Family Satisfaction with End-of-Life Care for Cancer Patients in a Cluster Randomized Trial

Ringdal, Gerd Inger; Jordhøy, Marit S.; Kaasa, Stein

doi:10.1016/s0885-3924(02)00417-7

Cited by 140 publications

(132 citation statements)

References 33 publications

(42 reference statements)

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“…Our study lends support to this assumption. Unlike other studies (Medigovich et al, 1999;Ringdal, Jordhøy, Kaasa, 2002;Can et al, 2011) we did not find significant differences between genders. The group of men in our study had a slightly higher satisfaction rate than the group of women.…”

Section: Discussioncontrasting

confidence: 99%

“…According to the sociodemographic characteristics, the group of middle-aged family caregivers (51 to 65 years) showed the lowest level of satisfaction in the overall FAMCARE-2 score, and in all dimensions, except dimension 3: "Family support", whereas the group with the oldest family caregivers (66 or older), had the highest satisfaction in this sample. This high satisfaction of older family caregivers has been observed in many other studies worldwide (Medigovich et al, 1999;Smith, 2000;Ringdal, Jordhøy, Kaasa, 2002;Can et al, 2011). One explanation for this phenomenon could be that older family caregivers who take responsibility for other older family members rated the service more positively than caregivers of younger family members (Kristjanson, 1993;Medigovich et al, 1999).…”

Section: Discussionsupporting

confidence: 70%

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Family Caregiver Satisfaction With Home-Based Palliative Care Services in North Rhine-Westphalia, Germany

Galatsch¹,

Sayn-Wittgenstein³

et al. 2017

Cent Eur J Nurs Midw

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Aim: The aim of this study was to give an overview of family caregiver satisfaction within the home palliative care situation in North Rhine-Westphalia, Germany. Design: A cross-sectional study. Methods: An anonymous questionnaire, with seven validated scales, and comprising of 71 items, was used. The items investigated perceived needs and burdens of families within a home-based palliative care situation. The satisfaction of the family caregivers with the services delivered by palliative care teams was measured by the FAMCARE-2 Scale. Descriptive statistics and analysis of covariance (ANCOVA) were performed. Results: A convenience sample of 106 family members agreed to participate in the study. Overall, we found high satisfaction within our sample. There was high satisfaction with how the services respected the dignity of families, and how they provided comfort to patients. Satisfaction was lower with regard to information about patients. Conclusion: High or low satisfaction with palliative care, tells us little about the quality of services. The high satisfaction within this study could be interpreted as a sign that palliative care was important to families at the time of availability. Regular and continuous assessment can serve to inform the continuous quality of care provision for patients and their families.

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Section: Discussioncontrasting

confidence: 99%

Section: Discussionsupporting

confidence: 70%

Family Caregiver Satisfaction With Home-Based Palliative Care Services in North Rhine-Westphalia, Germany

Galatsch¹,

Sayn-Wittgenstein³

et al. 2017

Cent Eur J Nurs Midw

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“…Early studies demonstrated clear benefit from palliative care expertise in management of pain and other symptoms associated with advanced illness, supporting caregivers, coordinating communication, and medical decision-making between clinical teams and patient/family unit, and providing comfort at end-of-life [4][5][6].…”

Section: Originsmentioning

confidence: 99%

Failing better: a new paradigm of care

Groninger

2017

Heart Fail Rev

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“…22,[29][30][31][32][33][34][35][36][37][38][39] Treatment of distressing symptoms by interdisciplinary palliative care and hospice teams translates to reduced medical complications and hospital utilization. 12,13,[40][41][42] In addition to symptom management, palliative care providers have expertise in the conduct of conversations with patients and families dedicated to assuring understanding of what to expect in the future, including prognosis and the resulting goals of care.…”

Section: Palliative Care and Hospicementioning

confidence: 99%

Research Priorities in Geriatric Palliative Care: Policy Initiatives

Unroe

Meier

2013

Journal of Palliative Medicine

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Coordinated palliative care matched to patient needs improves quality of care for vulnerable patients with serious illness and reduces costly use of hospitals and emergency departments. Unfortunately, there is a disconnect in translating geriatric palliative care models and principles into policy and widespread practice. Gaps in policy-relevant research are addressed, including implementation strategies to scale up existing care models, the role of palliative care and geriatrics in health care payment reform efforts, development of quality measures for complex patients, strategies to address workforce shortages, and an approach to hospice reform.''I told the doctor that I never wanted to go back to the hospital again. It's torture-you have no control and can't do anything for yourself. And you get weaker and sicker. Every time I'm in the hospital it feels like I'll never get out.'' This 88-year-old man with mild dementia presents to the emergency department for management of back pain due to spinal stenosis and arthritis. He had been admitted to the hospital four times in the past six months-twice for pain, once for weight loss and falls, and once for altered mental status due to constipation. His overwhelmed 83-year-old wife tells the emergency department physician, ''He hates being in the hospital, but what could I do? The pain was terrible and I couldn't reach the doctor. I couldn't even move him myself, so I called the ambulance. It was the only thing I could do.'' T he fields of palliative care and geriatrics have developed a growing body of evidence in support of customized care models aimed at meeting the needs of frail, vulnerable, and seriously ill patient populations. The problem is not that we don't know what to do-the problem is that we don't do what we know. The business of translating evidence into real-world practice for frail older adults is critically dependent on changes in public and payment policy. As in any aspect of health care, gaps do remain in our understanding of treatments and the optimal approach to delivering services to vulnerable populations. Allocation of research dollars to address these questions is an urgent public health priority. Health care spending in the United States not only fails to deliver quality but quite realistically poses the greatest threat to the American economy and way of life-the 18% of GDP in dollars spent on high cost, low value health care cannot be allocated to other crucial public needs: education, repair of roads and bridges, food and air quality and safety, and protection from the consequences of rising income inequality and poverty. The good news here is that improving quality of care for high risk, vulnerable patients-so that the patient described above does not have to turn to the emergency department for every symptom crisis, but instead receives coordinated palliative care matched to his changing needs at home-leads to much lower need for spending in emergency departments and hospitals. It is critical that federal, state, and local regulat...

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Family Satisfaction with End-of-Life Care for Cancer Patients in a Cluster Randomized Trial

Cited by 140 publications

References 33 publications

Family Caregiver Satisfaction With Home-Based Palliative Care Services in North Rhine-Westphalia, Germany

Family Caregiver Satisfaction With Home-Based Palliative Care Services in North Rhine-Westphalia, Germany

Failing better: a new paradigm of care

Research Priorities in Geriatric Palliative Care: Policy Initiatives

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