Food, risk and place: agency and negotiations of young people with food allergy

Stjerna, Marie-Louise

doi:10.1111/1467-9566.12215

Cited by 33 publications

(83 citation statements)

References 39 publications

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“…This paper is the largest qualitative study to‐date to report school‐related food allergy management challenges among students and families. While the existing research has reported on disease management strategies, variation in policies in the school setting, and lack of preparedness of school staff to address food allergies, few studies describe the impact of school food allergy policies on affected students and families from their own perspectives . As our participants described, they largely carry the burden of food allergy management, especially when school policies are poorly articulated or underdeveloped.…”

Section: Discussionmentioning

confidence: 92%

Food Allergy Management at School

Dupuis

Kinsey

Spergel

et al. 2020

Journal of School Health

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BACKGROUND: Approximately 8% of schoolchildren in the United States experience potentially life-threatening food allergies.They must diligently avoid allergenic foods and have prompt access to epinephrine to treat anaphylaxis. These prevention strategies must be sustained without interruption, posing a range of challenges at school. METHODS:We conducted semi-structured interviews with 178 participants about their experiences managing food allergies outside the home. Interviews were transcribed and analyzed using an iterative approach in NVivo 10. RESULTS:Participants reported highly varied school experiences across the ecological model. They described the need to be proactive and self-sufficient to manage food allergies. Whereas food allergy-related social exclusion was common, participants also described positive peer interactions, including intensive peer engagement and support. They perceived that formal school policies were limited in scope and inconsistently implemented. Prevention-oriented policies were more common in lower grades than in higher grades. CONCLUSIONS:Poorly defined and implemented policies disrupted students' social and educational experiences at school, families' relationships with school staff, and, ultimately, the safety and wellbeing of students with allergies. Given the high prevalence of food allergies among children, these findings demonstrate the need for multiple layers of support to facilitate safe, socially inclusive food allergy management at schools. F ood allergy prevalence is on the rise, and an estimated 8% of children ages 0-17 in the United States are affected. 1 Food-induced anaphylaxis, a severe, life-threatening allergic reaction, resulted in a 285% increase in pediatric (ages 5-17) emergency department visits between 2005 and 2014. 2 Food allergy management demands diligent avoidance of allergenic foods and uninterrupted access to life-saving epinephrine. Both strategies require sustained behavioral control, presenting particular challenges for adolescents. Approximately 18% of children with food allergies experience a reaction at school over

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Section: Discussionmentioning

confidence: 92%

Food Allergy Management at School

Dupuis

Kinsey

Spergel

et al. 2020

Journal of School Health

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“…A recent review of children and young peoples' feelings of being different when living with chronic illness described participation in everyday life, treatment regimens and communication as core areas of focus in how teens perceive the self differently (Lambert & Keogh, 2015). The central idea of feeling different played a part in defining teens' "allergic identity," and social risks centred on a lack of Although the more recent research in this review (Fenton et al, 2011;Gallagher et al, 2012;Stjerna, 2015) acknowledges a holistic situation-dependent perception of risk, earlier studies neglected the complex negotiations teens make as they become more independent.…”

Section: Discussionmentioning

confidence: 93%

“…(Figure 4). Controlling the uncontrollable is a phrase used by Stjerna (2015) in regards to risk management in FIA.…”

Section: Moving Towards Independencementioning

confidence: 99%

Qualitative research in teen experiences living with food‐induced anaphylaxis: A meta‐aggregation

Johnson

Woodgate

2017

Journal of Advanced Nursing

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“…Unlike non-food allergic adolescents, those with food allergies feel safe under parental control and thus do not necessarily want to make food-related decisions independently [ 19 ]. Adolescents with food allergy describe themselves as being very mature for their age, yet dependent on others in the event of a reaction [ 28 ]. One can speculate that these opposing characteristics may result in worse food allergy-specific HRQL.…”

Section: Discussionmentioning

confidence: 99%

Impaired health-related quality of life in adolescents with allergy to staple foods

Protudjer

Jansson

Middelveld

et al. 2016

Clin Transl Allergy

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BackgroundCow’s milk, hen’s egg and wheat are staple foods in a typical western diet. Despite the ubiquity of these foods, the impact of staple food allergy on health-related quality of life (HRQL) amongst adolescents is incompletely understood. The aims of this study were to make use of the Swedish version of EuroPrevall’s disease-specific food allergy quality of life questionnaire-teenager form (FAQLQ-TF) and to investigate the association between objectively-diagnosed staple food allergy and HRQL amongst adolescents.MethodsIn this cross-sectional study, 58 adolescents aged 13–17 years [n = 40 (69 %) boys] with objectively-diagnosed allergy to the staple foods cow’s milk, hen’s egg and/or wheat and living in Stockholm, Sweden were included. Adolescents completed the FAQLQ-TF, which has a corresponding scale of 1 = best HRQL, and 7 = worst HRQL. Overall HRQL and domain-specific HRQL were established. Adolescents also reported symptoms, adrenaline auto injector (AAI) prescription and presence of other food allergies. A history of anaphylaxis was defined among those reporting difficulty breathing, inability to stand/collapse, and/or loss of consciousness. Clinically different HRQL was set at a mean difference of ≥0.5.ResultsOverall mean HRQL was poorer than average [mean: 4.70/7.00 (95 % CI 4.30–5.01)]. The domain risk of accidental exposure was significantly associated with clinically better HRQL than the domain allergen avoidance and dietary restrictions (mean difference = 0.76; p < 0.001). Girls had clinically worse, but not statistically significantly different mean HRQL than boys (mean difference = 0.71; p < 0.07). HRQL tended to be worse amongst those with allergies to more than three foods or an AAI prescription. The number and types of symptoms, including a history of anaphylaxis were not associated with worse HRQL.ConclusionsAs ascertained via a food allergy-specific questionnaire, adolescents with staple food allergy report poorer than average HRQL, specifically in relation to emerging independence and the need for support. Girls have clinically worse HRQL than boys. The number and type of previous symptoms and history of anaphylaxis were not associated with worse HRQL.Electronic supplementary materialThe online version of this article (doi:10.1186/s13601-016-0128-5) contains supplementary material, which is available to authorized users.

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Food, risk and place: agency and negotiations of young people with food allergy

Cited by 33 publications

References 39 publications

Food Allergy Management at School

Food Allergy Management at School

Qualitative research in teen experiences living with food‐induced anaphylaxis: A meta‐aggregation

Impaired health-related quality of life in adolescents with allergy to staple foods

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