Fatherhood and suffering: A qualitative exploration of Swedish men's experiences of care after the death of a baby

Cacciatore, Joanne; Erlandsson, Kerstin; Rådestad, Ingela

doi:10.1016/j.ijnurstu.2012.10.014

Cited by 66 publications

(126 citation statements)

References 21 publications

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“…Their acknowledgement of the baby as an irreplaceable individual emerged as a central theme that underpinned the acknowledgement of parenthood, grief and trauma, and access to acute and long-term specialized support. Our results are consistent with studies conducted with predominantly bereaved mothers after stillbirth in the United States and Sweden [10,18,19]. Grief after the stillbirth of a baby has been described as stigmatized, disenfranchised, and ambiguous [7,8].…”

Section: Discussionsupporting

confidence: 91%

“…Another unique strength of this study was that almost one-half of the participants were male. Bereaved fathers are typically in the minority in other studies focusing on parents affected by stillbirth [10,27]. Discordant grieving styles between fathers and mothers have been associated with relational breakdown and divorce [1].…”

Section: Study Strengths and Limitationsmentioning

confidence: 99%

“…The role of healthcare providers (HCPs) during the delicate period leading up to and following the stillbirth of a baby is critical. However, little is known about the experiences and needs of bereaved parents after stillbirth from their perspective, especially fathers who are often underrepresented [10].…”

Section: Introductionmentioning

confidence: 99%

“…Prior research on stillbirth and perinatal death has largely examined the impact of HCPs [5], adverse psychosocial outcomes [11], epidemiological factors [3], and prevention [12] in studies designed solely by researchers. This participatory research, a qualitative research design [10,11] that enabled bereaved parents and their family members to play a key role in every aspect of the research [12], explored the experiences of bereaved parents. Bereaved fathers were remarkably well represented in this study, consisting nearly half the sample, unlike in prior research.…”

Section: Introductionmentioning

confidence: 99%

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What bereaved parents want health care providers to know when their babies are stillborn: a community-based participatory study

et al. 2020

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Background: Bereaved parents experience higher rates of depressive and post-traumatic stress symptoms after the stillbirth of a baby than after live-birth. Yet, these effects remain underreported in the literature and, consequently, insufficiently addressed in health provider education and practice. We conducted a participatory based study to explore the experiences of grieving parents during their interaction with health care providers during and after the stillbirth of a baby.Methods: This community-based participatory study utilized four focus groups comprised of twenty-seven bereaved parents (44% fathers). Bereaved parents conceptualized the study, participating at all stages of research, analyses, and drafting. Data were reduced into a main theme and subthemes, then broad-based member checked to ensure fidelity and nuances within themes.Results: The major theme that emerged centered on provider acknowledgement of the baby as an irreplaceable individual. Subthemes reflected 1) acknowledgement of parenthood and grief, 2) recognition of the traumatic nature of stillbirth, and 3) acknowledgement of enduring grief coupled with access to support. It was important that providers realized how grief was experienced within health care and social support systems, concretized by their desire for long-term, specialized support.Conclusions: Both mothers and fathers feel that acknowledgement of their baby as an individual, their parenthood, and their enduring traumatic grief by healthcare providers are key elements required in the process of initiating immediate and ongoing care after the stillbirth of a baby.

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Section: Discussionsupporting

confidence: 91%

Section: Study Strengths and Limitationsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

What bereaved parents want health care providers to know when their babies are stillborn: a community-based participatory study

et al. 2020

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show abstract

“…Although a survey by Foster, Dietrich, Friedman, Gordon and Gilmer (2012) demonstrated that 97% of paediatric hospitals in the United States offer memento making, with handprints, locks of hair and memory boxes being the most popular methods, the use of mementos in paediatric bereavement care has received little focus in the recent literature. Commonplace in perinatal death and bereavement care, staff often use memento making to help affirm an infant's existence and create lasting memories for the parents (Alexander, 2001;Blood & Cacciatore, 2014;Cacciatore, Erlandsson, & Rådestad, 2013;Tan, Docherty, Barfield, & Brandon, 2012). However, this concept does not appear prominent in the paediatric literature, especially for older children, where staff may wrongly assume that parents already have many physical reminders of the child and do not want hospital mementos.…”

Section: Discussionmentioning

confidence: 99%