Fostering Coping Skills and Resilience in Home Enteral Nutrition (HEN) Consumers

Thompson, Cheryl W.; Durrant, Lynne; Barusch, Amanda S.; Olson, Lenora M.

doi:10.1177/0115426506021006557

Cited by 20 publications

(28 citation statements)

References 28 publications

(31 reference statements)

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“…Regardless of length of home PN dependency in the present study, participants perceived that life “could be a heck of a lot worse.” In addition, using downward social comparison (the process of comparing oneself to someone worse off), 65 , 66 participants saw their own situation as better than others who had a physical disability or cancer. These findings are comparable to home enteral nutrition consumers who also noted that home tube feeding was a small challenge when compared to other people's problems 67 …”

Section: Discussionsupporting

confidence: 69%

An Exploration of Quality of Life and the Experience of Living With Home Parenteral Nutrition

Winkler

Hagan

Wetle

et al. 2010

J Parenter Enteral Nutr

115

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Section: Discussionsupporting

confidence: 69%

An Exploration of Quality of Life and the Experience of Living With Home Parenteral Nutrition

Winkler

Hagan

Wetle

et al. 2010

J Parenter Enteral Nutr

115

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“…Essential components of the education process include training on feeding tube and access site care, preparation and administration of formula, medication administration, enteral pump operation, monitoring and troubleshooting complications, and emergency care plan and contact information 6 , 8 . ‐ 12 Thompson et al 13 have emphasized the need for clinicians to evaluate the effectiveness of their EN education process, provide comprehensive EN education and patient resources, proceed over more than 1 educational session, and prepare patients and caregivers to resolve foreseeable problems, such as tube occlusion and dislodgement, skin care issues, and psychosocial challenges.…”

Section: Section 11 Transition Of Carementioning

confidence: 99%

“…Flexibility within feeding regimens may alleviate some of the stress that patients have and has the potential to improve the impact of EN on quality of life. Simplifying the EN regimen, minimizing the infusion time, and providing an ambulatory pump or feeding tube that best fits the patient's physical and lifestyle needs may help reduce EN‐associated life disruptions 13 . For some patients with gastrostomy tubes, transition to home may be made easier by employing the syringe/bolus feeding method.…”

Section: Section 11 Transition Of Carementioning

confidence: 99%

ASPEN Safe Practices for Enteral Nutrition Therapy

Boullata

Carrera²,

Harvey

et al. 2016

J Parenter Enteral Nutr

330

531

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Enteral nutrition (EN) is a valuable clinical intervention for patients of all ages in a variety of care settings. Along with its many outcome benefits come the potential for adverse effects. These safety issues are the result of clinical complications and of process-related errors. The latter can occur at any step from patient assessment, prescribing, and order review, to product selection, labeling, and administration. To maximize the benefits of EN while minimizing adverse events requires that a systematic approach of care be in place. This includes open communication, standardization, and incorporation of best practices into the EN process. This document provides recommendations based on the available evidence and expert consensus for safe practices, across each step of the process, for all those involved in caring for patients receiving EN.

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“…Thompson et al 22 reported a struggle in the acceptance of feeding tube permanence in some home enteral nutrition consumers. The intention was to capture the patient's experience in its entirety, including removal.…”

Section: Discussionmentioning

confidence: 99%

The Experiences of Patients With Advanced Head and Neck Cancer With a Percutaneous Endoscopic Gastrostomy Tube

et al. 2014

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Background: While the percutaneous endoscopic gastrostomy (PEG) tube has become an established part of the management regimen for patients with head and neck cancer (HNCA) with impaired nutrition and functional status, limited research has explored the impact and experiences of living with a PEG tube from the patient's perspective. This qualitative study serves as a follow-up investigation undertaken to describe the experiences of patients with advanced HNCA living with a PEG tube. Materials and Methods: Eligible patients from convenience sampling were invited to participate until data saturation was reached. In-depth interviews were conducted with consenting participants. Qualitative descriptive design guided the content analysis of the interview transcripts. Results: Of the 49 patients invited, a total of 15 participants' interviews were transcribed and analyzed. Each interview was 15-90 minutes in length. Four of 22 content codes were chosen to describe the overarching ideas of the progressive experience of a patient's journey from the initial decision-making process around tube insertion through to its removal. Difficulty swallowing and weight loss emerged as primary factors for PEG tube insertion, and all participants became accustomed to living with the tube. Resuming a complete oral diet was a gradual transition. All participants recognized the value of the tube, and most acknowledged its necessity for their survival. Conclusions: Results describe the overall PEG tube experience as a dichotomy. While there were issues with the PEG tube, all participants found the tube to be beneficial. This study provides invaluable insight from a practice perspective.

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Fostering Coping Skills and Resilience in Home Enteral Nutrition (HEN) Consumers

Abstract: Implications for clinical practice and HEN education, along with suggestions for healthcare providers to foster coping with HEN are provided. An educational manual with self-help suggestions for adult HEN consumers is also available at http://www.copingwell.com.

Cited by 20 publications

References 28 publications

An Exploration of Quality of Life and the Experience of Living With Home Parenteral Nutrition

An Exploration of Quality of Life and the Experience of Living With Home Parenteral Nutrition

ASPEN Safe Practices for Enteral Nutrition Therapy

The Experiences of Patients With Advanced Head and Neck Cancer With a Percutaneous Endoscopic Gastrostomy Tube

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