Fatigue and Activity Management Education for Individuals with Systemic Lupus Erythematosus

O’Riordan, Ruth M.; Doran, Michele F.; Connolly, Deirdre

doi:10.1155/2017/4530104

Cited by 27 publications

(41 citation statements)

References 50 publications

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“…The current study illustrates that most of clients were female, less than three quarters were married. These findings were consistent with [16], who found that all participants were female and the majority were married. Also [17] reported that SLE female to male ratio was 9:1.similar to [18] who reported that, the majority of studied sample were female.…”

Section: Discussionsupporting

confidence: 90%

Effect of Health Education based Intervention on Self-care among Systemic Lupus Erythematosus Clients

Elsayed¹,

Mesbah²

2018

AJNR

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Systemic Lupus Erythematosus (SLE) disease and disease-related consequences as well as treatment-related adverse events have a significant negative effect on life expectancy and quality of life of SLE clients. The study aimed to evaluate the effect of health education based intervention on self-care among systemic lupus erythematosus clients. Design: A quasi experimental design was used. Setting: The study was conducted in Rheumatology Outpatients' clinic of Benha Teaching Hospital. Sample: A Convenient sample of systemic lupus erythematosus clients was recruited. There were 60 clients. Tools: I-structured interviewing questionnaire to determine demographic characteristics of SLE clients, disease characteristics. II-Systemic Lupus Erythematosus Assessment Tool to assess client's knowledge about SLE and clients' practices about self-care. III-Lupus Patient Reported Outcomes (lupus PRO). Results: Showed that, the mean age of studied clients was 28.76±5.98, 90% were female, 40% had the disease from 1 to <5 years. 36.7% of them had a family history of SLE, 45% of studied clients had average total knowledge and 0% had good total knowledge scores regarding SLE disease, only18.3% had satisfactory total self-care reported practices score and 16.7% had moderate total Lupus PRO score pre intervention, while post intervention; good total knowledge scores increased to 95 % and average total knowledge decreased to 5%, satisfactory total self-care reported practices increased to 83.3% and moderate total Lupus PRO score increased to 65%. Conclusion: This study concluded that there were a significant improvement in studied clients' knowledge, self-care practices and Lupus PRO regarding SLE disease. Recommendations: Establishing patient education programs to improve SLE clients care by written instructions must be available in all rheumatology clinics. Replicate this study for large number of clients and in different settings.

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Section: Discussionsupporting

confidence: 90%

Effect of Health Education based Intervention on Self-care among Systemic Lupus Erythematosus Clients

Elsayed¹,

Mesbah²

2018

AJNR

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“…In another difference from several previous studies (Etchegaray-Morales et al, 2017;O'Riordan et al, 2017) it was found that depression had a significant correlation with aspects of pain, physical health, intimate relationships and planning. The pain caused by SLE is a problem considered important by people with SLE, because it really obstruct them from conducting their daily activities, especially when they are required to perform their roles as wives and mothers.…”

Section: Discussioncontrasting

confidence: 83%

Depression and Quality of Life in People with Systemic Lupus Erythematosus

Putri

Halim

2018

ANIMA IPJ

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The aim of this research was to determine the relationship between depression and some aspects of the quality of life. As additional data, the researchers sought connections between demographic factors and the quality of life. This research used measurement implements in the form of the Beck Depression Inventory-II (BDI-II) and the LupusQoL. The participants involved in the research were 49 females aged between 18 and 45 years. The results of the research indicated that depression has a significant relationship with all aspects of quality of life, with the exception of the aspect of body image. The greater the depression, the worse the quality of life. Conversely, the lighter the depression, the better the quality of life. Besides this, the research also indicated a significant difference in aspects of the quality of life, on the basis of demographic factors. The conclusion from the research is that depression is an important matter for attention. By overcoming depression, a number of aspects of the quality of life of people with Lupus/SLE may be improved.

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“…A strong need exists to include the assessment of stress in usual care with SLE, especially in those patients with unremitting and severe fatigue. At the same time, identification of stress is only meaningful if paired with appropriate and effective interventions targeted toward stress reduction (45–48). Previous psychological interventions have shown improvements in fatigue and HRQoL factors.…”

Section: Discussionmentioning

confidence: 99%

Longitudinal Study of Fatigue, Stress, and Depression: Role of Reduction in Stress Toward Improvement in Fatigue

Azizoddin

Jolly

Arora

et al. 2020

Arthritis Care & Research

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Objective Fatigue is common among individuals with systemic lupus erythematosus (SLE), but the causes are not well understood. Our objective was to examine perceived stress and depressive symptoms as predictors of fatigue in SLE. Methods Data from 2 years of the Lupus Outcomes Study (n = 650 patients), obtained through annual structured interviews, were used. Fatigue was measured with the Short Form 36 (SF‐36) vitality scale along with a variety of self‐report measures of disease, depression, and stress. Multivariate linear regression models examined predictors of changes in fatigue. Model 1 tested the association of time 1 (T1) depression with time 2 (T2) fatigue; model 2 added T1 perceived stress to model 1, and final models added T1‐to‐T2 decrease in stress. All analyses controlled for T1 fatigue, age, sex, self‐report of fibromyalgia, pain, and SLE duration, activity, and damage. Results Mean ± SD age was 51 ± 12 years, 92% of participants were women, and 68% were white. The mean ± SD SF‐36 fatigue score was 55 ± 24. T1 depression significantly predicted T2 fatigue. When T1 stress was added, stress (β = 1.7 [95% confidence interval (95% CI) 1.1, 2.2]; P < 0.0001) significantly predicted T2 fatigue, but depression was no longer significant. The addition of T1‐to‐T2 decrease in stress was associated with a clinically meaningful decline in fatigue (β = –11.8 [95% CI –15.6, –8.9]; P < 0.0001). Conclusion While depressive symptoms initially predicted subsequent fatigue, the effects were mediated by stress. A decrease in stress, in addition, was associated with a clinically meaningful decrease in fatigue. These results suggest that perceived stress plays an important role in SLE fatigue and may be an important focus of interventions for fatigue.

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Fatigue and Activity Management Education for Individuals with Systemic Lupus Erythematosus

Cited by 27 publications

References 50 publications

Effect of Health Education based Intervention on Self-care among Systemic Lupus Erythematosus Clients

Effect of Health Education based Intervention on Self-care among Systemic Lupus Erythematosus Clients

Depression and Quality of Life in People with Systemic Lupus Erythematosus

Longitudinal Study of Fatigue, Stress, and Depression: Role of Reduction in Stress Toward Improvement in Fatigue

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