Framing and scaffolding as relational caregiving in an institution for people living with dementia

Gjernes, Trude; Måseide, Per

doi:10.1016/j.jaging.2019.04.001

Cited by 7 publications

(6 citation statements)

References 33 publications

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“…Rather, they appeared to aim at establishing a team with the care recipient to perform the act of care together. Similarly, previous studies have described that day care staff (Gjernes & Måseide, 2019) and family carers (Fletcher, 2020) interact with persons with dementia to support them in presenting themselves in line with social expectations and conceal any deviating behaviour in the face of their audiences. Fletcher (2019) found that in situations where the person with dementia and their audience experienced different realities, and in novel situations, people with dementia were especially vulnerable to exposure of deviance from social norms.…”

Section: Discussionmentioning

confidence: 83%

Enacting person‐centred care in home care services for people with dementia

Hedman

Sandman

Edvardsson

2021

Journal of Clinical Nursing

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Aims and objectives To develop the theoretical understanding of the process of providing person‐centred home care for people with dementia. Background People with dementia are increasingly cared for at home by family members and home care staff. Care of people with dementia should be person‐centred; however, little is known about how home care staff understand and enact person‐centred care in their daily work. Design Grounded theory. Methods Home care staff (n = 29) were recruited from home care services specialised in providing care for people with dementia. Group interviews were conducted, and a tentative theoretical model for providing person‐centred home care to people with dementia was outlined. Nine of the participants were then individually interviewed to further develop the model. The analysis was conducted parallel to the data collection, and hypotheses concerning the evolving theoretical model were continuously tested in the following interviews. The COREQ checklist for qualitative studies was used in reporting the study. Results Person‐centred home care of people with dementia was conceptualised as a series of processes: Getting ready, getting in, giving care, getting out and finalising the story, each with subprocesses. Theatre metaphors were used to describe how the care was provided. A core process, Enacting and re‐enacting familiarity, was at centre in all processes. Conclusions In the person‐centred care of people with dementia, familiarity had to be established and continuously fostered. When familiarity was in place, the care recipient and the home care staff acted as a team to perform the care. The theoretical works of Goffman were used to interpret the results. Relevance to clinical practice The study provides a model for person‐centred care of people with dementia at home that deepens the understanding of its processes, prerequisites and outcomes. The model can inform education and administration of home care for people with dementia.

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Section: Discussionmentioning

confidence: 83%

Enacting person‐centred care in home care services for people with dementia

Hedman

Sandman

Edvardsson

2021

Journal of Clinical Nursing

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“…Activities in the ward were meant to be similar to those residents were used to in their earlier ordinary life. Caregivers involved residents in activities that, in the terms of Kitwood and Bredin (1992) and later Higgs and Gilleard (2016b), might display the resident’s personhood or a situated social membership (Garfinkel and Sacks 1970, Gjernes and Måseide 2015, 2019, Gjernes 2017). In other words, they tried to help residents “holding on to [their] identities” (Lindeman 2010).…”

Section: Resultsmentioning

confidence: 99%

“…2014), and the ward’s meals served an important nutritional purpose. However, meals consist of more than just eating (Aselage and Amella 2019, Gjernes and Måseide 2019). Pike (1954: 44–45) made a distinction between the “game” and “spectacle” features of human behaviour.…”

Section: Resultsmentioning

confidence: 99%

Maintaining ordinariness in dementia care

Gjernes

Måseide

2020

Sociology Health & Illness

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Drawing on data from fieldwork in a Norwegian care home for people diagnosed with dementia, the article focuses on how social ordinariness is produced by professional practices and co‐operation with residents. Through the lens of ethnomethodological and other pragmatist approaches to ordinariness, social agency and identity, the article uses interviews and observations to explore how residents in a care home were given the opportunity to act as ordinary persons and maintain ordinariness despite their illness. The analysis shows that a social and moral norm of ordinariness was central for how professional care work was performed in the care home. To help residents maintaining ordinariness was an essential part of caring work and to accomplish this, residents were regularly involved in activities they recognised from their everyday lives. This helped them holding on to their identities. The activities were regulated by situational rules that avoided stigmatising behaviour and maintained the residents’ dignity.

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“…It is important to note that articles which elected autobiographical narratives as a procedure for the study of other objectives such as memory study, development of reminiscence therapy, specific aspects of psychotherapy approaches, among others, also appeared in the search. Among them are the following: a single case study 29 of a subject with major NCD, which aimed at studying self-preservation signs within the contents of autobiographical memory; an ethnographic investigation 30 on the interactive structuring of social life and social interaction categories in daily life activities, among people diagnosed with major NCD and their caregivers; a qualitative study 31 of subjects with dementia, that explored personal appearance meanings in their lives. The authors verified the importance of narration as a space for the recovery of past sensory experiences in the organization of personal stories; an article 32 that offered an analysis on how autobiographical memory is related to other forms of memory; a qualitative study 33 that had the objective of examining whether a therapy that combines reminiscence with productive activity would have a positive effect on elderly patients with dementia, and a study 34 that explored the impact of cognitive aging on personal memories, working memory and long-term memory, the speed of information processing, the use of processing resources and in the inhibition of unnecessary information.…”

Section: Review Flow Chartmentioning

confidence: 99%

Autobiographical narratives in the elderly with neurocognitive disorder: an integrative literature review

et al. 2020

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Objective: to carry out an integrative review of the literature on autobiographical narratives as a discursive activity in the older adult with neurocognitive disorder. Methods: a descriptive study that covered the Scopus, SciELO, PubMed, and Science Direct databases, from 2009 to 2019, using the keywords autobiographical, narrative, dementia, reminiscence, the elderly, and the Boolean operator. A narrative synthesis was adopted considering the characteristics of the clinical, and methodological heterogeneity of the studies. Results: the results included 3 articles published between 2012 and 2018, in the English language, from the United Kingdom, Brazil, and Argentina, which highlighted the autobiographical narratives. Although in a strict sense they did not present the narrative as a specific objective of the autobiographical study, they did provide interesting and related data which justified their inclusion. Conclusion: it is observed that the literature researched presents a limited number of articles, adressing the autobiographical narrative as a discursive activity in the elderly with neurocognitive disorder.

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Framing and scaffolding as relational caregiving in an institution for people living with dementia

Cited by 7 publications

References 33 publications

Enacting person‐centred care in home care services for people with dementia

Enacting person‐centred care in home care services for people with dementia

Maintaining ordinariness in dementia care

Autobiographical narratives in the elderly with neurocognitive disorder: an integrative literature review

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