Feeling Lovely: An Examination of the Value of Beauty for People Dancing with Parkinson's

Houston, Sara

doi:10.1017/s0149767715000042

Cited by 25 publications

(34 citation statements)

References 41 publications

(54 reference statements)

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“…Finally, it should be pointed out that although the present study did not see any significant changes to gait variability or balance confidence, the ballet classes may provide other social, emotional, and psychological benefit that would impact upon daily activities and participation (Houston, 2015).…”

Section: Discussioncontrasting

confidence: 66%

Effects of a ballet-based dance intervention on gait variability and balance confidence of people with Parkinson’s

McGill

Houston

Lee³

2018

Arts & Health

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Background: Dance has shown to be beneficial for people with Parkinson's. However, there is a lack of research on ballet for this population. The present study aimed to determine the effect of weekly ballet classes on gait variability and balance confidence for people with Parkinson's. Methods: The study follows a non-randomized, controlled project evaluation design. A group of 19 people with Parkinson's who were already involved in weekly ballet classes volunteered for this research. A control group of 13 people with Parkinson's were asked to not participate in dance classes across the duration of the study. Results: The study did not demonstrate significant effects of weekly ballet classes on gait variability or balance confidence. Conclusions: These findings differ from recent studies that suggest dancing can improve balance and gait for this population. There is a need to examine the optimal ballet class frequency required to elicit any potential positive change.

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Section: Discussioncontrasting

confidence: 66%

Effects of a ballet-based dance intervention on gait variability and balance confidence of people with Parkinson’s

McGill

Houston

Lee³

2018

Arts & Health

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“…In particular, the beauty subscale represents a sub-dimension (aesthetic experience) within the BSE questionnaire (Fuchs and Koch, 2014) comprising two items that state, "My movements are beautiful" and "I can move elegantly/with grace" (Koch et al, 2016). The concepts of beauty and grace are often intertwined with dance (Houston, 2015) and may constitute prior knowledge (Bless & Greifeneder, 2018) of dance as the art of movement. However, it is important to emphasize that Dance for PD participants directly experience themselves as more graceful and beautiful (Houston, 2015), significantly more so than after matched-intensity exercise, as evidenced by the beauty subscale self-report.…”

Section: Affect Self-efficacy Beautymentioning

confidence: 99%

Beauty That Moves: Dance for Parkinson’s Effects on Affect, Self-Efficacy, Gait Symmetry and Dual Task Performance

Fontanesi

DeSouza

2020

Preprint

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BackgroundPrevious studies have investigated the effects of dance interventions on Parkinson’s motor and non-motor symptoms in an effort to develop an integrated view of dance as a therapeutic intervention. This within-subject study questions whether dance can be simply considered a form of exercise by comparing a Dance for Parkinson’s class with a matched-intensity exercise session lacking dance elements like music, metaphorical language, and social reality of grace and beauty.MethodsIn this repeated-measure design, 7 adults with Parkinson’s were tested four times; (i) before and (ii) after a Dance for Parkinson’s class, as well as (iii) before and (iv) after a matched-intensity exercise session. Physiological measures included heart rate and electrodermal activity. Self-reported affect and body self-efficacy were collected. Gait symmetry and dual task cost were analyzed using the 6-minutes walking test (6MWT) and Timed-Up-and-Go test (TUG), respectively.ResultsAverage heart rate was the same for both conditions, while electrodermal activity was higher during Dance for Parkinson’s. Significant differences were found in body self-efficacy, beauty subscale, symmetry of gait, and dual task performance.ConclusionsDance, compared to an exercise intervention of matched intensity, yields different outcomes through the means of intrinsic artistic elements, which may influence affective responses, the experience of beauty, self-efficacy, and gait performance.

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“…Cultural patterns of patients' deference to their medical professionals, and the corresponding pressure on those professionals to 'have an answer' are deeply rooted, dominated by the 'restitution narrative' in which "a person is not whole, not really able, unless one is 'cured'" [5,6]. Unless each person in the equation changes, then the culture cannot change.…”

Section: Making the Changesmentioning

confidence: 99%

“…[20]. There are, besides the medicines, "other ways of addressing the experience of living with a disease that help the person 'reclaim' [19] their sense of being a person (rather than a patient) for themselves" [6].…”

Section: Box 1 Albert Camusmentioning

confidence: 99%

Adventures with Parkinson's: Empowering Parkinson's Patients to Become Active Partners in Research and Treatment

2017

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The relationship between people with Parkinson's and regenerative medicine is often ambiguous. As people with Parkinson's, we raise funds for research, we raise awareness of the condition and of the work to understand and hence slow, stop or cure it; but we are no longer seduced by the prospect of an imminent miracle cure. A recent paper by Barker et al. [1] concludes that "as the ability to make authentic mid-brain dopaminergic neurons from stem cell sources improves, so does the reality of a first-in-human clinical trial in patients with PD. [But] only too often are exaggerated claims made, based on limited pre-clinical data and the desire to pass the financial and regulatory hurdles needed to get to clinic". As patients, we cannot live without the hope of a life well and positively lived. This paper explores how we approach this, and the role that we play in supporting regenerative medical research. We also extend an invitation to the regenerative medicine research community to continue and deepen this conversation.In his 2011 Maastrich TEDx [2] talk "From God to Guide", and his 2016 Edinburgh Parkinson's Lecture, "The Future of Parkinson Care" [3], Professor Baastian Bloem sets out the principles of participatory medicine, in which Parkinson's patients, researchers and healthcare professionals work together. In this article, we outline how the Edinburgh Parkinson's community: people with Parkinson's, including us as authors, our families and friends, have for some time now been becoming "part of the participatory process". We set out the what, how and why of moving individually and as a community, from being passive recipients of our healthcare, to being instead active collaborators involved in partnership with clinicians and researchers. In the words of the Dalai Lama [4], we are recognizing that our long-term individual interest lies in the welfare of everyone in the Parkinson's community and beyond into the wider society. Throughout this article, we use the convention People with Parkinson's (PwP) to mean people or person with Parkinson's -for example both the singular and the plural according to meaning in situ.Education is at the heart of everything the Edinburgh Parkinson's community is doing. We are educating ourselves as lay people in all aspects of Parkinson's and cutting-edge research into the condition. We are educating our health professionals, researchers and students about the lived experience of Parkinson's (this last with interesting and far-reaching research consequences for regenerative medicine, explored below). We are learning how to develop a quality of living that goes far beyond whatever our physical symptoms -or those of our care partners -might be at any given time, and sharing that knowledge and insight too with our health professionals.The article introduces a wide range of activities provided by the Edinburgh Branch (nested within the wider context of Parkinson's UK) and examines how each activity contributes to and enhances the others, bringing very real benefits to everyone inv...

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Feeling Lovely: An Examination of the Value of Beauty for People Dancing with Parkinson's

Cited by 25 publications

References 41 publications

Effects of a ballet-based dance intervention on gait variability and balance confidence of people with Parkinson’s

Effects of a ballet-based dance intervention on gait variability and balance confidence of people with Parkinson’s

Beauty That Moves: Dance for Parkinson’s Effects on Affect, Self-Efficacy, Gait Symmetry and Dual Task Performance

Adventures with Parkinson's: Empowering Parkinson's Patients to Become Active Partners in Research and Treatment

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