From health care to home community: An Aboriginal community-based ABI transition strategy

Keightley, Michelle; Kendall, Victoria; Jang, Shu-Hyun; Parker, Cindy L.; Agnihotri, Sabrina; Colantonio, Angela; Minore, Bruce; Katt, Mae; Cameron, Anita; White, Randy; Longboat-White, Claudine; Bellavance, Alice

doi:10.3109/02699052.2010.541898

Cited by 17 publications

(24 citation statements)

References 18 publications

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“…A limited number of studies in this review included populations from Australia and Canada. While a limited number of studies were particular to TBI among Indigenous people from both countries, two studies from Canada 48,49 and two studies from Australia 50,51 -which did not meet the review criteriafocused on rehabilitation and/or community outreach programs particular to acquired brain injury There is a paucity of research concerning Indigenous perspectives of TBI. Given the distinct perspectives around healing and rehabilitation in terms of Indigenous populations, further research around Indigenous understandings of TBI and TBI rehabilitation are warranted.…”

Section: Tbi Rehabilitation Outcomesmentioning

confidence: 99%

Traumatic brain injury amongst indigenous people: a systematic review

Lakhani

Townsend²,

Bishara³

2017

Brain Injury

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Published studies demonstrate that Indigenous people have a higher prevalence or incidence of TBI compared to non-Indigenous people. Limited studies explore culturally appropriate rehabilitation and intervention methods and Indigenous understandings of TBI. It is imperative that future research consider the nature and efficacy of culturally appropriate approaches and their contribution towards better outcomes for Indigenous people with TBI, and their families and communities.

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Section: Tbi Rehabilitation Outcomesmentioning

confidence: 99%

Traumatic brain injury amongst indigenous people: a systematic review

Lakhani

Townsend²,

Bishara³

2017

Brain Injury

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“…Logically, a supportive social network influences participation in therapy (Sander et al, 2009; Turner et al, 2009b; Keightley et al, 2011), for example by providing transportation, accompaniment to therapies, supervision for recommended regimens for which safety is of concern (e.g., a gym program). Turner et al (2007) found that those who had more supportive and closer networks at home had better transitions from the hospital setting to the home environment, as this was related to more access to social activities and transportation outside the home.…”

Section: Post-discharge Experiences and Environmental Enrichmentmentioning

confidence: 99%

“…Several studies have indicated that the most often-reported barrier is adequate preparation prior to discharge (Rotondi et al, 2007; Sander et al, 2009; Keightley et al, 2011; Sander et al, 2011; Turner et al, 2011b). Many TBI survivors and their caregivers report that they were not given enough information regarding brain injuries (e.g., behavioral sequelae), how to access community resources (e.g., rehabilitation, emotional support, respite services), or how to access or implement home therapies (Rotondi et al, 2007; Sander et al, 2009, 2011; Keightley et al, 2011; Turner et al, 2011b).…”

Section: Post-discharge Experiences and Environmental Enrichmentmentioning

confidence: 99%

“…Many TBI survivors and their caregivers report that they were not given enough information regarding brain injuries (e.g., behavioral sequelae), how to access community resources (e.g., rehabilitation, emotional support, respite services), or how to access or implement home therapies (Rotondi et al, 2007; Sander et al, 2009, 2011; Keightley et al, 2011; Turner et al, 2011b). Corrigan et al (2004) reported that TBI survivors who initially reported requiring help participating in recreation still did not have their perceived needs (viewed as a measure of quality of life) met 1 year post-injury.…”

Section: Post-discharge Experiences and Environmental Enrichmentmentioning

confidence: 99%

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Traumatic brain injury and post-acute decline: what role does environmental enrichment play? A scoping review

Frasca¹,

Tomaszczyk²,

McFadyen³

et al. 2013

Front. Hum. Neurosci.

