Five Golden Rings to Measure Patient‐Centered Care in Rheumatology

Impact of online health information-seeking behavior on shared decision-making in patients with systemic lupus erythematosus: the TRUMP2-SLE project

“…The main outcome was SDM, measured using the 9-item Shared Decision-Making Questionnaire (SDM-Q-9; Japanese version). [13][14][15] The SDM-Q-9 is used by the patient to gauge the level of SDM with their doctors and is valid for use in clinical settings in Japan. [14] The SDM-Q-9 is composed of nine questions scored on a 6-point scale.…”

Back to Basics: Prioritizing Communication as a Key Instrument in Managing Rheumatoid Arthritis

“…26,27 In our daily routines, we as HCPs must be mindful of the different perspectives, abilities, and cultural and socioeconomic backgrounds of our patients, in order to form a strong partnership from the time of diagnosis onward. 28 Even though it would seem obvious to do so, it is the duty of HCPs to invite patients to be an active partner and to facilitate self-management of RA. The European Alliance of Associations for Rheumatology (EULAR) recommendations for the implementation of self-management strategies provide an overview of what HCPs, together with patients, could address beyond pharmacological therapy.…”

“…31 Around 3 decades past the introduction of bDMARDs, the rheumatologic community has proposed concepts of patient empowerment and self-management alongside or integrated in patient-centered care. 16,28,32,33 Active and effective implementation of these concepts in daily routine care is already overdue and remains one of the greatest challenges. The goal elicitation tool by Kahler el al 23 is a step toward better patient-HCP communication, which is at the epicenter of shared decision making and, therefore, of the effective management of patients with RA.…”

Trust in the attending rheumatologist, health-related hope, and medication adherence among Japanese patients with systemic lupus erythematosus: the TRUMP2-SLE project

“…[1,2] However, physician-patient relationship, which is the most important among healthcare team-related factors, and patient-related factors, such as the influence of motivation to manage the disease on adherence, have not been fully examined among patients with SLE. [7] Despite the recent emphasis on trust in one's physician, which is central to the physician-patient relationship, as a source of empowerment in rheumatology, [8] a possible association between loss of trust in one's physician and medication adherence has been reported with only few conflicting results. [9,10] Moreover, the effects of a physician−patient racial mismatch on distrust have not been considered.…”

“…Despite the recent emphasis on trust in one’s physician, which is central to the physician–patient relationship, as a source of empowerment in rheumatology, [8] a possible association between loss of trust in one’s physician and medication adherence has been reported with only few conflicting results. [9, 10] Moreover, the effects of a physician−patient racial mismatch on distrust have not been considered.…”