Feasibility, acceptability and adaption of dignity therapy: a mixed methods study achieving 360° feedback

Stephanie, Sandra; Goebel, Swantje; Jentschke, Elisabeth; Oorschot, Birgitt van; Renner, Karl–Heinz; Weber, M.

doi:10.1186/s12904-018-0326-0

Cited by 31 publications

(47 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“… Session 1: The first session is oriented towards the Dignity Therapy question protocol (e.g. “Tell me a little bit about your life history; particularly the parts that you either remember most or think are the most important.” “Are there specific things that you would want your family to know about you?”) and will review important landmarks in the patient’s life [ 24 , 25 ]. An individual graphic is created to illustrate and anchor patients´ answers and given to the patients.…”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Collaborative advance care planning in advanced cancer patients: col-ACP –study – study protocol of a randomised controlled trial

et al. 2020

View full text Add to dashboard Cite

Background: To assure patient-centred end-of-life care, palliative interventions need to account for patients' preferences. Advance care planning (ACP) is a structured approach that allows patients, relatives and physicians to discuss end-of-life decisions. Although ACP can improve several patient related outcomes, the implementation of ACP remains difficult. The col-ACP-study (collaborative advance care planning) will investigate a new ACP procedure (col-ACP-intervention (German: Hand-in-Hand Intervention)) in palliative cancer patients and their relatives that addresses individual values and targets barriers of communication before an ACP process. Methods: In a randomised controlled trial, 270 cancer patients without curative treatment options and their relatives will receive either 1) col-ACP 2) a supportive intervention (active control group) or 3) standard medical care (TAU). col-ACP comprises two steps: a) addressing various barriers of patients and relatives that discourage them from discussing end-of-life issues followed by b) a regular, structured ACP procedure. The col-ACP-intervention consists of 6 sessions. Primary endpoint is the patients' quality of life 16 weeks after randomisation. Secondary endpoints include measurements of distress; depression; communication barriers; caregivers' quality of life; existence of ACP or advance directives; the consistence of end of life care; and others. Patients will be followed up for 13 months. Multivariate analyses will be carried out. Qualitative evaluation of the intervention will be conducted. Discussion: Augmentation of a regular ACP program by a structured psycho-oncological intervention is an innovative approach to target barriers of communication about end-of-life issues. Study findings will help to understand the value of such a combined intervention in palliative care.

show abstract

Section: Methodsmentioning

confidence: 99%

“…"Are there specific things that you would want your family to know about you?") and will review important landmarks in the patient's life [24,25]. An individual graphic is created to illustrate and anchor patients´answers and given to the patients.…”

Section: Col-acp Interventionmentioning

confidence: 99%

Collaborative advance care planning in advanced cancer patients: col-ACP –study – study protocol of a randomised controlled trial

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Cancer is a multidimensional concern that affects individuals' quality of life and coping ability. [ 1 2 ] Along with dealing with a variety of physical problems, patients with cancer may experience different types of distress, including psychosocial, spiritual, and existential aspects. [ 3 4 ]…”

Section: Introductionmentioning

confidence: 99%

The effect of dignity therapy on the quality of life of patients with cancer receiving palliative care

Zaki-Nejad

Nasrabadi

Manookian

et al. 2020

Iranian J Nursing Midwifery Res

View full text Add to dashboard Cite

Background: Patients with cancer deal with physical, psychosocial, spiritual, and existential problems that impact on their quality of life. This study aimed to assess the effect of dignity therapy on the quality of life of mentioned patients. Materials and Methods: In this quasi-experimental study, 50 patients with cancer hospitalized in a palliative care center in Tehran, Iran, in 2017-18 who fulfilled inclusion criteria were selected through convenience sampling. The European Organization for Research and Treatment of Cancer Quality of Life-C15-Palliative (EORTC-QLQ-C15-PAl) questionnaire was filled by patients before and 2 weeks after dignity therapy. Data were analyzed using descriptive statistics such as frequency, mean, and standard deviation, as well as inferential statistics, including independent t-test and Chi-square test. Results: Results showed that dignity-therapy led to more improvement in the quality of life of the intervention group (t 35,18 = 4.82, p = 0.001). There was also a significant difference between the two groups in terms of the physical functioning scale (t 32,96 = -2.60,p = 0.01) and emotional functioning (t 45,69 = 6.54, p < 0.001). We also found that dignity-therapy led to more improvement in nausea and vomiting (χ 2 = 5.71, p = 0.02), insomnia (χ 2 = 15.78, p < 0.001), appetite (χ 2 = 5.09, p = 0.02), and constipation (χ 2 = 12.50, p < 0.001). Conclusions: The application of new approaches like-dignity therapy could benefit patients with cancer in terms of reducing their distress, improving symptom severity, physical and emotional functioning, and total quality of life.

show abstract

“…To specifically address the psychological and existential distress of terminally ill patients, life review interventions such as dignity therapy [17, 18], the structured life review [19], or meaning-centered therapy [20] have recently emerged. According to developmental psychologist Erik Erikson, the central themes of the final stages of life can be outlined as generativity (i.e., producing something lasting of oneself) and ego-integrity (i.e., a retrospective sense of acceptance and meaning of one’s life) [21].…”

Section: Introductionmentioning

confidence: 99%

“Song of Life (SOL)” study protocol: a multicenter, randomized trial on the emotional, spiritual, and psychobiological effects of music therapy in palliative care

Warth¹,

Koehler²,

Weber³

et al. 2019

BMC Palliat Care

Self Cite

View full text Add to dashboard Cite

BackgroundAlthough patients in palliative care commonly report high emotional and spiritual needs, effective psychosocial treatments based on high quality studies are rare. First research provides evidence for benefits of psychosocial interventions in advanced cancer care. To specifically address end-of-life care requirements, life review techniques and creative-arts based therapies offer a promising potential. Therefore, the present study protocol presents a randomized controlled trial on the effectiveness of a newly developed music therapy technique that is based on a biographically meaningful song (“Song of Life”; SOL).MethodsIn a design with two parallel arms, 104 patients at two palliative care units will be randomly assigned to three sessions of either SOL (experimental group) or relaxation exercises (control group). Improvements in the psychological domain of quality of life will be the primary endpoint, while secondary outcomes encompass spiritual well-being, ego-integrity, overall quality of life, and distress. Additionally, caregivers will be asked to provide feedback about the treatment. Assessment of biopsychological stress markers and qualitative analysis of perceived strengths and weaknesses will complement data collection.DiscussionBased on the results of a previous pilot study, we dedicated considerable efforts to optimizing the intervention and selecting appropriate outcomes for the present trial. We are confident to have designed a methodologically rigorous study that will contribute to the evidence-base and help to develop the potential of psychosocial interventions in palliative care.Trial registrationGerman Clinical Trials Register (DRKS) – DRKS00015308 (date of registration: September 07th 2018).

show abstract

Feasibility, acceptability and adaption of dignity therapy: a mixed methods study achieving 360° feedback

Cited by 31 publications

References 17 publications

Collaborative advance care planning in advanced cancer patients: col-ACP –study – study protocol of a randomised controlled trial

Collaborative advance care planning in advanced cancer patients: col-ACP –study – study protocol of a randomised controlled trial

The effect of dignity therapy on the quality of life of patients with cancer receiving palliative care

“Song of Life (SOL)” study protocol: a multicenter, randomized trial on the emotional, spiritual, and psychobiological effects of music therapy in palliative care

Contact Info

Product

Resources

About