Family Support Needs as Perceived by Parents of Preadolescents and Adolescents Who are Deaf or Hard of Hearing

Jamieson, Janet R.; Zaidman‐Zait, Anat; Poon, Brenda T.

doi:10.1179/1557069x11y.0000000005

Cited by 37 publications

(16 citation statements)

References 37 publications

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“…As a result these parents, whose children have all received assistive devices, may experience a lesser subsequent need for emotional support. deaf or hard-of-hearing child with additional needs [11]. The fact that parents in the current study had all enrolled at the same early intervention centre soon after diagnosis may also have ensured that there was no difference in the experienced need for information.…”

Section: Discussionmentioning

confidence: 97%

“…Close to half (47%) of the ANSD parents reportedly received conflicting information from professionals during this process. Obtaining information is an important part of parental coping and the decision-making processes towards adjusting to their child's hearing loss [11]. In diagnoses of ANSD, families face additional challenges above and beyond the diagnosis of a hearing loss.…”

Section: Discussionmentioning

confidence: 99%

“…Most of the documented research on the experiences and support of families of children with hearing loss is focused on children's early stages of development [11].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Does parental experience of the diagnosis and intervention process differ for children with auditory neuropathy?

Stroebel

Swanepoel

2014

International Journal of Pediatric Otorhinolaryngology

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Objectives: This study compared parental experience of the audiological diagnosis and intervention process in children with auditory neuropathy spectrum disorder and sensory neural hearing loss. Method:A matched group survey was used with parents of children with auditory neuropathy spectrum disorder (ANSD) matched with a control group of parents and children with sensorineural hearing loss (SNHL). The two groups were matched in terms of the child's gender, age, amplifications used, social background and utilization of private or public health care sectors. An interview questionnaire, consisting of 45 questions in 6 categories (1. biographic information, 2. experiences of audiological diagnosis, 3. hearing aid benefit, 4. parental experience of the rehabilitation decision making process, 5. parental needs for emotional support and 6. parental needs for information) using a 5-point lickert scale for categories 2 to 7, was administered by the same audiologist.

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Section: Discussionmentioning

confidence: 97%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Does parental experience of the diagnosis and intervention process differ for children with auditory neuropathy?

Stroebel

Swanepoel

2014

International Journal of Pediatric Otorhinolaryngology

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“…Although this is the first MDS of its kind for families of children with HL in the transition from diagnosis to EI, similar Needs Assessment Tools have been developed for families of children with other disabilities (Bailey Jr & Simeonsson, 1988), and specifically for preschool and older children with HL Jamieson, Zaidman-Zait, & Poon, 2011). For example, the Family Needs Survey (FNS) was developed almost 3 decades ago by Bailey and Simeonsson (1988) to assess the needs of families of children with disabilities across six categories, including support needs, information needs, explaining to others, financial needs, community services, and family functioning (Bailey Jr & Simeonsson, 1988).…”

Section: Discussionmentioning

confidence: 99%

“…The families in the pilot study reported being happy sharing information with the professionals through the FNS and found it helpful and easy to use . Another similar resource is the Family Support Needs Instrument-Children with Hearing Loss (FSNI-HL) that was developed for preadolescents and adolescents with HL by Jamieson et al (2011). The FSNI-HL has 63 items across seven categories, including: (1) information, (2) guidance, (3) emotional support, (4) location services, (5) intervention and education programs, (6) professionals' behaviour, and 7financial assistance (Jamieson et al, 2011).…”

Section: Discussionmentioning

confidence: 99%

Supporting families of children with hearing loss transitioning to early intervention

Nickbakht¹

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Family-centred care (FCC) has long been acknowledged as best practice for meeting the needs of families of children with hearing loss (HL) and improving early intervention (EI) outcomes. Although the literature has reported some gaps in service provision to families of children with HL, and the period from the time of diagnosis to enrolment in EI has been identified as a significant decision-making period, there is a lack of in-depth knowledge regarding families' needs during this period. In addition, no study has addressed the current gaps in FCC for children with HL with or without additional disabilities transitioning to EI. Therefore, the overarching aim of this thesis was to develop a family-centred intervention to support families of children with HL transitioning to EI, using an implementation science approach. The specific aims of this thesis were: (1) to explore families' needs in the transition to EI after diagnosis of HL from both families' and professionals' perspectives; (2) to investigate families' and professionals' perspectives on the provision of FCC in the transition to EI; and (3) to develop a family-centred intervention for children with HL-with or without additional disabilities-transitioning to EI. Chapter 2 describes the overarching framework applied throughout this thesis, the Behaviour Change Wheel (BCW). The BCW is a step-by-step guide for planning interventions that involves three tasks, including (a) understanding the behaviour that needs to be changed (Chapters 3 and 4), (b) identifying intervention options (Chapter 5), and (c) identifying implementation options and content of the intervention (Chapter 6). Chapter 3 explored families' needs in the transition to EI using a qualitative approach incorporating semi-structured interviews with families and professionals. Four major themes were identified from the interviews: (1) families require information that meet their specific xi Financial support This research was supported by an Australian Government Research Training Program Scholarship. The authors acknowledge the financial support of the HEARing CRC, established under the Australian Government's Cooperative Research Centres (CRC) Program. The CRC Program supports industry-led collaborations between industry, researchers and the community.

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Relationship Between Parental Stress and their Attitudes Towards Cochlear Implantation Outcomes in Children Referred to Besat Cochlear Implant Center in Hamadan 2018

Bashiri

Cheraghi

Roshanaei

et al. 2020

Journal of Pediatric Nursing

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Family Support Needs as Perceived by Parents of Preadolescents and Adolescents Who are Deaf or Hard of Hearing

Cited by 37 publications

References 37 publications

Does parental experience of the diagnosis and intervention process differ for children with auditory neuropathy?

Does parental experience of the diagnosis and intervention process differ for children with auditory neuropathy?

Supporting families of children with hearing loss transitioning to early intervention

Relationship Between Parental Stress and their Attitudes Towards Cochlear Implantation Outcomes in Children Referred to Besat Cochlear Implant Center in Hamadan 2018

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