FASD-Informed Care and the Future of Intervention

Olson, Heather Carmichael; Pruner, Misty; Byington, Nora; Jirikowic, Tracy

doi:10.1007/978-3-031-32386-7_13

Cited by 8 publications

(6 citation statements)

References 179 publications

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“… 6 – 8 For families raising school-aged children with FASD, interventions including a positive behavior support approach have been shown to improve child and family functioning, 9 , 10 and early intervention is crucial to supporting positive outcomes. 9 , 11 Essential elements for FASD-informed care have been identified. 9 But evidence-based intervention for FASD remains inaccessible to many.…”

Section: Introductionmentioning

confidence: 99%

“… 9 , 11 Essential elements for FASD-informed care have been identified. 9 But evidence-based intervention for FASD remains inaccessible to many. Families of individuals living with FASD face significant barriers to accessing these interventions, including but not limited to lack of widespread and systemic awareness of FASD, lack of resources, and stigma.…”

Section: Introductionmentioning

confidence: 99%

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Larger-scale feasibility trial of the families moving forward (FMF) connect mobile health intervention for caregivers raising children with fetal alcohol spectrum disorders

Petrenko,

Kautz-Turnbull,

Rockhold

et al. 2024

DIGITAL HEALTH

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Objective Caregivers raising children with fetal alcohol spectrum disorders (FASD) have limited access to evidence-based supports. This single-arm feasibility trial assesses the Families Moving Forward (FMF) Connect app to determine readiness for a larger randomized controlled trial (RCT). Methods Eligibility for this online trial included caregivers of children (ages 3–12) with FASD residing in the United States. Caregivers received FMF Connect for 12 weeks on their personal smartphones (iOS or Android). Pre- and post-assessments included child behavior, parenting and family functioning, and app quality; user experience interviews were conducted post-intervention. Usage and crashes were monitored. Study objectives assessed feasibility of the trial (recruitment, attrition, measure sensitivity), intervention (technical functionality, acceptability), and implementation (caregiver usage). Results Recruitment strategies proved sufficient with 171 caregivers screened and 105 deemed eligible. Analyses identified a few predictive demographic and outcome variables related to attrition. Several study measures were sensitive to change. Additional trial and measurement improvements were identified. From a technological perspective, the FMF Connect app was functional; the Android prototype required more

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Larger-scale feasibility trial of the families moving forward (FMF) connect mobile health intervention for caregivers raising children with fetal alcohol spectrum disorders

Petrenko,

Kautz-Turnbull,

Rockhold

et al. 2024

DIGITAL HEALTH

View full text Add to dashboard Cite

show abstract

“…Despite a considerably high prevalence, few interventions have been developed to support symptoms of FASD, and a majority of existing interventions have not yet progressed to active community implementation. A comprehensive review of the literature on interventions for FASD is beyond the scope of this paper ( 85 , 86 ). To our knowledge, empirical studies on potential racial and ethnic disparities in interventions for FASD have not been published despite clear evidence for such disparities in neurodevelopmental disability literature more broadly ( 87–89 ).…”

Section: Introductionmentioning

confidence: 99%

“…To our knowledge, empirical studies on potential racial and ethnic disparities in interventions for FASD have not been published despite clear evidence for such disparities in neurodevelopmental disability literature more broadly ( 87–89 ). However, it is critical to acknowledge FASD intervention research and clinical services are rooted in the tradition of Western medicine, with limited access to services globally ( 85 ). Furthermore, numerous barriers impede evidence-based intervention for FASD across diverse cultures, including absence of local programs, housing of interventions in universities/medical centers who historically mistreated and oppressed BIPOC individuals, and failure of existing interventions to address individual differences at the intersection of dis/ability and culture ( 90 ).…”

Section: Introductionmentioning

confidence: 99%

Racial and ethnic disparities in psychological care for individuals with FASD: a dis/ability studies and critical race theory perspective toward improving prevention, assessment/diagnosis, and intervention

Rockhold,

Gimbel,

Richardson

et al. 2024

Front. Public Health

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Fetal alcohol spectrum disorders (FASD) are among the most common neurodevelopmental disorders and substantially impact public health. FASD can affect people of all races and ethnicities; however, there are important racial and ethnic disparities in alcohol-exposed pregnancy prevention, assessment and diagnosis of FASD, and interventions to support individuals with FASD and their families. In this article we use the Dis/Ability Studies and Critical Race Theory (Dis/Crit) framework to structure the exploration of disparities and possible solutions within these three areas (prevention, diagnosis, intervention). Dis/Crit provides a guide to understanding the intersection of dis/ability and race, while framing both as social constructs. Following the Dis/Crit framework, the systemic, historical, and contemporary racism and ableism present in psychological care is further discussed. We aim to elucidate these racial and ethnic disparities within the fields of psychology and neuropsychology through the Dis/Crit framework and provide potential points of action to reduce these disparities.

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“…Subsequently, these barriers contribute to high rates of school disruption (i.e., suspension, expulsion, and dropout), estimated at 60% (Streissguth et al, 2004). Olson et al (2023) have proposed 12 essential elements of FASD-informed care to address these barriers.…”

Section: Introductionmentioning

confidence: 99%

Teachers' needs for an FASD‐informed resource: A qualitative interview needs assessment based on the ADAPT‐ITT framework

Kautz‐Turnbull,

Speybroeck,

Rockhold

et al. 2023

Psychology in the Schools

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Fetal alcohol spectrum disorders (FASD) represent a wide range of neurodevelopmental differences associated with prenatal alcohol exposure and are highly prevalent. The current study represents the initial stages in adapting the Families Moving Forward (FMF) Program, an evidence‐based behavioral consultation intervention for caregivers of children with FASD, to a website for teachers. Aims were to understand teachers' needs and preferences for an FASD‐informed intervention website and to assess the goodness of fit of the FMF Program to teachers and the school setting. Twenty‐three teachers with experience teaching students with FASD were interviewed. Interviews were conducted via Zoom and lasted about 53 min on average. Data were transcribed verbatim and analyzed using qualitative content analysis in Dedoose. Three overarching themes represented teachers' needs for an FASD‐informed resource: teachers need evidence‐based FASD information and strategies, teachers have very little extra time, and the needs of special and general education teachers vary. Teachers were positive about the concepts of the FMF Program and felt they would have good fit. Teachers need an evidence‐based FASD‐informed intervention that is easy to use, concise, and responsive to varying needs and levels of experience. Results will inform the adaptation process of the FMF Program.

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FASD-Informed Care and the Future of Intervention

Cited by 8 publications

References 179 publications

Larger-scale feasibility trial of the families moving forward (FMF) connect mobile health intervention for caregivers raising children with fetal alcohol spectrum disorders

Larger-scale feasibility trial of the families moving forward (FMF) connect mobile health intervention for caregivers raising children with fetal alcohol spectrum disorders

Racial and ethnic disparities in psychological care for individuals with FASD: a dis/ability studies and critical race theory perspective toward improving prevention, assessment/diagnosis, and intervention

Teachers' needs for an FASD‐informed resource: A qualitative interview needs assessment based on the ADAPT‐ITT framework

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