FASD and Child Welfare

Badry, Dorothy; Dearman, Ana Hanlon; Choate, Peter; Marcellus, Lenora; Tortorelli, Christina; Williams, Robyn

doi:10.1007/978-3-031-32386-7_15

“…When looked at from a life course perspective [28,29] people with FASD often face not only individual event traumas but also cumulative ones arising from ACEs as well as factors that may not be measured in that way. This can include experiencing SDH that adversely affect life outcomes, early life interruptions such as involvement with child intervention services and placement in foster care, often with placement instability, difficulty with establishing social and peer relationships, challenges with integration in school and staying along the same developmental pathway as other children.…”

Section: Literature Reviewmentioning

confidence: 99%

FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder – Results of an Anonymous Survey

Hargrove,

Lutke,

Griffin

et al. 2024

Preprint

0

View full text Add to dashboard Cite

Fetal Alcohol Spectrum Disorder (FASD) is considered a lifelong disability that has been framed by neurobiological descriptions focused on the brain. These are important features but fail to tell the story of living with FASD. By surveying those with FASD, this work expands upon prior survey work which illustrated a multitude of early onset physiological issues occurring at rates much higher than typical of the general population. The current project, again using an anonymous survey methodology, seeks to open up other direct experiences to better understand the complexity of living with FASD. An anonymous online survey was used to gather data on advresity in childhood, schooling, employment, housing and finances, involvement with the criminal justice system as well as relationships and parenting. Results inform how supports can be enhanced and targeted with a goal of improving the quality of life. The survey was developed by adults living with FASD who have served as a long-standing advocacy and educational group influencing policy and practice in the field.

show abstract

“…Responding to FASD from a strengths-based perspective has been highlighted in the leadership and advocacy of Aboriginal communities in Australia in response to FASD, as reflected in the uptake of Strong Born across the country. The Strong Born Campaign represents significant agency and advocacy by the Aboriginal community and provides not only the Aboriginal community but the wider community with a framework to mitigate stigma that often plays a pivotal role in the lack of diagnosis and services for children and adults with FASD [26]. The Strong Born Campaign offers a distinct and unique opportunity to engage in new yarning about FASD in Australia and to frame critical responses that are grounded in Aboriginal voices and communities across the country.…”

Section: Australian Indigenous Context and Fasdmentioning

confidence: 99%

Strong Born—A First of Its Kind National FASD Prevention Campaign in Australia Led by the National Aboriginal Community Controlled Health Organisation (NACCHO) in Collaboration with the Aboriginal Community Controlled Health Organisations (ACCHOs)

Williams,

Hayton,

Campbell

et al. 2024

IJERPH

1

0

View full text Add to dashboard Cite

The Strong Born Campaign (2022–2025) was launched by the National Aboriginal Community Controlled Health Organisation (NACCHO) in 2023. Strong Born is the first of its kind national Aboriginal and Torres Strait Islander health promotion campaign to address Fetal Alcohol Spectrum Disorder (FASD) within Australia. Strong Born was developed to address a longstanding, significant gap in health promotion and sector knowledge on FASD, a lifelong disability that can result from alcohol use during pregnancy. Utilizing a strengths-based and culturally sound approach, NACCHO worked closely with the Aboriginal Community Controlled Health Organisations (ACCHOs) to develop the campaign through co-design, as described in this paper. Since its inception, the ACCHOs have continually invested in driving change towards improvements in Aboriginal health determinants and health promotion. The Strong Born Campaign developed culturally safe health promotion tool kits designed for the community and health sector staff and also offered communities the opportunity to apply for FASD Communications and Engagement Grants to engage in local campaign promotion. The tool kits have been disseminated to 92 ACCHOs across Australia. This paper describes the development of the Strong Born Campaign and activities following its launch in February 2023 from an Indigenous context within Australia, as described by NACCHO.

show abstract

“…When looked at from a life course perspective [26] people with FASD often face not only individual event traumas but also cumulative ones arising from ACE's as well as factors that may not be measured in that way. This can include lack of access to social determinants of health, early life interruptions such as involvement with child intervention services and placement in foster care, often with placement instability, difficulty with establishing social and peer relationships, challenges with integration in school and staying along the same developmental pathway as other children.…”

Section: Literature Reviewmentioning

confidence: 99%

FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder – Results of an Anonymous Survey

Hargrove,

Lutke,

Griffin

et al. 2024

Preprint

0

View full text Add to dashboard Cite

Fetal Alcohol Spectrum Disorder (FASD) is considered a lifelong disability that has been framed by neurobiological descriptions focused on the brain. These are important features but fail to tell the story of living with FASD. By surveying those with FASD, this work expands upon prior survey work which illustrated a multitude of early onset physiological issues occurring at rates much higher than typical of the general population. The current project, again using an anonymous survey methodology, seeks to open up other direct experiences to better understand the complexity of living with FASD. An anonymous online survey was used to gather data on advresity in childhood, schooling, employment, housing and finances, involvement with the criminal justice system as well as relationships and parenting. Results inform how supports can be enhanced and targeted with a goal of improving the quality of life. The survey was developed by adults living with FASD who have served as a long-standing advocacy and educational group influencing policy and practice in the field.

show abstract

FASD and Child Welfare

Cited by 4 publications

References 47 publications

FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder – Results of an Anonymous Survey

FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder – Results of an Anonymous Survey

Strong Born—A First of Its Kind National FASD Prevention Campaign in Australia Led by the National Aboriginal Community Controlled Health Organisation (NACCHO) in Collaboration with the Aboriginal Community Controlled Health Organisations (ACCHOs)

FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder – Results of an Anonymous Survey

Contact Info

Product

Resources

About