Feelings of Burden in Palliative Care

Rakic, Milenko; Escher, Monica; Elger, Bernice Simone; Eckstein, Sandra; Pacurari, Nadia; Zwahlen, Susanne; Wienand, Isabelle

doi:10.1177/0825859717750522

Cited by 11 publications

(11 citation statements)

References 19 publications

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“…As examined above, content analysis is used in several fields due to its advantages of embracing both qualitative and quantitative aspects and processing comprehensive data [ 62 , 70 ]. In recognition of its research potential, the public health field is also increasingly using content analysis research, as exemplified by suicide-related social media content analysis [ 71 ], an analysis of children’s books in association with breast cancer [ 72 ], and an analysis of patients’ medical records [ 73 ].…”

Section: In-depth Review Of Qualitative Research Methodsmentioning

confidence: 99%

Qualitative Research in Healthcare: Data Analysis

Im¹,

Pyo²,

Lee³

et al. 2023

J Prev Med Public Health

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Qualitative research methodology has been applied with increasing frequency in various fields, including in healthcare research, where quantitative research methodology has traditionally dominated, with an empirically driven approach involving statistical analysis. Drawing upon artifacts and verbal data collected from in-depth interviews or participatory observations, qualitative research examines the comprehensive experiences of research participants who have experienced salient yet unappreciated phenomena. In this study, we review 6 representative qualitative research methodologies in terms of their characteristics and analysis methods: consensual qualitative research, phenomenological research, qualitative case study, grounded theory, photovoice, and content analysis. We mainly focus on specific aspects of data analysis and the description of results, while also providing a brief overview of each methodology’s philosophical background. Furthermore, since quantitative researchers have criticized qualitative research methodology for its perceived lack of validity, we examine various validation methods of qualitative research. This review article intends to assist researchers in employing an ideal qualitative research methodology and in reviewing and evaluating qualitative research with proper standards and criteria.

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Section: In-depth Review Of Qualitative Research Methodsmentioning

confidence: 99%

Qualitative Research in Healthcare: Data Analysis

Im¹,

Pyo²,

Lee³

et al. 2023

J Prev Med Public Health

View full text Add to dashboard Cite

show abstract

“…SPB also can affect patients' quality of life (QOL), treatment decisions, and desire of survive. 10 , 17 , 19 In conjunction with the above, SPB in this review was defined as a negative experience arising from an individual's illness and care needs affecting others, which can lead to adverse physical and psychological effects on the patient themselves and have impacts on subsequent treatment decisions. Some studies have shown that interventions aimed at patients' physical and psychological problems can improve SPB to a certain extent.…”

Section: Introductionmentioning

confidence: 99%

Intervention and coping strategies for self-perceived burden of patients with cancer: A systematic review

Chen¹,

Wang²,

Zhou³

et al. 2023

Asia-Pacific Journal of Oncology Nursing

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“…For cancer patients, they experience concerns about burdening their caregivers, leading to negative psychological feelings known as self-perceived burden (SPB; Rakic et al, 2018 ). SPB has been cited as ‘empathetic attentiveness arising from the imbalance of an individual’s disease and caring needs on others, causing guilt, distress, and loss of self-awareness’ ( Cousineau et al, 2003 ; McPherson et al, 2007b ).…”

Section: Introductionmentioning

confidence: 99%

“…It has been noted that 19–65% of patients with advanced cancer undergo moderate to extreme SPB ( Cousineau et al, 2003 ; Chochinov et al, 2007 ; McPherson et al, 2007a ). SPB can also cloud the relationship between patients and their caregivers, placing a number of negative effects on them ( Rakic et al, 2018 ; Chen et al, 2023 ).…”

Section: Introductionmentioning

confidence: 99%

The impact of self-perceived burden, caregiver burden, and dyadic coping on negative emotions in colorectal cancer patient-spousal caregiver dyads: a dyadic analysis

Chen,

Wang,

Zhou

et al. 2023

Front. Psychol.

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ObjectiveTo explore the correlation between dyadic coping, self-perceived burden, caregiver burden, and anxiety/depression in colorectal cancer patient-spousal caregiver dyads.MethodsThis study surveyed 200 colorectal cancer patient-spousal caregiver dyads from August 2022 to December 2022. It evaluated self-perceived burden (only for patients), caregiver burden (only for spousal caregivers), dyadic coping, anxiety, and depression. It analyzed data through Pearson’s correlation and the actor–partner interdependence mediation model.ResultsSelf-perceived burden and caregiver burden were significantly associated with the anxiety/depression of both individuals in colorectal cancer patient-spousal caregiver dyads; patients’ dyadic coping was associated with self-perceived burden and caregiver burden; caregivers’ dyadic coping was only associated with patients’ dyadic coping and depression. There was an actor–partner mediating effect of self-perceived burden between dyadic coping and anxiety/depression, but there was only a partner-mediating effect of caregiver burden between dyadic coping and anxiety/depression.ConclusionThis study confirmed the interrelationship between self-perceived burden, caregiver burden, dyadic coping, anxiety, and depression. Self-perceived burden and caregiver burden mediated the relationship between dyadic coping and anxiety/depression in colorectal cancer patient-spousal caregiver dyads. This suggests dynamic interventions for self-perceived burden and caregiver burden can be implemented to improve anxiety/depression in both partners based on maintaining healthy dyadic coping between colorectal cancer patient-spousal caregiver dyads.

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Feelings of Burden in Palliative Care

Cited by 11 publications

References 19 publications

Qualitative Research in Healthcare: Data Analysis

Qualitative Research in Healthcare: Data Analysis

Intervention and coping strategies for self-perceived burden of patients with cancer: A systematic review

The impact of self-perceived burden, caregiver burden, and dyadic coping on negative emotions in colorectal cancer patient-spousal caregiver dyads: a dyadic analysis

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