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Objectives: While a growing number of studies provide evidence of neural and cognitive decline in traumatic brain injury (TBI) survivors during the post-acute stages of injury, there is limited research as of yet on environmental factors that may influence this decline. The purposes of this paper, therefore, are to (1) examine evidence that environmental enrichment (EE) can influence long-term outcome following TBI, and (2) examine the nature of post-acute environments, whether they vary in degree of EE, and what impact these variations have on outcomes.Methods: We conducted a scoping review to identify studies on EE in animals and humans, and post-discharge experiences that relate to barriers to recovery.Results: One hundred and twenty-three articles that met inclusion criteria demonstrated the benefits of EE on brain and behavior in healthy and brain-injured animals and humans. Nineteen papers on post-discharge experiences revealed that variables such as insurance coverage, financial, and social support, home therapy, and transition from hospital to home, can have an impact on clinical outcomes.Conclusion: There is evidence to suggest that lack of EE, whether from lack of resources or limited ability to engage in such environments, may play a role in post-acute cognitive and neural decline. Maximizing EE in the post-acute stages of TBI may improve long-term outcomes for the individual, their family and society.

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“…A significant body of literature also demonstrates disparities both in access to appropriate rehabilitation services and in outcome in indigenous and other 'minority cultures' in other parts of the world (Arango-Lasprilla & Kreutzer, 2010;Arango-Lasprilla et al, 2007;Faleafa, 2009;Haider et al, 2007;Jamieson, Harrison, & Berry, 2008;Keightley et al, 2009Keightley et al, , 2011Nelson, Rhodes, Noona, Manson, & AI-SUPERPFP Team, 2007). Overall, these factors highlight the need for culturally appropriate investigation of whānau knowledge about traumatic brain injury in mokopuna.…”

Section: International Literature On Culture and Tbimentioning

confidence: 99%

Indigenous Theory Building for Māori Children and Adolescents with Traumatic Brain Injury and their Extended Family

Elder

2013

Brain Impairment

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Background: International research identifies indigeneity as a risk factor for traumatic brain injury (TBI). Aotearoa New Zealand studies show that mokopuna (grandchildren; used here to encompass the ages and stages of infant, child and adolescent development and those in young adulthood) are significantly overrepresented in TBI populations. The important role of whānau (family) is also well established in child and adolescent TBI scholarship. Despite awareness of these factors, no studies have been identified that explore whānau knowledge about mokopuna TBI. The aim of this study was to explore two questions: (1) What do Māori people say about mokopuna TBI in the context of the Māori cultural belief that the head is the most sacred part of the body? and (2) How could this information be used to build theory that could inform addressing the rehabilitation needs of this group?Method: Eighteen marae wānanga (culture-specific fora in traditional meeting houses) were held. The wānanga typically lasted approximately 2 hours. Footage and written transcripts were analysed using Rangahau Kaupapa Māori (Māori indigenous research methods).Results: The wairua theory of mokopuna TBI proposes that TBI not only injures brain anatomy and physiology but also injures wairua (defined here as a unique connection between Māori and all aspects of the universe). Injury to wairua means that culturally determined interventions are both indicated and expected. The wairua theory of mokopuna TBI thereby provides a guide to intervention.Conclusion: A Māori theory of mokopuna TBI has been identified which describes a culture-specific aspect of TBI. This theory proposes that pre-existing whānau knowledge salient to TBI is critical to optimising recovery. Further research is needed to test this theory not only in TBI but also in other areas such as in mental illness, neurodegenerative disease and addiction.

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From health care to home community: An Aboriginal community-based ABI transition strategy

Abstract: Findings demonstrate that the structure of rehabilitation and discharge processes for Aboriginal clients living on reserves or in remote communities are of great concern and warrants further research.

Cited by 17 publications

References 18 publications

Traumatic brain injury amongst indigenous people: a systematic review

Traumatic brain injury amongst indigenous people: a systematic review

Traumatic brain injury and post-acute decline: what role does environmental enrichment play? A scoping review

Indigenous Theory Building for Māori Children and Adolescents with Traumatic Brain Injury and their Extended Family

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