Family Stress Associated with Cerebral Palsy

Fritz, Heidi L.; Sewell-Roberts, Carrie

doi:10.1007/978-3-319-74558-9_213

Cited by 7 publications

(19 citation statements)

References 89 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Several studies have documented relations between positive reappraisal and wellbeing specifically among caregivers, including caregivers of family members with dementia (Cheng et al, 2017;Haverstock et al, 2020) and physical health ailments (Litzelman et al, 2017), and parents of children with developmental disabilities (Hastings & Taunt, 2002;Scorgie & Sobsey, 2000). In a review of cerebral palsy caregiving and family stress, Fritz and Sewell-Roberts (2018) review noted that several studies in this area alluded to (but did not necessarily measure) a construct that can be best described as family-level positive reappraisal. Notably, one study of parents of children with disabilities (Lin, 2000) did explicitly examine "family reappraisal," conceptualized as a family norm for positively reframing stressors related to their child's disability.…”

Section: Mediators Of the Links Between Humor Styles And Well-beingmentioning

confidence: 99%

“…Even so, the lessons learned from individuals' responses to isolation may be broadly applied. For the parents of children with moderate to severe disabilities, some element of chronic family isolation is not uncommon (Fritz & Sewell-Roberts, 2018;Isa et al, 2016;Neely-Barnes & Dia, 2008). The relatively high level of comorbidities accompanying disability often necessitates limiting children's participation in the larger community, especially during cold and flu season.…”

Section: Future Directionsmentioning

confidence: 99%

“…During the best of times, caring for a child with a disability can be a lonely experience. Parent-caregivers report social isolation as one of their greatest sources of stress (Fritz & Sewell-Roberts, 2018). The abrupt shift to self-or government-imposed isolation, accompanied by the shuttering of schools and businesses and the loss of access to teachers, activities, and routines, was a difficult transition for many families at the onset of the COVID-19 pandemic.…”

Section: Introductionmentioning

confidence: 99%

“…Parents of children with disabilities live under chronically stressful conditions (Isa et al, 2016;Neely-Barnes & Dia, 2008). A recent review of the literature on cerebral palsy and family stress concluded that parents of children with disabilities report greater stress and worse mental and physical health than parents of typically developing children (Fritz & Sewell-Roberts, 2018). A variety of social, emotional, and health behavior factors explain this disparity in well-being.…”

Section: Introductionmentioning

confidence: 99%

“…However, it is important to note that not all parents of children with disabilities fare poorly: Considerable variability in well-being exists even among those parenting children with severe disabilities. Parent financial resources, social support, self-efficacy, and coping strategies all help to explain why some parentcaregivers thrive while others struggle (Fritz & Sewell-Roberts, 2018). Three studies to date have examined the coping strategy of humor use among parents of children with disabilities and found that the positive aspects of humor use are linked with enhanced caregiver well-being and family functioning (Fritz, 2020b;Rieger & McGrail, 2013, 2015.…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Caregiving in quarantine: Humor styles, reframing, and psychological well-being among parents of children with disabilities

Fritz

2021

Journal of Social and Personal Relationships

View full text Add to dashboard Cite

Prior research links adaptive humor styles (affiliative and self-enhancing) with enhanced psychological well-being and maladaptive humor styles (aggressive and self-defeating) with worse psychological well-being, primarily through humor styles’ influence on individuals’ social interactions and efforts to positively reframe stressors. The present study examined the unique relation of each humor style with psychological well-being with a focus on understanding mechanisms of adjustment under highly stressful conditions. Ninety-nine parents of children with disabilities were surveyed at the beginning of the COVID-19 pandemic in the United States in March 2020, and 79 parents completed follow-up surveys in July 2020. As predicted, at T1, self-enhancing humor was associated with less psychological distress and greater family satisfaction, self-defeating humor was associated with greater distress, and aggressive humor was associated with lower family satisfaction. Moreover, affiliative humor predicted decreased psychological distress over time, whereas self-defeating humor predicted increased psychological distress and decreased family satisfaction over time. Relations were largely mediated by caregiver positive reappraisal, family efforts to reframe daily disability-related challenges, and negative social interactions. Future research should further examine the influence of caregiver humor styles on family dynamics, family reframing norms, and caregiving efficacy.

