Fidelity and acceptability of an adaptive intervention for caregivers: An exploratory study

Zarit, Steven H.; Lee, Jeong Eun; Barrineau, Mary Jon; Whitlatch, Carol J.; Femia, Elia E.

doi:10.1080/13607863.2012.717252

Cited by 29 publications

(32 citation statements)

References 26 publications

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“…Because caregivers and the settings in which they provide care are diverse, more studies are required to define which interventions are most effective for specific situations and how these interventions are successful 444‐447 . Improved tools and measures to personalize services for caregivers to maximize their benefits represent an emerging area of research 448‐454 . More studies are also needed to adapt proven interventions or develop new intervention approaches for families from different racial, ethnic and socioeconomic backgrounds and in different geographic settings 455‐469 .…”

Section: Caregivingmentioning

confidence: 99%

“…[444][445][446][447] Improved tools and measures to personalize services for caregivers to maximize their benefits represent an emerging area of research. [448][449][450][451][452][453][454] More studies are also needed to adapt proven interventions or develop new intervention approaches for families from different racial, ethnic and socioeconomic backgrounds and in different geographic settings. [455][456][457][458][459][460][461][462][463][464][465][466][467][468][469] Additional research on interventions focused on disease stages is also needed, as well as research on specific intervention needs for LGBT caregivers.…”

Section: Multicomponent Approachesmentioning

confidence: 99%

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2020 Alzheimer's disease facts and figures

2020

Alzheimer's & Dementia

1,983

653

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This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on caregivers and society. The Special Report discusses the future challenges of meeting care demands for the growing number of people living with Alzheimer's dementia in the United States with a particular emphasis on primary care. By mid‐century, the number of Americans age 65 and older with Alzheimer's dementia may grow to 13.8 million. This represents a steep increase from the estimated 5.8 million Americans age 65 and older who have Alzheimer's dementia today. Official death certificates recorded 122,019 deaths from AD in 2018, the latest year for which data are available, making Alzheimer's the sixth leading cause of death in the United States and the fifth leading cause of death among Americans age 65 and older. Between 2000 and 2018, deaths resulting from stroke, HIV and heart disease decreased, whereas reported deaths from Alzheimer's increased 146.2%. In 2019, more than 16 million family members and other unpaid caregivers provided an estimated 18.6 billion hours of care to people with Alzheimer's or other dementias. This care is valued at nearly $244 billion, but its costs extend to family caregivers’ increased risk for emotional distress and negative mental and physical health outcomes. Average per‐person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are more than three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 23 times as great. Total payments in 2020 for health care, long‐term care and hospice services for people age 65 and older with dementia are estimated to be $305 billion. As the population of Americans living with Alzheimer's dementia increases, the burden of caring for that population also increases. These challenges are exacerbated by a shortage of dementia care specialists, which places an increasing burden on primary care physicians (PCPs) to provide care for people living with dementia. Many PCPs feel underprepared and inadequately trained to handle dementia care responsibilities effectively. This report includes recommendations for maximizing quality care in the face of the shortage of specialists and training challenges in primary care.

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Section: Caregivingmentioning

confidence: 99%

Section: Multicomponent Approachesmentioning

confidence: 99%

2020 Alzheimer's disease facts and figures

2020

Alzheimer's & Dementia

1,983

653

View full text Add to dashboard Cite

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“…Few studies have focused on examining intervention fidelity among dementia caregivers (e.g., Burgio et al, 2001; Zarit, Lee, Barrineau, Whitlatch, & Femina, 2013). Zarit and colleagues (2013) assessed fidelity of their adaptive intervention by rating counselors competence and caregivers satisfaction of program, which is different than what we focused on receipt and enactment of intervention by caregivers.…”

