From life-threatening to chronic disease: Is this the case of cancers? A systematic review

Pizzoli, Silvia Francesca Maria; Renzi, Chiara; Arnaboldi, Paola; Russell-Edu, William; Pravettoni, Gabriella

doi:10.1080/23311908.2019.1577593

Cited by 32 publications

(23 citation statements)

References 42 publications

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“…The multifactorial nature of non-adherence to medication in chronic disease as a global burden has been well described in a key WHO report (Sabaté, 2003) and consequent literature. Less well documented are definitions of chronic cancer and patient experiences of chronic cancer, including their disease management and hospital care (Harley et al, 2019;Pizzoli et al, 2019). Interestingly, patient reluctance to seek clinician advice regarding non-adherence and side effects identified in the current study, is corroborated in one of few studies on chronic cancer experience (Harley et al, 2019), and a large survey highlighting unmet needs among CML patients (Breccia et al, 2015).…”

Section: Discussionmentioning

confidence: 58%

Experiences of living with chronic myeloid leukaemia and adhering to tyrosine kinase inhibitors: A thematic synthesis of qualitative studies

Hewison¹,

Atkin²,

McCaughan³

et al. 2020

European Journal of Oncology Nursing

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To investigate the experiences of adults living with chronic myeloid leukaemia and treated with tyrosine kinase inhibitors, with particular reference to factors influencing adherence. Methods: A thematic synthesis of all published qualitative studies examining adults with chronic myeloid leukaemia, receiving tyrosine kinase inhibitors. Eligible publications were identified by searching five electronic databases using defined criteria. The synthesis involved complete coding of extracted data and inductive theme development.Results: Nine studies were included and three overarching themes defined. Overarching themes were: 1) Disease impacts whole life; 2) Disease management strategies; and 3) Valued aspects of care. Side-effects often required physical and psychological adaptation. Patients developed individual decision-making processes to promote adherence and manage side effects. Unintentional non-adherence occurred due to forgetfulness and system failures. Intentional omission also occurred, which together with side effects, was unlikely to be reported to healthcare professionals (HCPs). HCP reassurance about missed doses could reinforce non-adherence. Information needs varied over time and between individuals. Knowledge among patients about treatment was often lacking and could lead to misunderstandings. Patients valued psychological support from HCPs and suggested an individualised approach, facilitating discussion of symptoms, adherence and their perspectives about living with chronic myeloid leukaemia, would improve care. Conclusions: Patients with chronic myeloid leukaemia experienced significant side-effects from treatment and changes to their psychological and physical well-being. They developed their own strategies to manage their disease and treatment. This should be recognised in interventions to improve education, support and the delivery of care that is compassionate and adequately resourced.

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Section: Discussionmentioning

confidence: 58%

Experiences of living with chronic myeloid leukaemia and adhering to tyrosine kinase inhibitors: A thematic synthesis of qualitative studies

Hewison¹,

Atkin²,

McCaughan³

et al. 2020

European Journal of Oncology Nursing

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“…Case reports, editorial, reviews, and animal studies were excluded from this review. Considering the chronicity of cancer (Pizzoli et al, 2019) A main exclusion criterion referred to the way DO and QoL were measured. Specifically, we excluded studies assessing DO with measures other than the LOT-R and evaluating QoL with not valid and reliable measure of QoL.…”

Section: Inclusion and Exclusion Criteriamentioning

confidence: 99%

“Optimism Is a Strategy for Making a Better Future”

Marton

Monzani

Vergani

et al. 2022

European Psychologist

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Abstract. Cancer is a deadly disease that can lead to psychological suffering and decreased quality of life (QoL). Personality has been proven to have an effect on QoL and, in particular, Dispositional Optimism (DO) has been studied in relation to overcoming health crisis. The aim of this systematic review is to deepen the state of art of the relationship between QoL and DO in cancer patients. PubMed and Embase databases were systematically searched. Fifteen studies were included with a total of 5,249 cancer patients. All of the studies consider the relationship between DO and QoL, some studies analyze the correlation between the two variables and found a positive association. The majority of the studies investigate the predictive power of DO over QoL and most of them found DO to be predictive of a higher QoL. Results confirmed the association between DO and QoL in a sample of cancer patients. These results could influence the clinical practice as DO has been proven to have a beneficial effect on mental and physical health.

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“…Survivors are also reminded during chronic phases that their disease has not been cured but has entered a state of remission (National Cancer Institute, 2019). Although cancer can be controlled, there has yet to be a cure for the disease leading to uncertainty between individuals diagnosed and providers (Pizzoli, Renzi, Arnaboldi, Russell-Edu, & Pravettoni, 2019). Fear of cancer recurrence during periods of remission is persistent among survivors, indicating the need for additional support beyond initial cancer treatments (Maheu et al, 2019).…”

Section: Discussionmentioning

confidence: 99%

Reintegration for Post-treatment Cancer Survivors: A Concept Analysis

Ore

Foli

2019

J Holist Nurs

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Background: Cancer survivors who have completed active treatments experience challenges in the survivorship phase of cancer care. Survivors transitioning through an illness experience negotiate former roles and relationships and reevaluate their self-identity. Reintegration of post-treatment cancer survivors has not been analyzed; however, nurses with a clear understanding of reintegration influence holistic care. Purpose: The goal of this artricle is to provide a theoretical definition of the concept of reintegration for cancer survivors post-treatment. The definition is derived and supported from a multidisciplinary literature review. Method: The discussion was organized using the Walker and Avant approach to concept analysis. Findings: This concept analysis defined reintegration as a dynamic process involving the reorganization of former performance roles concurrent with the reevaluation of personal abilities. Survivors are involved in creating a new normal and post-treatment cancer survivor identity. Reintegration is characterized by transitional phases that may be cyclical and evolve with time. Finally, desired outcomes are based on perceived subjective and objective criteria of importance and are strengthened through multidimensional supportive networks. Conclusion: Incorporating the physical, social, emotional, spiritual, and community/environmental aspects of the cancer survivorship experience enhances reintegration.

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From life-threatening to chronic disease: Is this the case of cancers? A systematic review

Cited by 32 publications

References 42 publications

Experiences of living with chronic myeloid leukaemia and adhering to tyrosine kinase inhibitors: A thematic synthesis of qualitative studies

Experiences of living with chronic myeloid leukaemia and adhering to tyrosine kinase inhibitors: A thematic synthesis of qualitative studies

“Optimism Is a Strategy for Making a Better Future”

Reintegration for Post-treatment Cancer Survivors: A Concept Analysis

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