show abstract

Section: Mediators Of the Links Between Humor Styles And Well-beingmentioning

confidence: 99%

Section: Future Directionsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Caregiving in quarantine: Humor styles, reframing, and psychological well-being among parents of children with disabilities

Fritz

2021

Journal of Social and Personal Relationships

View full text Add to dashboard Cite

show abstract

Magnitude and clinical characteristics of cerebral palsy among children in Africa: A systematic review and meta-analysis

Abate,

Tegegne,

Zemariam

et al. 2024

PLOS Glob Public Health

View full text Add to dashboard Cite

Cerebral palsy (CP) is the most common motor disability in childhood which causes a child’s behavioral, feeding, and sleep difficulties. It remains a poorly studied health problem in Africa. The main aim of this study was assessing the pooled prevalence of Cerebral Palsy (CP) and its clinical characteristics in Africa context. Systematic review and meta-analysis were conducted using Preferred Reporting Items for Systematic Review and Meta-Analysis (PRISMA) guidelines to search articles from electronic databases (Cochrane library, Ovid platform) (Medline, Embase, and Emcare), Google Scholar, CINAHL, PubMed, Maternity and Infant Care Database (MIDIRS). The last search date was on 12/05/ 2023 G. C. A weighted inverse variance random-effects model was used to estimate the pooled estimates of cerebral palsy and its types. The subgroup analysis, publication bias and sensitivity analysis were done. Studies on prevalence and clinical characteristics of cerebral palsy were included. The primary and secondary outcomes were prevalence and clinical characteristics of cerebral palsy respectively. A total of 15 articles with (n = 498406 patients) were included for the final analysis. The pooled prevalence of cerebral palsy in Africa was found to be 3·34 (2·70, 3·98). The most common type is spastic cerebral palsy accounting 69·30% (66·76, 71·83) of all cases. The second one is quadriplegic cerebral palsy which was found to be 41·49% (33·16, 49·81). Ataxic cerebral palsy accounted 5·36% (3·22, 7·50). On the other hand, dyskinetic cerebral palsy was found to be 10.88% (6·26, 15·49). About 32·10% (19·25, 44.95) of cases were bilateral while 25·17% (16·84, 33·50) were unilateral. The incidence of cerebral palsy in Africa surpasses the reported rates in developed nations. Spastic and quadriplegic subtypes emerge as the most frequently observed. It is recommended to channel initiatives toward the strategic focus on preventive measures, early detection strategies, and comprehensive management protocols.

show abstract

The Relationship Between Caregiver Workload and Stress Levels with Clinical Symptom Severity in Cerebral Palsy

Özden

Arık

Özkeskin

et al. 2021

International Journal of Disabilities Sports and Health Sciences

View full text Add to dashboard Cite

The aim of this study is to compare the functional status, spasticity, motor function status of children with cerebral palsy and their caregivers' workload and stress levels. A single-center prospective cross-sectional study was carried out with 30 children with Cerebral Palsy (CP) and their 30 caregivers. The clinical status of the children was assessed with the Modified Ashworth Scale (MAS), Gross Motor Function Classification System (GMFCS), The Functional Independence Measure for Children (WeeFIM). The caregivers' workload and stress levels were evaluated with Bakas Caregiving Outcomes Scale (BCOS) and Perceived Stress Scale (PSS), respectively. The mean age of the children was 11.46±7.45 years. In correlation analysis, the caregivers' BCOS score was related to the children's MAS score (p<0.05). On the other hand, there was a significant relationship between BCOS and PSS scores of the caregivers (p<0.05). Greater levels of spasticity in the children were associated with greater levels of workload. Stress level is higher in caregivers with a high workload.

show abstract

Family Stress Associated with Cerebral Palsy

Cited by 7 publications

References 89 publications

Caregiving in quarantine: Humor styles, reframing, and psychological well-being among parents of children with disabilities

Caregiving in quarantine: Humor styles, reframing, and psychological well-being among parents of children with disabilities

Magnitude and clinical characteristics of cerebral palsy among children in Africa: A systematic review and meta-analysis

The Relationship Between Caregiver Workload and Stress Levels with Clinical Symptom Severity in Cerebral Palsy

Contact Info

Product

Resources

About