Family support for stroke: one year follow up of a randomised controlled trial

Mant, Jonathan; Winner, Simon; Roche, Jenny; Wade, Derick T

doi:10.1136/jnnp.2004.048991

Cited by 27 publications

(53 citation statements)

References 6 publications

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“…Several studies reported significant group differences favoring the intervention groups for satisfaction. 33,42,46,55,57,60 However, 1 study reported nonsignificant findings concerning satisfaction, 52 and 1 study actually reported worse caregiver satisfaction scores for the intervention compared with the control. 37 The latter study involved the use of a family support organizer and reported worse satisfaction scores for the survivors.…”

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confidence: 69%

“…Many other studies measured depression with a variety of scales but did not report significant group differences. 26,31,[33][34][35][36][37]39,43,57 Although these results may reflect ineffective interventions, it is possible that many of the survivors did not exhibit sufficient depressive symptoms at baseline to demonstrate significant improvements. Researchers are urged in future studies to enroll caregivers of survivors who are depressed or to conduct subgroup analyses of depressed survivors.…”

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confidence: 86%

“…One exception, however, was the Mant et al 36,57 family support organizer intervention, which resulted in fewer therapy visits for survivors and significant improvements in caregiver outcomes, including quality of life. Although the number of session in the Mant et al 36,57 intervention varied, on average, dyads received 2 face-to-face visits and 3 telephone sessions (5 total sessions).Half of the 32 studies had between 5 and 9 sessions (n=16, 50.0%), with 8 (50.0%) of these demonstrating significant survivor improvements and 13 (81.3%) having significant caregiver improvements in outcomes. Two studies in the group of 16 that had 5 to 9 sessions reported positive survivor and caregiver outcomes but worse social functioning for caregivers in the intervention group.…”

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confidence: 99%

“…Future studies should be responsive and tailored to both the needs of the care of the survivor and the unique needs of the family caregiver. 25,27,38,40,41,[44][45][46][47][48][49][50][51][52][53][54][55][56][58][59][60][61] 17 (53.1) 4 (23.5) 16 (94) Stroke survivor-caregiver dyad 26,[28][29][30][31][32][33][35][36][37]39,42,43,57,62,63 15 ( Psycho-educational 26,29,33,37,39,42,58 7 (21.9) 6 (85.7) 6 (85.7)Skill building and psycho-educational 25,27,28...…”

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confidence: 99%

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Evidence for Stroke Family Caregiver and Dyad Interventions

Bakas¹,

Clark²,

Kelly-Hayes³

et al. 2014

Stroke

208

188

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S troke is one of the leading causes of severe, long-term disability, 1 with a majority of stroke survivors requiring the assistance of a family caregiver.2 A family caregiver is defined in this context as a relative, partner, personal friend, or neighbor who provides assistance to an adult with a chronic or disabling condition such as stroke.3 Although family members may not consider themselves caregivers, this term is commonly used in the literature to represent family or informal (unpaid) caregivers.Family caregiver stress is commonly associated with longterm institutionalization of stroke survivors, resulting in significant costs to the healthcare system. [4][5][6][7][8] Family caregiver stress can also result in other negative outcomes for both survivors and their caregivers. 7 For example, caregiver stress has been shown to interfere with rehabilitation of the survivor 7 and can result in social isolation, declining health, and increased risk of mortality for the caregivers. 9,10 Depression is especially prevalent in stroke family caregivers, 7,11,12 with some studies reporting higher depression rates in the caregivers than in the survivors for whom they provide care. 11,13 Miller and colleagues 14 made recommendations for family caregiver education and support across inpatient, outpatient, and chronic care settings based on clinical practice guidelines and existing research. These recommendations involved (1) caregivers serving as integral members of interdisciplinary teams, (2) assessment of caregiver needs and concerns, (3) follow-up contacts and referrals, (4) counseling focused on problem solving and social support, (5) provision of strokerelated information, and (6) attention to the emotional and Abstract-Stroke is a leading cause of severe, long-term disability. Most stroke survivors are cared for in the home by a family caregiver. Caregiver stress is a leading cause of stroke survivor institutionalization, which results in significant costs to the healthcare system. Stroke family caregiver and dyad intervention studies have reported a variety of outcomes. A critical analysis of 17 caregiver intervention studies and 15 caregiver/stroke survivor dyad intervention studies was conducted to provide evidence-based recommendations for the implementation and future design of stroke family caregiver and dyad interventions. The American Heart Association makes every effort to avoid any actual or potential conflicts of interest that may arise as a result of an outside relationship or a personal, professional, or business interest of a member of the writing panel. Specifically, all members of the writing group are required to complete and submit a Disclosure Questionnaire showing all such relationships that might be perceived as real or potential conflicts of interest.This statement was approved by the American Heart Association Science Advisory and Coordinating Committee on March 26, 2014. A copy of the document is available at http://my.americanheart.org/statements by selecting either the "By Topic" link or ...

