Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module

Abstract

Reliability, construct validity as well as convergent and discriminant validity of the DCGM-37 were shown.

Examining a developmental approach to health-related quality of life assessment: Psychometric analysis of DISABKIDS generic module in a Portuguese sample

“…different countries participating at the same time in the construction of a new instrument) (Simeoni et al, 2007), and revealed sound psychometric properties (Petersen, Schmidt, Power, Bullinger, & The Disabkids Group, 2005;Simeoni et al, 2007;. The instrument clearly accomplished all the requirements to paediatric QL measures proposed by the WHO (1993), and complied with most suggested criteria to assess instrument developmental adequacy (Bruil & Detmar, 2005;Bullinger & Ravens-Sieberer, 1995;Wallander, Schmitt, & Koot, 2001).…”

“…The diagnoses of asthma and epilepsy were chosen as inclusion criteria, in agreement with the previous work of semantic validation and pilot study of the Portuguese versions of DISABKIDS-37 (Carona, Bullinger, & Canavarro, 2011). Besides, asthma was required as the common condition to be tested across all countries participating in the original DISABKIDS project (Simeoni et al, 2007) and subsequent instrument cross-cultural adaptations.…”

Psychological Criteria for Treating Children with Idiopathic Short Stature

“…Generic instruments include the KIDSCREEN index. This index assesses QoL in children 8 years and older based on ten questions derived from a large representative health survey conducted in different European countries [6]. The DISABKIDS index consists of a generic core instrument as well as several condition-specific modules that provide insight into the QoL of children and adolescents with chronic conditions, and it includes parental perspectives [7].…”

Short forms of subjective quality of life assessments from cross‐cultural studies for use in surveys with different populations

“…The 'DISABKIDS Chronic Generic Module' (DCGM-37; The DISABKIDS Group Europe, 2006;Petersen et al, 2005;Simeoni et al, 2007; is an age group-adapted, condition-generic, as well as multidimensional measurement, assessing general subjective CGQOL of children and adolescents (8 to 16 years old) with chronic conditions (e.g., asthma, arthritis, diabetes etc.). This module is a questionnaire comprising of 37 items, belonging to six facets (six items each, with the exception of the 'emotions' facet, which includes seven items) and one summary score.…”