Focused Attention on Positive Aspects of Dementia Care in Culturally and Linguistically Diverse Communities: Qualitative Insights from Australia

Antoniades, Josefine; Croy, Samantha; Gilbert, Andrew Simon; Thodis, Antonia; Medel, Carolina Navarro; Do, Phuong Lan; Dang, Thu Ha; Kent, M.; Brijnath, Bianca

doi:10.1080/07317115.2022.2158768

Cited by 2 publications

(1 citation statement)

References 48 publications

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“…Many frameworks focused on professional competencies and systems change, including innovative clinical practices and tools [77 ▪▪ ,78 ▪▪ ,79 ▪ –85 ▪ ,86]. They also provided frameworks to complement caregiving with policy supports [87 ▪▪ ,88 ▪ ,89 ▪ ,90]. To illustrate, Lu et al [77 ▪▪ ] surveyed 1253 general practitioners on community detection and management of mild cognitive impairment (MCI) for early detection and prevention of dementia.…”

Section: Resultsmentioning

confidence: 99%

Dementia care and prevention in community settings: a built environment framework for cognitive health promotion

Gan,

Mann,

Chaudhury

2023

Current Opinion in Psychiatry

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Purpose of review Most people with dementia live in the community. As lifespan increases, one in three persons aged 85+ are expected to live with dementia. We conduct a systematic search to identify frameworks for dementia care and prevention in community settings. This is important to ensure quality of life for people living with cognitive decline (PLCD). Recent findings 61 frameworks are synthesized into the dementia care and prevention in community (DCPC) framework. It highlights three levels of provision: built environment and policy supports, access and innovation, and inclusion across stages of decline. Domains of intervention include: basic needs; built environment health and accessibility; service access and use; community health infrastructure; community engagement; mental health and wellbeing; technology; end-of-life care; cultural considerations; policy, education, and resources. Personhood is not adequately represented in current built environment frameworks. This is supplemented with 14 articles on lived experiences at home and social practices that contribute to PLCD's social identity and psychological safety. Summary Policy makers, health and built environment professionals must work together to promote “personhood in community” with PLCD. Clinicians and community staff may focus on inclusion, social identity and a sense of at-homeness as attainable outcomes despite diagnosis.

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Section: Resultsmentioning

confidence: 99%

Dementia care and prevention in community settings: a built environment framework for cognitive health promotion

Gan,

Mann,

Chaudhury

2023

Current Opinion in Psychiatry

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Perspectives of Minority Ethnic Caregivers of People with Dementia Interviewed as Part of the IDEAL Programme

Victor,

van den Heuvel,

Pentecost

et al. 2024

Health & Social Care in the Community

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Postwar migrants from the Caribbean and Indian subcontinent (Bangladesh, India, and Pakistan) to the UK are now experiencing the onset of age‐related diseases such as dementia. Our evidence base, both quantitative and qualitative, documenting the experiences of family caregivers of people with dementia is largely drawn from studies undertaken with white European, North American, and Australasian populations. Consequently, there is a need for research in the field of dementia caregiving to reflect the increasing diversity in ethnic identities of the older adult population of the UK. Using semistructured interviews, we investigated the experiences of 18 caregivers of people with dementia in Black Caribbean, Black African, and South Asian (Indian, Pakistani, and Bangladeshi) communities in England. Participants were recruited from the Join Dementia Research platform and were predominantly female intergenerational carers. We identified the following three themes: motivation to care (spending time with the care recipient and reciprocity), positive and negative consequences of caregiving (rewards and consequences), and the cultural context of caregiving (cultural norms and values supporting caregiving and negative attitudes towards dementia). Our findings develop existing literature by identifying (a) the importance of spending time with the person they care for, (b) the absence of faith as a caregiving driver, and (c) the challenge of watching the declining health of a parent. We highlight how the different motivations to care are intertwined and dynamic. This is illustrated by the linking of obligation and reciprocity in our dataset and positive and negative experiences of caregiving.

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Focused Attention on Positive Aspects of Dementia Care in Culturally and Linguistically Diverse Communities: Qualitative Insights from Australia

Cited by 2 publications

References 48 publications

Dementia care and prevention in community settings: a built environment framework for cognitive health promotion

Dementia care and prevention in community settings: a built environment framework for cognitive health promotion

Perspectives of Minority Ethnic Caregivers of People with Dementia Interviewed as Part of the IDEAL Programme

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