Fear of cancer recurrence in oral and oropharyngeal cancer patients: An investigation of the clinical encounter

Ozakinci, Gözde; Swash, Brooke; Humphris, Gerry; Rogers, Simon; Hulbert‐Williams, Nicholas J.

doi:10.1111/ecc.12785

Cited by 22 publications

(14 citation statements)

References 31 publications

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“… 6 Mortensen et al (2022) [ 62 ] Nursing rehabilitation consultations using the Patient Concerns Inventory are feasible and may ensure that patient preferences and priorities are incorporated in their care. 7 Ozakinci et al (2018) [ 56 ] Analyses indicate that patients may feel reluctant to raise their fear of cancer recurrence with their clinician for fear of appearing “ungrateful” or of damaging a relationship that is held in high esteem. 1, 2, 3 Rogers et al (2009) [ 5 ] The Patients Concerns Inventory (PCI) helps focus the consultation onto patient needs and promotes multidisciplinary care.…”

Section: Resultsmentioning

confidence: 99%

The Patient Concerns Inventory in head and neck oncology: a structured review of its development, validation and clinical implications

Kanatas

Lowe²,

Rogers

2022

Eur Arch Otorhinolaryngol

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Introduction The Patient Concerns Inventory (PCI) is a condition specific prompt list that was initially developed for head and neck cancer (HNC) and is referred to as the PCI–HN. There have been numerous publications regarding the PCI–HN, since it was first published in 2009. To date, there has not been a review of its development, validation and clinical implications. A collation of relevant papers into key sections allows multidisciplinary teams and researchers to have an overview of the PCI–HN’s background, evaluation and utility. This is essential if colleagues are to have confidence in the tool and be able to reflect on how to optimise its use in clinical practice. Methods Five search engines were used: EMBASE, Medline, PubMed, CINAHL and Handle-on-QOL for the specific term ‘Patient Concerns Inventory’ up to and including 1st February 2022. In addition, an accumulation of PCI–HN data of 507 HNC patients was drawn from previous studies in Liverpool and Leeds between 2007 and 2020 and was analysed specifically for this paper. Results 54 papers relating to the PCI–HN were identified. The review is structured into eight sections: (1) What is the PCI–HN and how does it work; (2) Feasibility and acceptability; (3) Psychometrics; (4) Items selected and frequency (5) Associations with Health-Related Quality of Life (HRQOL) and casemix; (6) Other observational studies; (7) Randomised trial evaluation; (8) General discussion and further research. Conclusions As the term PCI is quite ubiquitous and produces many hits when searching the literature, this review provides a very concise and convenient historical context for the PCI–HN and collates the current literature.

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Section: Resultsmentioning

confidence: 99%

The Patient Concerns Inventory in head and neck oncology: a structured review of its development, validation and clinical implications

Kanatas

Lowe²,

Rogers

2022

Eur Arch Otorhinolaryngol

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“…Significantly, women LwBBC at all stages of the breast cancer continuum are concerned about limiting demands on HCPs, for fear of mithering or bothering. This is supported by studies that show patients with cancer as reluctant to discuss psychosocial concerns with their clinicians [56] and users of online health communities (n=89) describing HCPs as too busy for detailed discussions [54]. To supplement the available support, some women are actively involved in digital labor in relation to meeting some of their psychosocial needs.…”

Section: Principal Findingsmentioning

confidence: 95%

Exploring Strategies for Using Social Media to Self-Manage Health Care When Living With and Beyond Breast Cancer: In-Depth Qualitative Study

et al. 2020

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Background As breast cancer survival rates improve and structural health resources are increasingly being stretched, health providers require people living with and beyond breast cancer (LwBBC) to self-manage aspects of their care. Objective This study aimed to explore how women use and experience social media to self-manage their psychosocial needs and support self-management across the breast cancer continuum. Methods The experiences of 21 women (age range 27-64 years) were explored using an in-depth qualitative approach. The women varied in the duration of their experiences of LwBBC, which facilitated insights into how they evolve and change their self-management strategies over time. Semistructured interviews were analyzed inductively using a thematic analysis, a polytextual analysis, and voice-centered relational methods. Results The use of multiple social media platforms, such as YouTube, Facebook, WhatsApp, and Twitter, enabled women to self-manage aspects of their care by satisfying needs for timely, relevant, and appropriate support, by navigating identities disrupted by diagnosis and treatment and by allowing them to (re)gain a sense of control. Women described extending their everyday use of multiple platforms to self-manage their care. However, women experienced social media as both empowering and dislocating, as their engagement was impacted by their everyday experiences of LwBBC. Conclusions Health care professionals (HCPs) need to be more aware, and open to the possibilities, of women using multiple social media resources as self-management tools. It is important for HCPs to initiate value-free discussions and create the space necessary for women to share how social media resources support a tailored and timely self-managed approach to their unique psychosocial needs.

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“…Surgery remains the mainstay of index treatment, so functional changes are early and abrupt, and locoregional disease progression can be very difficult to palliate. This is a disease where often, the disease itself is worse than any treatment and continued heroic surgical salvage is sought . This is the “You said you could keep me comfortable…” specter that haunts clinicians and family alike.…”

Section: Narrative Paradigms In Head and Neck Cancer Surgerymentioning

confidence: 99%

Concurrent palliative care in the surgical management of head and neck cancer

McCammon

2019

Journal of Surgical Oncology

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Head and neck cancer affects vital functions of speech, swallowing, breathing, and appearance. Overall survival remains poor and symptom burden is high for both patients with incurable disease at the end of life and for long-term survivors. Early and concurrent palliative care helps guide treatment decision making and support quality of life during and after treatment. Both narrative competence and directive counsel can affect the concordance of patient goals and tolerance of treatment and outcomes. K E Y W O R D S decisional regret, directive counsel, narrative competence, supportive care, survivorship J Surg Oncol. 2019;120:78-84. wileyonlinelibrary.com/journal/jso

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Fear of cancer recurrence in oral and oropharyngeal cancer patients: An investigation of the clinical encounter

Cited by 22 publications

References 31 publications

The Patient Concerns Inventory in head and neck oncology: a structured review of its development, validation and clinical implications

The Patient Concerns Inventory in head and neck oncology: a structured review of its development, validation and clinical implications

Exploring Strategies for Using Social Media to Self-Manage Health Care When Living With and Beyond Breast Cancer: In-Depth Qualitative Study

Concurrent palliative care in the surgical management of head and neck cancer

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