Follow‐up in head and neck cancer: patients' perspective

Trinidade, Aaron; Kothari, Prasad; Andreou, Z; Hewitt, Richard; O’Flynn, Paul

doi:10.1108/09526861211198308

Cited by 31 publications

(31 citation statements)

References 3 publications

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“…Our results are only partially comparable with the studies by Meregaglia et al and Trinidade et al, both of which investigated HNSCC patients' view on follow‐up. The former was conducted at the National Cancer Institute in Milan, Italy, and the latter in three hospitals in London, United Kingdom.…”

Section: Discussionsupporting

confidence: 87%

Patients' preferences concerning follow‐up after curative head and neck cancer treatment: A cross‐sectional pilot study

et al. 2019

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Background: Evidence of the oncological benefit of scheduled follow-up in head and neck squamous cell carcinoma is weak; symptom-oriented self-referral may be an alternative. Patients' preferences regarding follow-up remain poorly investigated. Methods: We conducted a cross-sectional survey among patients undergoing followup at a tertiary outpatient clinic, focusing on their preferences, correlating factors, fear of recurrence, and willingness for participation in a randomized trial on follow-up. Results: Of 101 patients, 89.1% preferred scheduled follow-up to self-referral, 57% favored fewer visits than the current standard, and 85.1% endorsed regular imaging. Recurrence or second primary was associated with preference of intensive followup schedules (P = 0.02). There were trends for women and patients with high fear of recurrence score to favor intensive follow-up. Two-third of the participants declared willingness to participate in a randomized controlled trial. Conclusions: Patients' preferences only partially correspond to current follow-up guidelines. Recruitment for randomized controlled studies evaluating the value of follow-up seems feasible. K E Y W O R D Sfear of recurrence, follow-up, head and neck cancer, patients' preference, selfreferral

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Section: Discussionsupporting

confidence: 87%

Patients' preferences concerning follow‐up after curative head and neck cancer treatment: A cross‐sectional pilot study

et al. 2019

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“…The survey indicates that many nurses and AHPs are willing to take on a greater role, particularly in the follow-up of 'low-risk' patients. Although medical staff may be reticent about the introduction of alternative models of follow-up, a recent study found that when patients were asked for their views, 73% favoured a less intensive approach in which they could also initiate some visits themselves, and more than half said that they would prefer their first point of contact to be the specialist nurse (Trinidade et al 2012). Furthermore, there is increasing evidence that patients can reliably detect when there is a problem.…”

Section: Figurementioning

confidence: 99%

A national survey of healthcare professionals' views on models of follow-up, holistic needs assessment and survivorship care for patients with head and neck cancer

2015

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Patterns of follow-up and survivorship care are changing in response to growing numbers of cancer survivors and an increasing recognition that traditional models are unsustainable and result in unmet needs. Clinicians have shown reluctance in changing conventional follow-up practices for patients with head and neck cancer. This study aimed to explore nurses' and allied health professionals' views and practices in relation to follow-up, holistic needs assessment and survivorship care in this patient group. An online survey of members of the British Association of Head and Neck Oncology Nurses was undertaken. The response rate was 43% (74 of 174). Findings revealed a range of existing models of follow-up, rehabilitation and support for people with head and neck cancer across the UK. Specialist staff were open to new models of care and to more responsibility, with adequate training and supervision. There were some gaps in the provision of comprehensive survivorship care and some specific areas of practice in which nurses lacked confidence, knowledge and skills, such as managing medications and complex symptoms. Further research is needed to develop and evaluate effective models of follow-up and support for a growing population of head and neck cancer survivors who have diverse and complex needs.

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“…Although several studies have documented the coping strategies adopted by patients with recurrent breast, colon and lung neoplasm (e.g., Mahon & Casperson, ) and by patients with other chronic diseases (Sigstad, Pedersen, & Froland, ; Wahl, Moum, Hanestad, Wiklund, & Kafloss, ; Gulik, ), there is a lack of knowledge of the coping strategies adopted by brain neoplasm patients at both the first occurrence and at recurrence. Knowing the coping strategies adopted by patients and the perceived effectiveness by them helps clinicians to tailor care to individual needs (Trinidade, Kothari, Andreou, Hewitt, & O'Flynn, ; Felder, ; Fitz, ). The primary aim of this study was therefore to contribute to the advancement of knowledge of the coping strategies adopted by brain neoplasm patients on the day before surgical procedure.…”

Section: Introductionmentioning

confidence: 99%

Pre‐operative Stress, Anxiety, Depression and Coping Strategies Adopted by Patients Experiencing Their First or Recurrent Brain Neoplasm: An Explorative Study

et al. 2012

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The main aims of this study were to evaluate the intensity of stress, anxiety and depression as well as the effectiveness of coping strategies adopted pre-operatively in brain neoplasm patients. A descriptive-explorative study design was undertaken. During 2008, patients admitted to a large Italian hospital neurosurgical unit with their first (n = 21) or recurrent (n = 15) brain neoplasm, on the day before their surgical procedure, were consecutively recruited into the study. The Perceived Stress Scale, the Hospital Anxiety and Depression Scale and the Jalowiec Coping Scale were administered via face-to-face interview. Patients with their first occurrence of neoplasm perceived the same stress intensity as those with recurrent neoplasm (mean ± standard deviation: 14.9 ± 6.7 versus 17.2 ± 8.8, p = 0.36). They also reported the same likelihood of anxiety at a borderline level (odds ratio (OR) 4.88, 95%CI 0.42 to 40.97, p = 0.06) and at a clinically relevant level (OR 0.32, 95%CI 0.01 to 5.37, p = 0.35) as well as the same likelihood of depression at a borderline level (OR 1.25, 95%CI 0.20 to 8.40, p = 0.78). Only one case of clinically relevant depression emerged among patients at their first diagnosis. Patients at their first occurrence, as well as those at recurrence, reported that they adopted optimistic coping strategies (mean 2.20, 95%CI 2.01 to 2.38 versus mean 1.96, 95%CI 1.71 to 2.20) and sought support (mean 1.81, 95%CI 1.58 to 2.05 versus mean 1.89, 95%CI 1.63 to 2.15). According to the findings of this exploratory study, on the pre-operative day, brain neoplasm patients at their first diagnosis and at recurrence wish to confront the situation: they adopt optimistic coping strategies, they seek support and they wish to take a constructive problem-solving approach. Knowledge of the intensity of stress, anxiety and depression as well as the coping strategies adopted by the patients is important for clinicians in their efforts to tailor care to patients' individual needs.

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Follow‐up in head and neck cancer: patients' perspective

Abstract: These data suggest the need for a more patient-focused, individualised approach to follow-up in head and neck cancer.

Cited by 31 publications

References 3 publications

Patients' preferences concerning follow‐up after curative head and neck cancer treatment: A cross‐sectional pilot study

Patients' preferences concerning follow‐up after curative head and neck cancer treatment: A cross‐sectional pilot study

A national survey of healthcare professionals' views on models of follow-up, holistic needs assessment and survivorship care for patients with head and neck cancer

Pre‐operative Stress, Anxiety, Depression and Coping Strategies Adopted by Patients Experiencing Their First or Recurrent Brain Neoplasm: An Explorative Study

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