Section: Discussionmentioning

confidence: 99%

“…Zarit and colleagues (2013) assessed fidelity of their adaptive intervention by rating counselors competence and caregivers satisfaction of program, which is different than what we focused on receipt and enactment of intervention by caregivers. Our assessment of intervention fidelity was similar to the REACH study (Burgio et al, 2001), which assessed treatment delivery, receipt, and enactment.…”

Section: Discussionmentioning

confidence: 99%

Resourcefulness Training for Dementia Caregivers

et al. 2016

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Providing care for an elder with dementia can produce extreme stress that adversely affects caregiver health. Learning to be resourceful, which involves practicing resourcefulness skills using a journal or voice recorder, may reduce caregiver stress. However, before testing the effectiveness of journaling and voice recording as resourcefulness training (RT) practice methods, intervention fidelity should first be established. This pilot trial with 63 women dementia caregivers examined the fidelity of journaling and voice recording and whether allowing a choice between the methods affected RT intervention fidelity. Following RT, Resourcefulness Scale scores were similar for journal and recorder methods but higher for caregivers in the choice versus random condition. Patterns of RT skill use documented in journals or recordings were similar for choice and random conditions and for journal and recorder methods. The results support the implementation fidelity of RT that allows caregivers to choose a method to reinforce their resourcefulness skills.

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“…Factors shown to facilitate carer involvement include exploring concerns about time requirements and disruption to routines [69], understanding that carers may have difficulty of acknowledging that they need help [69], and explicitly discussing potential benefits of a rehabilitation intervention to both people with dementia and carers [69][70][71][72]. Carers may also benefit from interventions tailored to their own needs [66,[73][74][75][76]. Carer behaviours, such as preventing the person with dementia from moving around in order to avoid falls, can negatively influence the relationship between carer and patient [46] and impede recovery.…”

Section: Cmoc6: Involving Carers In Intervention Deliverymentioning

confidence: 99%

Developing an Intervention for Fall-Related Injuries in Dementia (DIFRID): an integrated, mixed-methods approach

et al. 2019

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Background: Falls in people with dementia can result in a number of physical and psychosocial consequences. However, there is limited evidence to inform how best to deliver services to people with dementia following a fall. The aim of the DIFRID study was to determine the feasibility of developing and implementing a new intervention to improve outcomes for people with dementia with fall-related injuries; this encompasses both short-term recovery and reducing the likelihood of future falls. This paper details the development of the DIFRID intervention. Methods: The intervention was designed using an integrated, mixed-methods approach. This involved a realist synthesis of the literature and qualitative data gathered through interviews and focus groups with health and social care professionals (n = 81). An effectiveness review and further interviews and observation were also conducted and are reported elsewhere. A modified Delphi panel approach with 24 experts was then used to establish a consensus on how the findings should translate into a new intervention. After feedback from key stakeholders (n = 15) on the proposed model, the intervention was manualised and training developed. Results: We identified key components of a new intervention covering three broad areas: • Ensuring that the circumstances of rehabilitation are optimised for people with dementia • Compensating for the reduced ability of people with dementia to self-manage • Equipping the workforce with the necessary skills and information to care for this patient group Consensus was achieved on 54 of 69 statements over two rounds of the Delphi surveys. The statements were used to model the intervention and finalise the accompanying manual and protocol for a feasibility study. Stakeholder feedback was generally positive and the majority of suggested intervention components were approved. The proposed outcome was a 12-week complex multidisciplinary intervention primarily based at the patient's home. Conclusions: A new intervention has been developed to improve outcomes for people with dementia following a fall requiring healthcare attention. The feasibility of this intervention is currently being tested. Trial registration: ISRCTN41760734 (16/11/2015).

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Fidelity and acceptability of an adaptive intervention for caregivers: An exploratory study

Cited by 29 publications

References 26 publications

2020 Alzheimer's disease facts and figures

2020 Alzheimer's disease facts and figures

Resourcefulness Training for Dementia Caregivers

Developing an Intervention for Fall-Related Injuries in Dementia (DIFRID): an integrated, mixed-methods approach

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