Fifty Years With a Brooke Ileostomy: An Autobiographical Case Report

Thygeson, N. Marcus

doi:10.7759/cureus.16980

Cited by 1 publication

(1 citation statement)

References 18 publications

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“…2 Ileostomy formation is a life-changing operation, which can increase quality of life (QoL) for some, for example, people with severe inflammatory bowel disease (IBD), but also have negative consequences that people may then have to live with for many years. [3][4][5] Common complications include high stoma output and blockage, 6,7 which can have serious consequences in terms of physical health and QoL. Wind and odour are also common problems impacting QoL.…”

Section: Introductionmentioning

confidence: 99%

Healthcare professionals' perspectives on dietary advice provided to people with an ileostomy

Mitchell

Herbert

England

et al. 2023

J Human Nutrition Diet

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Background Diet is a common concern among people with an ileostomy as it can be associated with serious and burdensome complications, for example, dehydration and obstruction, and dietary advice is often unsatisfactory. In this study, we explored healthcare professionals' (HCPs) perspectives on dietary advice for ileostomy management. Methods Semi‐structured interviews were conducted with HCPs, from multiple professions, who provide dietary advice to patients with an ileostomy. A framework approach to thematic analysis was used to understand and compare HCPs' experiences, beliefs and attitudes that influence how dietary advice is provided and the effectiveness of dietary management. Results Findings from interviews with 21 HCPs, across 3 hospitals, related to 7 key themes: tailoring of dietary advice to the patient, patient autonomy and communication, HCP knowledge and understanding, patient pathway, mixed messages, access to formal and social support and patient understanding and relationship with dietary advice. Profession was a strong determinator of what and how dietary advice is provided; however, closer team working increased consistency in dietary advice. Lack of scientific research and consensus contributes to mixed messages and reduced confidence in dietary advice for people with an ileostomy. Due to individual differences between patients, experiential learning with diet is key to self‐management and is encouraged in a controlled way by HCPs; however, a lack of ‘one‐size‐fits‐all’ guidance can be difficult for some. Conclusion The study findings should inform HCPs caring for patients with an ileostomy, and researchers designing and evaluating interventions, to improve how patients receive dietary advice for ileostomy management.

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