Final Validation of the Pediatric Tracheotomy Health Status Instrument (PTHSI)

Hartnick, Christopher J.; Giambra, Barbara K.; Bissell, Cynthia M.; Fitton, Cynthia M.; Cotton, Robin T.; Parsons, Susan K.

doi:10.1067/mhn.2002.122634

Cited by 22 publications

(27 citation statements)

References 9 publications

(14 reference statements)

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“…This is a validated quality of life questionnaire, completed by the caregiver, which focuses on four domains; the physical symptoms of the child, the frequency and financial impact of medical visits, the quality of life of the child, and the quality of life of their carer. The assignment of these domains was examined during psychometric validation of the instrument, and was found to be suitable; items within each domain demonstrated consistency [1]. Minor modifications were made to allow the instrument to be applied to the UK population--for example monetary values were converted into British pounds.…”

Section: Methodsmentioning

confidence: 99%

“…We targeted all caregivers of such patients over a 6-month period, and also included the carers of any patients attending the unit who had been decannulated following earlier tracheostomy. Interviews were conducted face to face, structured around the Pediatric Tracheotomy Health Status Instrument [1]. This is a validated quality of life questionnaire, completed by the caregiver, which focuses on four domains; the physical symptoms of the child, the frequency and financial impact of medical visits, the quality of life of the child, and the quality of life of their carer.…”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

The impact of paediatric tracheostomy on both patient and parent

Hopkins

Whetstone

Foster

et al. 2009

International Journal of Pediatric Otorhinolaryngology

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

The impact of paediatric tracheostomy on both patient and parent

Hopkins

Whetstone

Foster

et al. 2009

International Journal of Pediatric Otorhinolaryngology

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“…[33][34][35][36][37][38] A number of other questionnaires were infrequently described, related to other specific otolaryngology conditions (Table I). 39,40 Each tool was of a varying length and underwent variable degrees of validation (Table I). We also identified multiple institutional designed questionnaires, which underwent little or no validation.…”

Section: Resultsmentioning

confidence: 99%

“…The only other identified measure was the infrequently used Tonsil and Adenoid Health Status Instrument ('TAHSI'), from which the Paediatric Throat Disorders Outcome Test derives many question items. 38 A number of other questionnaires were infrequently described, including the Pediatric Tracheotomy Health Status Instrument ('PTHSI') 39 and the PostOperative Pinnaplasty Questionnaire ('POPQ'). 40 A number of general patient-reported outcome measures are described in the paediatric otolaryngology literature.…”

Section: Discussionmentioning

confidence: 99%

A systematic review of patient-reported outcome measures in paediatric otolaryngology

Powell

Robson

2017

J. Laryngol. Otol.

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Background:Recently, there has been increased emphasis on the development and application of patient-reported outcome measures. This drive to assess the impact of illness or interventions, from the patient's perspective, has resulted in a greater number of available questionnaires. The importance of selecting an appropriate patient-reported outcome measure is specifically emphasised in the paediatric population. The literature on patient-reported outcome measures used in paediatric otolaryngology was reviewed.Methods:A comprehensive literature search was conducted using the databases Medline, Embase, Cumulative Index to Nursing and Allied Health Literature, and PsycInfo, using the terms: ‘health assessment questionnaire’, ‘structured questionnaire’, ‘questionnaire’, ‘patient reported outcome measures’, ‘PROM’, ‘quality of life’ or ‘survey’, and ‘children’ or ‘otolaryngology’. The search was limited to English-language articles published between 1996 and 2016.Results:The search yielded 656 articles, of which 63 were considered relevant. This included general paediatric patient-reported outcome measures applied to otolaryngology, and paediatric otolaryngology disease-specific patient-reported outcome measures.Conclusion:A large collection of patient-reported outcome measures are described in the paediatric otolaryngology literature. Greater standardisation of the patient-reported outcome measures used in paediatric otolaryngology would assist in pooling of data and increase the validation of tools used.

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“…A subsequent report described normative scores for pediatric patients on the Pediatric Voice Outcome Survey [21]. Hartnick et al [22] also created and validated the Pediatric Tracheotomy Health Status Instrument. The Pediatric Tracheotomy Health Status Instrument is also designed for parental completion.…”

Section: Pediatric Voice and Airwaymentioning

confidence: 99%

Outcomes Research in Pediatric Otolaryngology

Johnson¹,

Stewart²

2004

ORL

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There are several validated outcomes instruments available for use in the pediatric otolaryngology population. These include instruments for otitis media, rhinosinusitis, tonsil and adenoid disease; sleep-disordered breathing, voice disorders and tracheotomy. In addition, several prospective outcomes studies have been performed on common pediatric otolaryngology conditions. These studies have typically indicated that the quality of life impact of diseases such as otitis media and recurrent tonsillitis is quite high, and that surgical treatments (such as tympanostomy tube placement and adenotonsillectomy) result in significant improvements in quality of life and disease-specific health status. In addition, cost-effectiveness studies of cochlear implantation have indicated that implantation is a very cost-effective intervention when performed in children.

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Final Validation of the Pediatric Tracheotomy Health Status Instrument (PTHSI)

Abstract: After initial testing and revision of the PTHSI, final instrument administration and analysis reveal the instrument to be valid and reliable. Future studies are planned to evaluate its responsiveness in longitudinal application.

Cited by 22 publications

References 9 publications

The impact of paediatric tracheostomy on both patient and parent

The impact of paediatric tracheostomy on both patient and parent

A systematic review of patient-reported outcome measures in paediatric otolaryngology

Outcomes Research in Pediatric Otolaryngology

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