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confidence: 69%

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confidence: 86%

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confidence: 99%

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confidence: 99%

See 2 more Smart Citations

Evidence for Stroke Family Caregiver and Dyad Interventions

Bakas¹,

Clark²,

Kelly-Hayes³

et al. 2014

Stroke

208

188

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“…Bu 12 aylık süreçte, bazı inmeli hastalar kaybedildiği için etkisi tam değerlendirilememiştir. 33 Bakım vericilerle, iletişimi kolaylaştırmak için, mail ve telefonla görüşme birçok çalışmada kullanılmıştır. Bakım verenlerle iletişimi kolaylaştıran eğitim desteklerinden, ikisi e-posta ve telefonla iletişim seçenekleridir.…”

Section: Yapılan Girişimlerin Etkinliğini Değerlendirme Araçlarıunclassified

İnmeli Hastaların Ailelerinin, Bakım Verme Yeterliliğini Geliştirmek İçin Yapılan Girişimler: Sistematik Derleme

Avcı¹,

Gözüm²,

Özer³

2016

TJFMPC

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Objective: It is to determine interventions performed to develop competence of family caregivers of patients with stroke in coping with caregiving and what are they of these interventions. Method: 20 randomized controlled studies, one of them meta-analysis, were evaluated in accordance with inclusion criteria. All studies were systematized and examined. Results: Types of interventions made to the caregivers were consultancy via phone, e-mail, web aided training, home visits, and group education. The intervention provided to caregivers was found to be effective in 15 of 20 studies included in the study. In other five studies, there was no statistical difference in terms of a measured parameter; whereas, it was found useful for caregivers in at least one of the other measured parameters. Conclusion: The fact that interventions for strengthening caregivers were highly effective points out the requirement of determining cost effective methods in future studies.Key words: Stroke, family caregivers, caregivers competence, care burden, cope with stress, systematic review ÖZET Amaç: İnmeli hastaların, aile bakım vericilerinin, bakım vermede baş etme yeterliliklerini geliştirmek amacıyla yapılan girişimler ve bu girişimlerin neler olduğunun belirlenmesidir. Yöntem: Dâhil edilme kriterlerine uygun olarak, biri meta analiz olmak üzere, 20 randomize kontrollü çalışma değerlendirilmiştir. Tüm çalışmalar sistematize edilerek incelenmiştir. Bulgular: Bakım vericilere yapılan girişim türlerinin; telefonla danışmanlık, e-posta, web destekli eğitim, ev ziyaretleri ve grup eğitimi olduğu belirlenmiştir. Araştırma kapsamına alınan 20 araştırmanın, 15'inde bakım vericilere yapılan girişimin etkin olduğu belirlenmiştir. Diğer beş araştırmada ise, ölçülen bir parametrede istatistik açısından farklılık yok iken, ölçülen diğer parametrelerin en az birinde girişimin bakım verenler için faydalı olduğu belirlenmiştir. Sonuç: Bakım vericileri güçlendirmeye yönelik girişimlerin büyük oranda etkin olması, gelecek çalışmalarda maliyet etkili yöntemlerin belirlenmesi gerektiğine işaret etmektedir.Anahtar kelimeler: İnme, aile bakım verici, bakım verme yeterliliği, bakım yükü, stresle başa çıkma, sistematik derleme

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