Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: benefits do not sustain in routine practice

Wit, Maartje de; Waal, Henriëtte A. Delemarre-van de; Bokma, Jan Alle; Haasnoot, K.; Houdijk, Mieke; Gemke, Reinoud J. B. J.; Snoek, Frank J.

doi:10.1111/j.1399-5448.2009.00543.x

Cited by 57 publications

(43 citation statements)

References 26 publications

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“…Mean goal-related self-efficacy was 3.08 (SD = .34). Mean positive mood was 16.65 (M CF = 17.62; M dia = 15.35), whereas mean negative mood was 3.72 (M CF = 2.87; M dia = 4.85), which seems to be in line with previous research in adolescents with CF and diabetes (e.g., Casier et al, 2011;De Wit et al, 2010). The mean for goal facilitation was 9.53 (SD = 7.05) and 2.71 (SD = 4.01) for goal interference.…”

Section: Aggregated Datasupporting

confidence: 91%

Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

Casier

Goubert

Gebhardt

et al. 2013

Psychology & Health

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Section: Aggregated Datasupporting

confidence: 91%

Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

Casier

Goubert

Gebhardt

et al. 2013

Psychology & Health

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“…Continuous support delivered by a diabetes MDT may be equally as important as short-term interventions. DeWit et al 94,95 reported that asking young people about QoL during clinic visits improved QoL and satisfaction with care but had no effect on glycaemic control.…”

Section: Focusing On Psychological Therapiesmentioning

confidence: 99%

Structured, intensive education maximising engagement, motivation and long-term change for children and young people with diabetes: a cluster randomised controlled trial with integral process and economic evaluation – the CASCADE study

Christie

Thompson

Sawtell

et al. 2014

Health Technology Assessment

148

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et al. Structured, intensive education maximising engagement, motivation and long-term change for children and young people with diabetes: a cluster randomised controlled trial with integral process and economic evaluation -the CASCADE study. Health Technol Assess 2014;18(20).Health Technology Assessment is indexed and abstracted in Index Medicus/MEDLINE, Excerpta Medica/EMBASE, Science Citation Index Expanded (SciSearch ® ) and Current Contents ® / Clinical Medicine. Health Technology AssessmentHTA/HTA TAR ISSN 1366-5278 (Print) ISSN 2046-4924 (Online) Five-year impact factor: 5.804Health Technology Assessment is indexed in MEDLINE, CINAHL, EMBASE, The Cochrane Library and the ISI Science Citation Index and is assessed for inclusion in the Database of Abstracts of Reviews of Effects.This journal is a member of and subscribes to the principles of the Committee on Publication Ethics (COPE) (www.publicationethics.org/).Editorial contact: nihredit@southampton.ac.ukThe full HTA archive is freely available to view online at www.journalslibrary.nihr.ac.uk/hta. Print-on-demand copies can be purchased from the report pages of the NIHR Journals Library website: www.journalslibrary.nihr.ac.uk Criteria for inclusion in the Health Technology Assessment journalReports are published in Health Technology Assessment (HTA) if (1) they have resulted from work for the HTA programme, and (2) they are of a sufficiently high scientific quality as assessed by the reviewers and editors.Reviews in Health Technology Assessment are termed 'systematic' when the account of the search appraisal and synthesis methods (to minimise biases and random errors) would, in theory, permit the replication of the review by others. HTA programmeThe HTA programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care.The journal is indexed in NHS Evidence via its abstracts included in MEDLINE and its Technology Assessment Reports inform National Institute for Health and Care Excellence (NICE) guidance. HTA research is also an important source of evidence for National Screening Committee (NSC) policy decisions.For more information about the HTA programme please visit the website: www.hta.ac.uk/ This reportThe research reported in this issue of the journal was funded by the HTA programme as project number 06/44/05. The contractual start date was in May 2008. The draft report began editorial review in January 2013 and was accepted for publication in June 2013. The authors have been wholly responsible for all data collection, analysis and interpretation, and for writing up their work. The HTA editors and publisher have tried to ensure the accuracy of the authors' report and would like to thank the reviewers...

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“…The greatest outcome benefits may be beyond measures of glycaemic control, and therefore, it is important to measure children's perceived health-related quality of life (HrQoL) (Müller-Godeffroy et al, 2009) and to consider such variables in national quality registries. To enable optimal care for children with diabetes, it is important to include attention not just to medical outcomes but to HrQoL as well and a contingence to detect psychological problems that otherwise could be missed (de Wit et al, 2010). Early identification of children at risk of developing poor HrQoL may increase treatment compliance (Cameron, 2003).…”

Section: Introductionmentioning

confidence: 99%

Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetes

Petersson

Huus²,

Samuelsson

et al. 2013

J Child Health Care

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Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetes: A pilot study. Journal of Child Health Karina HuusSchool of Health Science, Sweden AbstractThe management of diabetes is complicated, as treatment affects the everyday life of both children and their families. To enable optimal care for children with type 1 diabetes, it is important to highlight health-related quality of life (HrQoL) as well as medical outcomes to detect psychological problems that otherwise could be missed. The aim was to study HrQoL in children and adolescents with type 1 diabetes dependent on gender, age and co-morbidity and to study the consistency between children's self-reporting and parents' proxy reporting. The cross-sectional data were collected using the questionnaire DISABKIDS Chronic Generic Measure and the DISABKIDS diabetes module. Parents in the proxy report perceived their children's HrQoL to be lower than children themselves. Boys reported their HrQoL to be better than girls. Results show that living with an additional disease has an impact on the HrQoL, which is an important factor to consider in the quality registry. Assessing HrQoL on a routine basis may facilitate detection and discussion of HrQoL-related questions in the national quality registry.

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Follow-up results on monitoring and discussing health-related quality of life in adolescent diabetes care: benefits do not sustain in routine practice

Cited by 57 publications

References 26 publications

Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

Acceptance, well-being and goals in adolescents with chronic illness: a daily process analysis

Structured, intensive education maximising engagement, motivation and long-term change for children and young people with diabetes: a cluster randomised controlled trial with integral process and economic evaluation – the CASCADE study

Use of the national quality registry to monitor health-related quality of life of children with type 1 diabetes

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