Fetal Alcohol Syndrome and Fetal Alcohol Spectrum Disorder

Chudley, Albert E.; Longstaffe, Sally

doi:10.1002/9780470893159.ch25

Cited by 6 publications

(3 citation statements)

References 92 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Internationally, Fetal Alcohol Spectrum Disorder (FASD) has emerged as having a significant impact on communities and systems within communities such as health (e.g., primary care, acute care and specialty care), education, justice and social services [ 1 ]. FASD is a complex neurodevelopmental disorder that results in permanent disabilities [ 1 , 2 ]. The cognitive and behavioural disability-related profiles and subsequent service needs of affected individuals change across their lifespans [ 1 ].…”

Section: Introductionmentioning

confidence: 99%

“…The further impact of the associated cognitive and behavioural disabilities frequently leads to secondary disabilities such as school withdrawal, substance abuse, and involvement with the legal system [ 2 , 11 , 12 ]. A diagnosis of FASD typically requires a comprehensive neurodevelopmental assessment of multiple domains of brain function (See Table 1 ) to evaluate the extent of the brain injury caused by prenatal alcohol exposure [ 2 ]. The specific range of impairments is influenced by multiple factors including timing and amount of alcohol exposure.…”

Section: Introductionmentioning

confidence: 99%

“…FASD has also been described as a ‘hidden disability’ because there is often no identifying physical characteristics and behaviours are often the only symptoms [ 16 ]. Furthermore, an accurate understanding of the prevalence of prenatal exposure to alcohol is difficult because no reliable biological markers exist to identify those prenatally exposed [ 2 ]. Thus, we do not have accurate national estimates of the FASD prevalence in Canada and the commonly cited Health Canada estimate of 9.1 per 1000 births is extrapolated from older American studies [ 13 ].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Integrating care for individuals with FASD: results from a multi-stakeholder symposium

Masotti

Longstaffe

Gammon

et al. 2015

BMC Health Serv Res

View full text Add to dashboard Cite

BackgroundFetal Alcohol Spectrum Disorder (FASD) has a significant impact on communities and systems such as health, education, justice and social services. FASD is a complex neurodevelopmental disorder that results in permanent disabilities and associated service needs that change across affected individuals’ lifespans. There is a degree of interdependency among medical and non-medical providers across these systems that do not frequently meet or plan a coordinated continuum of care. Improving overall care integration will increase provider-specific and system capacity, satisfaction, quality of life and outcomes.MethodsWe conducted a consensus generating symposium comprised of 60 experts from different stakeholder groups: Allied & Mental Health, Education, First Nations & Métis Health, Advocates, Primary Care, Government Health Policy, Regional FASD Coordinators, Social Services, and Youth Justice. Research questions addressed barriers and solutions to integration across systems and group-specific and system-wide research priorities. Solutions and consensus on prioritized lists were generated by combining the Electronic Meeting System approach with a modified ‘Nominal Group Technique’.ResultsFASD capacity (e.g., training, education, awareness) needs to be increased in both medical and non-medical providers. Outcomes and integration will be improved by implementing: multidisciplinary primary care group practice models, FASD system navigators/advocates, and patient centred medical homes. Electronic medical records that are accessible to multiple medical and non-medical providers are a key tool to enhancing integration and quality. Eligibility criteria for services are a main barrier to integration across systems. There is a need for culturally and community-specific approaches for First Nations communities.ConclusionsThere is a need to better integrate care for individuals and families living with FASD. Primary Care is well positioned to play a central and important role in facilitating and supporting increased integration. Research is needed to better address best practices (e.g., interventions, supports and programs) and long-term individual and family outcomes following a diagnosis of FASD.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Integrating care for individuals with FASD: results from a multi-stakeholder symposium

Masotti

Longstaffe

Gammon

et al. 2015

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

Fetal Alcohol Spectrum Disorders

Hoyme

Shah

2020

Cassidy and Allanson's Management of Genetic Syndromes

View full text Add to dashboard Cite

The adverse effects of prenatal alcohol consumption have long been known; however, a formal description and clinical diagnosis of these effects was not introduced until 1973. Since then, the distinction of the wide range of effects that can be induced by prenatal alcohol exposure, and, consequently, the terminology to describe these effects has continued to evolve. Although much progress has been made in understanding the consequences of prenatal alcohol exposure, challenges still remain in properly identifying all affected individuals as well as their individual patterns of alcoholinduced deficits. Also, as the large numbers of women who continue to drink during pregnancy indicate, prevention efforts still require further refinement to enhance their effectiveness. In addition, the mechanisms underlying alcoholinduced damage have not yet been fully elucidated; as knowledge of the mechanisms underlying alcoholinduced deficits continues to grow, the possibility of minimizing potential harm by intervening during prenatal alcohol exposure is enhanced. Finally, researchers are exploring additional ways to improve or fully restore behavioral and cognitive functions disrupted by prenatal alcohol exposure by treating the individuals with fetal alcohol spectrum disorders, thereby reducing the heavy burden for affected individuals and their families.

show abstract

FASD: A Clinician’s Perspective: Key Questions and Answers with Commentary

Chudley

2022

Fetal Alcohol Spectrum Disorder

View full text Add to dashboard Cite

Fetal Alcohol Syndrome and Fetal Alcohol Spectrum Disorder

Cited by 6 publications

References 92 publications

Integrating care for individuals with FASD: results from a multi-stakeholder symposium

Integrating care for individuals with FASD: results from a multi-stakeholder symposium

Fetal Alcohol Spectrum Disorders

FASD: A Clinician’s Perspective: Key Questions and Answers with Commentary

Contact Info

Product

Resources

About