Fetal Alcohol Spectrum Disorders (FASD): A Policy Perspective

Jonsson, Egon

doi:10.1177/0706743718773706

Cited by 10 publications

(9 citation statements)

References 13 publications

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“…However, there is a lack of agreement on the prevalence of FASD. While a prevalence of 1 in 100 live births is a number often mentioned (Jonsson, 2019;Manning & Hoyme, 2007) single studies have shown rates as high as up to 4.8% in a US context (May et al, 2014) and 6,3% in areas of central Italy . Furthermore, prevalence rates have been shown to vary according to research method used (May et al, 2009).…”

Section: Introductionmentioning

confidence: 99%

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Is it FASD? And does it matter? Swedish perspectives on diagnosing fetal alcohol spectrum disorders

Vepsä

2020

Drugs: Education, Prevention and Policy

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Fetal alcohol spectrum disorders (FASD) is an umbrella term covering a range of conditions related to prenatal alcohol exposure. In Sweden, only the most severe of these conditions, Fetal alcohol syndrome (FAS), is used as a medical diagnosis. The aim of this study was to analyze the Swedish discussion on whether or not FASD conditions (other than FAS) should be actively diagnosed/identified. The data consisted of a webpage material from a FASD interest organization and a report from a Swedish authority. The analysis was informed by Fairclough's critical discourse analysis and strived to pay attention to which discourses that were drawn upon, and how these discourses related to each other, and to a broader social context. The discussions on whether or not FASD should be actively diagnosed/ identified were structured by three main discourses. These were: a scientific discourse, a pragmatic discourse, and an ethical discourse, with the scientific discourse taking a special position, often being present also when other discourses were drawn upon. Taken together, there is not yet any consensus around what the status of the FASD conditions should be in Sweden, neither regarding the usefulness of diagnosing/identifying, nor regarding the causality between prenatal alcohol exposure and FASD.

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Section: Introductionmentioning

confidence: 99%

“…Furthermore, FASD has been described as connected to several medical conditions, such as heart defects, kidney failure, hearing loss and epilepsy (see e.g. Jonsson, 2019).…”

Section: Introductionmentioning

confidence: 99%

Is it FASD? And does it matter? Swedish perspectives on diagnosing fetal alcohol spectrum disorders

Vepsä

2020

Drugs: Education, Prevention and Policy

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“…Buscando compreender a advocacia do paciente, alguns modelos filosóficos são apresentados na literatura. Cita-se o modelo de advocacia humana cujo foco está em agir em prol dos pacientes devido ao sentimento de humanidade em comum 14 ; o de advocacia existencial, cuja ênfase se encontra em garantir os direitos dos pacientes à autodeterminação 15 ; o modelo funcional de advocacia do paciente que consiste em informar e apoiar as decisões dos pacientes 16 e a advocacia social, que se refere a justiça social, ao acesso equitativo aos cuidados de saúde 17 .…”

Section: Introductionunclassified

As Contribuições De Um Projeto De Extensão Voltados Aos Universitários – As Experiências No Gapac

Biesek¹,

Gagliotto²

2020

Ciências Da Saúde: Campo Promissor Em Pesquisa 3

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Todo o conteúdo deste livro está licenciado sob uma Licença de Atribuição Creative Commons. Atribuição 4.0 Internacional (CC BY 4.0).O conteúdo dos artigos e seus dados em sua forma, correção e confiabilidade são de responsabilidade exclusiva dos autores. Permitido o download da obra e o compartilhamento desde que sejam atribuídos créditos aos autores, mas sem a possibilidade de alterá-la de nenhuma forma ou utilizá-la para fins comerciais.

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“…Alcohol crosses the placenta which may result in cell damage and have an impact on developing organs (including the brain and the spinal cord). There are numerous organs which are sensitive to alcohol exposure across all stages of pregnancy (Jonsson, 2019). FASD, previously considered an umbrella term for a range of accepted diagnoses including: fetal alcohol syndrome (FAS), partial FAS, alcohol related neurodevelopmental disorder (ARND), and alcohol related birth defects (ARBD).…”

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confidence: 99%

Suggestibility, false confessions and competency to stand trial in individuals with fetal alcohol spectrum disorders: current concerns and recommendations

Allely

Mukherjee

2019

JCP

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Suggestibility, false confessions and competency to stand trial in individuals with fetal alcohol spectrum disorders: current concerns and recommendations Fetal alcohol spectrum disorder (FASD) is a lifelong disorder which is the result of prenatal exposure to alcohol (PAE) (Charness et al., 2016;Rangmar et al., 2015). Alcohol crosses the placenta which may result in cell damage and have an impact on developing organs (including the brain and the spinal cord). There are numerous organs which are sensitive to alcohol exposure across all stages of pregnancy ( Jonsson, 2019). FASD, previously considered an umbrella term for a range of accepted diagnoses including: fetal alcohol syndrome (FAS), partial FAS, alcohol-related neurodevelopmental disorder (ND) and alcohol-related birth defects. Increasingly these terms are being replaced by the FASD with and without dysmorphic features in the UK (SIGN, 2018). Individuals with FASD exhibit a variety of symptoms including cognitive (e.g. intelligence, executive control, and memory), social (e.g. communication skills and suggestibility) and adaptive (e.g. decision making ability and capacity to solve problems) impairments (Brown et al., 2011;BoS, BMA, 2016). One of the misconceptions regarding FASD is that individual will exhibit facial features that would suggest PAE. However, this is rarely the case. The majority of individuals who experience the negative effects of PAE lack any physical symptoms. It has been estimated that less than 10 per cent of individuals with FASD exhibit the physical features which have been found to be associated with PAE (Astley, 2010). Moreover, individuals who do exhibit the physical symptoms of PAE, typically diagnosed as FAS (i.e. short palpebral fissures, thin vermilion border, smooth philtrum and growth deficits), tend to become less marked or pronounced as the individual gets older (Streissguth et al., 1991). Individuals with FASD often present with a range of other physical and mental health problems. A review identified 428 comorbid conditions linked to FASD. They suggest rather than being referred for FASD, these comorbid conditions are how individuals may present to services (Popova et al., 2016).Currently, there are no guidelines which are developed to inform and support mental health professionals in the detection and identification of PAE in mental health professionals amongst their patient population (Mela et al., 2019). In order to make the diagnostic process more accessible to mental health professionals (as well as address some of the key diagnostic complexities surrounding FASD), "the Diagnostic and Statistical Manual -Fifth Edition" (DSM-5; American Psychiatric Association, 2013) included ND associated with prenatal alcohol exposure (ND-PAE) as an example under the diagnosis "Other Specified Neurodevelopmental Disorder". Therefore, DSM-5 allows for a clinical diagnosis of "Other Specified Neurodevelopmental Disorder -Neurodevelopmental Disorder Associated with Prenatal Alcohol Disorder". The diagnostic criteria are included in ...

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Fetal Alcohol Spectrum Disorders (FASD): A Policy Perspective

Cited by 10 publications

References 13 publications

Is it FASD? And does it matter? Swedish perspectives on diagnosing fetal alcohol spectrum disorders

Is it FASD? And does it matter? Swedish perspectives on diagnosing fetal alcohol spectrum disorders

As Contribuições De Um Projeto De Extensão Voltados Aos Universitários – As Experiências No Gapac

Suggestibility, false confessions and competency to stand trial in individuals with fetal alcohol spectrum disorders: current concerns and recommendations

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