins, Judith B.; Dinkel, Andreas; Butow, Phyllis

doi:10.1007/s00520-016-3272-5

Cited by 383 publications

(390 citation statements)

References 12 publications

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“…Fear of cancer recurrence (FCR) is defined as the fear, worry, or concern about cancer returning or progressing . Between 22% and 87% of cancer patients report moderate to high levels of FCR, which tend to persist over time .…”

Section: Introductionmentioning

confidence: 99%

Utilization of health care services in cancer patients with elevated fear of cancer recurrence

2018

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Section: Introductionmentioning

confidence: 99%

Utilization of health care services in cancer patients with elevated fear of cancer recurrence

2018

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“…2 FCR is defined as the fear, worry, or concern relating to the possibility that cancer will come back or progress in the same place or in another part of the body. 3 It also includes the perception that recurrence is unmanageable, and constitutes a threat to life. 4 FCR has been recognized as an issue of significant burden among patients with cancer and has been associated with morbidity and reduced quality of life.…”

Section: Introductionmentioning

confidence: 99%

Fear of recurrence among older breast, ovarian, endometrial, and colorectal cancer survivors: Findings from the WHI LILAC study

et al. 2018

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“…The Ottawa Fear of Recurrence Colloquium issued a Delphi study-derived definition of FoR as ‘fear, worry, or concern about the cancer returning or progressing’ ([9], p.3267). High levels of FoR are characterised by excessive checking, overvigilance, frequent intrusive thoughts, poor sleep and anxiety [10], and can compromise quality of life for several years following diagnosis and treatment [4, 11–13].…”

Section: Introductionmentioning

confidence: 99%

A feasibility study of the Mini-AFTER telephone intervention for the management of fear of recurrence in breast cancer survivors: a mixed-methods study protocol

Cruickshank

Steel

Fenlon

et al. 2017

Pilot Feasibility Stud

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BackgroundFear of recurrence (FoR) is a major concern for patients following treatment for primary breast cancer, affecting 60–99% of breast cancer survivors. Mini-AFTER is a brief intervention developed to address this fear, that breast care nurses are ideally placed to deliver. However, their interest in delivering such an intervention is unknown and crucial to its introduction. This study aims to assess the perceived feasibility of the Mini-AFTER telephone intervention for implementation by breast care nurses to manage moderate levels of fear of recurrence among breast cancer survivors.MethodsA sequential explanatory mixed-methods design will be used, informed by normalisation process theory (NPT). The design will be guided by the stages of NPT. Specifically, understanding and evaluating the process (implementation) that would enable an intervention, such as the Mini-AFTER, not only to be operationalised and normalised into everyday work (embedded) but also sustained in practice (integration). Phase 1: all members on the UK Breast Cancer Care Nursing Network database (n = 905) will be emailed a link to a web-based survey, designed to investigate how breast cancer survivors’ FoR is identified and managed within current services and their willingness to deliver the Mini-AFTER. Phase 2: a purposive sample of respondents (n = 20) will be interviewed to build upon the responses in phase 1 and explore breast care nurses’ individual views on the importance of addressing fear of recurrence in their clinical consultations, interest in the Mini-AFTER intervention, the content, skills required and challenges to deliver the intervention.DiscussionThis study will provide information about the willingness of breast care nurses (BCNs) to provide a structured intervention to manage fear of recurrence. It will identify barriers and facilitators for effective delivery and inform the future design of a larger trial of the Mini-AFTER intervention.

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From normal response to clinical problem: definition and clinical features of fear of cancer recurrence

Cited by 383 publications

References 12 publications

Utilization of health care services in cancer patients with elevated fear of cancer recurrence

Utilization of health care services in cancer patients with elevated fear of cancer recurrence

Fear of recurrence among older breast, ovarian, endometrial, and colorectal cancer survivors: Findings from the WHI LILAC study

A feasibility study of the Mini-AFTER telephone intervention for the management of fear of recurrence in breast cancer survivors: a mixed-methods study protocol

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