Financial burden of therapy in families with a child with acute lymphoblastic leukemia: report from north India

Ghatak, Nishantadeb; Trehan, Amita; Bansal, Deepak

doi:10.1007/s00520-015-2757-y

Cited by 39 publications

(54 citation statements)

References 17 publications

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“…We identified 3359 articles through literature searches and included 35 articles, reporting on 29 individual studies (Figure ). Thirteen (37%) studies were conducted in Europe, 16 (46%) in North America/Australia, and six (17%) in Asia/Africa (Table ).…”

Section: Resultsmentioning

confidence: 99%

“…The majority of studies on income reported substantial income loss after the child's diagnosis . The proportion of parents reporting income loss and the extent of these losses varied largely.…”

Section: Resultsmentioning

confidence: 99%

“…The majority of studies on income reported substantial income loss after the child's diagnosis. 26,28,31,36,[38][39][40]44,47,[49][50][51][52][53][54][55]58 The proportion of parents reporting income loss and the extent of these losses varied largely. Two studies from Norway 25 and Finland 24 found no effects on income, and one study from New Zealand 52 found more parents reporting income gain than loss.…”

Section: Incomementioning

confidence: 99%

“…44 Findings from three longitudinal studies 24,39,40 suggest that the impact on the financial situation peaks about 6 months after diagnosis, and one study from the United States reports that it persisted until 2.6 years after diagnosis. 39 The main characteristics associated with adverse consequences for parents' financial situation were rural residency or greater distance to hospital, 37,42,45,49,51,53 lower socio-economic position, 34,40,47,49,54 and single parenthood. 36,49…”

Section: Financial Situationmentioning

confidence: 99%

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The impact of childhood cancer on parents' socio‐economic situation—A systematic review

et al. 2019

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Objective Taking care of children diagnosed with cancer may have considerable consequences on parents' socio‐economic situation. Our systematic review aimed to evaluate and synthesise the evidence on the impact of childhood cancer on parents' socio‐economic situation. Methods Systematic literature searches for articles published between January 2000 and January 2019 were performed in PubMed, Scopus, and PsycINFO. Findings of eligible articles were narratively synthesised and quality appraised. Results Our systematic review included 35 eligible articles. Childhood cancer had a substantial impact on parents' socio‐economic situation across all studies. This impact varied largely by geographical region. We observed a high prevalence of disruptions in parental employment such as job quitting or job loss, particularly among mothers. The associated income losses further contributed to families' perceived financial burden in addition to increased cancer‐related expenses. Adverse socio‐economic consequences were most pronounced shortly after diagnosis, however, persisted into early survivorship for certain groups of parents. We identified families of children diagnosed with haematological cancers, younger age at diagnosis, and lower parental socio‐economic position to be at particular risk for adverse socio‐economic consequences. Conclusions Following the child's cancer diagnosis, parents experience a broad range of adverse socio‐economic consequences. Further effort is needed to systematically implement an assessment of financial hardship in paediatric oncology together with appropriate support services along the cancer trajectory.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Incomementioning

confidence: 99%

Section: Financial Situationmentioning

confidence: 99%

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The impact of childhood cancer on parents' socio‐economic situation—A systematic review

et al. 2019

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“…1 Yet, the out-of-pocket health expenditures may be more catastrophic in resource-poor countries including India, where parents often have to abandon their child's cancer treatment to ensure the financial sustainability of the family. 3 Poor prognosis, prolonged travel time to treatment centers, and parents' low socioeconomic and educational status remain contributing factors to treatment abandonment. 4 The precise magnitude of costs remains largely unknown in these countries where burden of costs can be catastrophic.…”

Section: Introductionmentioning

confidence: 99%

A pilot study to determine out‐of‐pocket expenditures by families of children being treated for cancer at public hospitals in New Delhi, India

et al. 2019

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Healthcare costs of cancer among children, adolescents, and young adults: A scoping review

Nabukalu,

Gordon,

Lowe

et al. 2024

Cancer Medicine

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ObjectiveTo collate and critically review international evidence on the direct health system costs of children and adolescents and young adults (AYA) with cancer.MethodsWe conducted searches in PubMed, MEDLINE, CINAHL, and Scopus. Articles were limited to studies involving people aged 0–39 years at cancer diagnosis and published from 2012 to 2022. Two reviewers screened the articles and evaluated the studies using the Consolidated Health Economic Evaluation Reporting Standards checklist. The reviewers synthesized the findings using a narrative approach and presented the costs in 2022 US dollars for comparability.ResultsOverall, the mean healthcare costs for all cancers in the 5 years post diagnosis ranged from US$36,670 among children in Korea to US$127,946 among AYA in the USA.During the first year, the mean costs among children 0–14 years ranged from US$34,953 in Chile to over US$130,000 in Canada. These were higher than the costs for AYA, estimated at US$61,855 in Canada. At the end of life, the mean costs were estimated at over US$300,000 among children and US$235,265 among adolescents in Canada.Leukemia was the most expensive cancer type, estimated at US$50,133 in Chile, to US$152,533 among children in Canada. Overall, more than a third of the total cost is related to hospitalizations. All the included studies were of good quality.ConclusionsHealthcare costs associated with cancer are substantial among children, and AYA. More research is needed on the cost of cancer in low‐ and middle‐income countries and harmonization of costs across countries.

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Financial burden of therapy in families with a child with acute lymphoblastic leukemia: report from north India

Abstract: Families spend up to seven times their monthly income over a period of 1 month on an unforeseen illness. Despite financial aid from various sources, nonmedical costs amount to nearly 2.5 times the average per capita income. Universal health insurance is the need of the hour.

Cited by 39 publications

References 17 publications

The impact of childhood cancer on parents' socio‐economic situation—A systematic review

The impact of childhood cancer on parents' socio‐economic situation—A systematic review

A pilot study to determine out‐of‐pocket expenditures by families of children being treated for cancer at public hospitals in New Delhi, India

Healthcare costs of cancer among children, adolescents, and young adults: A scoping review

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