Fibromyalgia: psychiatrists should now be picking up the baton

Neal, Leigh A.

doi:10.1192/pb.bp.110.030692

Cited by 1 publication

(2 citation statements)

References 11 publications

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“…While some of our results concerning diagnosis, treatment and management, and gaps in healthcare services bear out findings from previous research in the field [14,17,[39][40][41][42][43], we have identified several issues less commonplace in the fibromyalgia literature. First, healthcare professionals' possible bias about people with self-diagnosed fibromyalgia.…”

Section: Discussionsupporting

confidence: 66%

“…Neal [ 42 ] argues that psychiatrists might take responsibility for the care of people with fibromyalgia. Around 50–70% of people with persistent physical symptoms have comorbid mental health problems [ 69 , 70 ] yet some of the NHS professionals in our study reported a diagnosis of fibromyalgia is a barrier to accessing mental health services.…”

Section: Discussionmentioning

confidence: 99%

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UK healthcare services for people with fibromyalgia: results from two web-based national surveys (the PACFiND study)

Wilson

Beasley

Pope

et al. 2022

BMC Health Serv Res

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Background The UK’s “Getting It Right First Time” programme recommends that management of people with fibromyalgia should centre on primary care. However, it remains unclear as to how best to organise health systems to deliver services to optimise patient outcomes. Aim To profile UK healthcare services for people with fibromyalgia: provision of National Health Services (NHS) and use of non-NHS services by people with fibromyalgia. Methods Two online open surveys (A and B) incorporating questions about diagnosis, treatment and management of fibromyalgia and gaps in healthcare services were conducted between 11th September 2019 and 3rd February 2020. These were targeted to NHS healthcare professionals consulting with people with fibromyalgia (Survey A) and people ≥16 years diagnosed with fibromyalgia using non-NHS services to manage their condition (Survey B). Descriptive statistics were used to report quantitative data. Thematic analysis was undertaken for qualitative data. Results Survey A received 1701 responses from NHS healthcare professionals across the UK. Survey B received 549 responses from people with fibromyalgia. The results show that NHS services for people with fibromyalgia are highly disparate, with few professionals reporting care pathways in their localities. Diagnosing fibromyalgia is variable among NHS healthcare professionals and education and pharmacotherapy are mainstays of NHS treatment and management. The greatest perceived unmet need in healthcare for people with fibromyalgia is a lack of available services. From the pooled qualitative data, three themes were developed: ‘a troublesome label’, ‘a heavy burden’ and ‘a low priority’. Through the concept of candidacy, these themes provide insight into limited access to healthcare for people with fibromyalgia in the UK. Conclusion This study highlights problems across the NHS in service provision and access for people with fibromyalgia, including several issues less commonly discussed; potential bias towards people with self-diagnosed fibromyalgia, challenges facing general practitioners seeking involvement of secondary care services for people with fibromyalgia, and a lack of mental health and multidisciplinary holistic services to support those affected. The need for new models of primary and community care that offer timely diagnosis, interventions to support self-management with access to specialist services if needed, is paramount.

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