Family Stress Associated with Cerebral Palsy

Fritz, Heidi L.; Sewell-Roberts, Carrie

doi:10.1007/978-3-319-50592-3_213-1

Cited by 4 publications

(1 citation statement)

References 89 publications

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“…However, the majority of research has been conducted in high-income countries, and there is a lack of knowledge on the situation in low- and middle-income countries [ 12 ]. Research from high-income countries has shown substantially increased stress [ 1 , 2 , 13 , 14 ], chronicity of distress [ 15 ], fatigue [ 2 ], higher rate of anxiety and depression [ 12 , 16 ], emotional and cognitive problems [ 17 ], and a greater likelihood of having physical illness [ 17 , 18 ] for these caregivers. They also forfeit employment opportunities, leisure time, and social interactions and often become housebound [ 2 ].…”

Section: Introductionmentioning

confidence: 99%

Psychological Distress among Caregivers of Children with Neurodevelopmental Disorders in Nepal

Maridal

Bjørgaas

Hagen

et al. 2021

IJERPH

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Parenting a child with neurodevelopmental disorder (NDD) is related to a higher rate of anxiety and depression, increased stress, and reduced quality of life. Although there is reason to believe that parenting children with NDD in low- and middle-income countries (LMIC) can be challenging, there is a lack of knowledge on the psychological distress among these caregivers, especially in rural areas. The aim of the study was to examine the psychological distress among caregivers having children with NDD in rural Nepal. Sixty-three caregivers were visited in their homes and interviewed by experienced mental health professionals. This study examined demographic information, severity of disability, perceived caregiver burden, and psychological distress, measured by the General Health Questionnaire-12 (GHQ-12). The study found a high level of psychological distress in the caregivers (M = 5.38, SD = 2.8). A majority (90.5%) scored two or higher, indicating the presence of a common mental disorder (CMD). Almost half (46%) scored six or higher, indicating a high level of distress. A majority of the caregivers reported that caring for their disabled child had a negative effect on the caregiver’s economy (70%), physical health (65%), social life (64%), and dreams and expectations for the future (81%). There was a significant relationship between the caregiver’s psychological distress (GHQ-12) and degree of disability in the child (Gross Motor Function Classification System), degree of caregiver burden, feeding problems, having health workers as a possible source of help, receiving incentive from the government, having somebody to confide in, and caregiver illiteracy. A forward regression analysis entering the significant factors indicated that caregiver burden, having someone to confide in, and having health workers as a possible source of help were significant related to psychological distress. The final step of the model explained 42.4% of the variance in psychological distress among the caregivers. The study indicates a high level of psychological distress and high overall burden in caregivers of children with NDD in rural Nepal. Further implications for research and service development are discussed.

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Section: Introductionmentioning

confidence: 99%

Psychological Distress among Caregivers of Children with Neurodevelopmental Disorders in Nepal

Maridal

Bjørgaas

Hagen

et al. 2021

IJERPH

View full text Add to dashboard Cite

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The Relationship Between Solution-Focused Communication Skills and Perceived Social Support: A Descriptive Levels of Study of the Perceptions of Turkish Parents with of Children with Developmental Disabilities

Gözaçan Karabulut,

Ayar,

Karasu

2023

Developmental Neurorehabilitation

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Caregiving in quarantine: Humor styles, reframing, and psychological well-being among parents of children with disabilities

Fritz

2021

Journal of Social and Personal Relationships

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Prior research links adaptive humor styles (affiliative and self-enhancing) with enhanced psychological well-being and maladaptive humor styles (aggressive and self-defeating) with worse psychological well-being, primarily through humor styles’ influence on individuals’ social interactions and efforts to positively reframe stressors. The present study examined the unique relation of each humor style with psychological well-being with a focus on understanding mechanisms of adjustment under highly stressful conditions. Ninety-nine parents of children with disabilities were surveyed at the beginning of the COVID-19 pandemic in the United States in March 2020, and 79 parents completed follow-up surveys in July 2020. As predicted, at T1, self-enhancing humor was associated with less psychological distress and greater family satisfaction, self-defeating humor was associated with greater distress, and aggressive humor was associated with lower family satisfaction. Moreover, affiliative humor predicted decreased psychological distress over time, whereas self-defeating humor predicted increased psychological distress and decreased family satisfaction over time. Relations were largely mediated by caregiver positive reappraisal, family efforts to reframe daily disability-related challenges, and negative social interactions. Future research should further examine the influence of caregiver humor styles on family dynamics, family reframing norms, and caregiving efficacy.

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Family Stress Associated with Cerebral Palsy

Cited by 4 publications

References 89 publications

Psychological Distress among Caregivers of Children with Neurodevelopmental Disorders in Nepal

Psychological Distress among Caregivers of Children with Neurodevelopmental Disorders in Nepal

The Relationship Between Solution-Focused Communication Skills and Perceived Social Support: A Descriptive Levels of Study of the Perceptions of Turkish Parents with of Children with Developmental Disabilities

Caregiving in quarantine: Humor styles, reframing, and psychological well-being among parents of children with disabilities

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