Firm foundations: strength-based approaches to adolescent chronic disease

Chung, RS; Burke, Pamela; Goodman, Elizabeth

doi:10.1097/mop.0b013e32833a468e

Cited by 22 publications

(18 citation statements)

References 36 publications

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“…Several studies suggest the use of strength-based motivational interviewing and problem-solving to improve health literacy, motivation, and resilience in adolescents with chronic health conditions. 31,32 In addition, providers should work closely with parents to teach them skills in encouraging independent disease self-management in their children. Providers should also work closely with other providers to better coordinate care.…”

Section: Discussionmentioning

confidence: 99%

Barriers and Facilitators to Successful Transition from Pediatric to Adult Inflammatory Bowel Disease Care from the Perspectives of Providers

Paine

Stollon

Lucas

et al. 2014

Inflammatory Bowel Diseases

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Background For adolescents and young adults (AYA) with inflammatory bowel disease (IBD), the transition from pediatric to adult care is often challenging and associated with gaps in care. Our study objectives were to (1) identify outcomes for evaluating transition success and (2) elicit the major barriers and facilitators of successful transition. Methods We interviewed pediatric and adult IBD providers from across the United States with experience caring for AYAs with IBD until thematic saturation was reached after 12 interviews. We elicited the participants' backgrounds, examples of successful and unsuccessful transition of AYAs for whom they cared, and recommendations for improving transition using the Social-ecological Model of Adolescent and Young Adult Readiness to Transition framework. We coded interview transcripts using the constant comparative method and identified major themes. Results Participants reported evaluating transition success and failure using healthcare utilization outcomes (e.g. maintaining continuity with adult providers), health outcomes (e.g. stable symptoms), and quality of life outcomes (e.g. attending school). The patients' level of developmental maturity (i.e. ownership of care) was the most prominent determinant of transition outcomes. The style of parental involvement (i.e. helicopter parent vs. optimally-involved parent) also influenced outcomes as well as the degree of support by providers (e.g. care coordination). Conclusion IBD transition success is influenced by a complex interplay of patient developmental maturity, parenting style, and provider support. Multidisciplinary IBD care teams should aim to optimize these factors for each patient to increase the likelihood of a smooth transfer to adult care.

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Section: Discussionmentioning

confidence: 99%

Barriers and Facilitators to Successful Transition from Pediatric to Adult Inflammatory Bowel Disease Care from the Perspectives of Providers

Paine

Stollon

Lucas

et al. 2014

Inflammatory Bowel Diseases

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“…A 2013 study found that the 5 Cs PYD model could be applied to youth with COCI (Maslow & Chung). A few studies have examined outcomes associated with PYD programs for youth with COCI and found improvements in disease management, self-advocacy in the healthcare environment, leadership opportunities, and community membership (Chung, Burke, & Goodman, 2010;Maslow & Chung, 2013;Maslow et al, 2016).…”

Section: Positive Youth Development Frameworkmentioning

confidence: 99%

Positive Youth Development at Camps for Youth with Chronic Illness: A Systematic Review of the Literature

Sendak

Schilstra

Tye

et al. 2018

JYD

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This study aimed to systematically review all the literature on camps for youth with childhood onset chronic illness (COCI) utilizing the Positive Youth Development (PYD) framework to assess camp processes and psychosocial outcomes. This paper describes a unique dataset of 425 included studies published over the last 70 years and gives a broad overview of camp demographics, processes that align with PYD's Big 3 (sustained adult-youth relationships, skill-building, and youth leadership) and measured outcomes that align with the PYD's 5 Cs (Competence, Confidence, Character, Social Connectedness, and Compassion). Among the included studies, 36% included diabetes camps, 15% included camps accepting multiple illnesses, 12% included cancer camps, and 11% included asthma camps. The majority of participants were under the age of 16. While no study explicitly used the PYD approach, over 90% of studies described camps that deployed both active leadership and sustained positive relationships, while only 59% of studies described camps providing the opportunity to learn life skills. Although no study utilized the PYD 5 Cs framework for outcome measurement, 47% addressed outcomes related to Competence, 44% addressed Confidence, 33% addressed Connection, 4% addressed Compassion, and 2% addressed Character. This review highlights opportunities for camp leadership to align their programming with the PYD framework, to incorporate older adolescents and young adults and, Journal of Youth Development | http://jyd.pitt.edu/ | Vol. 13 Issue 1-2 DOI 10.5195/jyd.2018.551 PYD at Camps for Youth with Chronic Illness 202 ultimately, to improve positive adult outcomes for youth with COCI. It provides a starting point for future research evaluating illness-specific camps using a PYD approach.

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“…Peer mentoring, incorporated into many PYD programs, provides opportunities for social connection and may contribute to improved problem-solving abilities, better coping styles, leadership skill development, and increased self-esteem [57,61,62]. However, all peer group and mentoring programs have potential risks for participants, such as encountering new and unpleasant information about their illness, 'sick' group over-identification and stigmatization, and learning maladaptive coping mechanisms [61,62].…”

Section: Positive Youth Development (Pyd) and Peer Mentoringmentioning

confidence: 97%

“…One option for comprehensive transition preparation is PYD-a conceptual framework emphasizing development of intrinsic strengths and resilience with provision of extrinsic supports [57,58]. PYD programs foster life skills, acquisition of leadership abilities, and sustained caring adult-youth relationships and have been successfully used with 'at risk' youth [58][59][60].…”

Section: Positive Youth Development (Pyd) and Peer Mentoringmentioning

confidence: 99%

Improving the Transition to Adult Care for Young People with Chronic Kidney Disease

Foster

Bell

2015

Curr Pediatr Rep

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The transition from pediatric-to adult-oriented care typically occurs during emerging adulthood, a developmental stage during which the risks of poor treatment adherence and adverse outcomes are elevated. Inadequate support during this change in care environment may augment the risks. With a focus on chronic kidney disease, we will briefly review the evidence linking transition from pediatric-to adult-oriented care to adverse medical, social, and quality of life outcomes, and outline potential reasons for the associations between transition and adverse outcomes. Then we will summarize the recent literature on potential interventions to improve the transition from pediatric-to adult-oriented care. We will examine strategies to improve (1) preparation for transition (including positive youth development, peer mentoring, education, and self-care skill development), (2) the transition process itself (including different models of transition care), and (3) the care structures/systems available for emerging adults within the adult-oriented care environment (including expectations of young people and parents, adaptation of adult care to the emerging adult, and improved education of adult care providers in issues of importance to emerging adults). The perspectives of patients, parents, and healthcare providers will be considered throughout.

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Firm foundations: strength-based approaches to adolescent chronic disease

Abstract: Strength-based approaches, including motivational interviewing, hold tremendous potential for equipping providers to address the rapidly increasing burden of chronic disease in adolescents.

Cited by 22 publications

References 36 publications

Barriers and Facilitators to Successful Transition from Pediatric to Adult Inflammatory Bowel Disease Care from the Perspectives of Providers

Barriers and Facilitators to Successful Transition from Pediatric to Adult Inflammatory Bowel Disease Care from the Perspectives of Providers

Positive Youth Development at Camps for Youth with Chronic Illness: A Systematic Review of the Literature

Improving the Transition to Adult Care for Young People with Chronic Kidney Disease

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